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Factor X deficiency
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Subclinical hypothyroidism advice for next appointment
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
Hi, I was told I was I had Subclinical hypothyroidism in 2017 but was not significant so no further input. Unsure of exact results but TSH was raised, but <10 with normal T4 (but do not have a copy of the results). Past few years have noticed hair loss, muscle aches & pains, tiredness, some weight gain
bluepenguin
in
Thyroid UK
3 months ago
Finally...🥳
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
Hi I hope everyone is doing well and if not hang on in there and reach out as there is misch support on here! I've had the toughest few months since last November the worse flare since being diagnosed in 2013, shadow on lung picked on a routine Chest X Ray at screening for new meds, so couldn't start
3LittleBirds2
in
NRAS
29 days ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
4 months ago
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Sometimes the solution is simple !
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and motivation get going and life opens up again. It didn’t happen this year though. Asthma COPD for 21 years….was it all getting to the body ? No energy
PaulineHM
in
Lung Conditions Community Forum
30 days ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
3 months ago
Ibrance side effects
I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleeding gums. I have a cold and slight cough. Not bacterial because I had recent chest x-ray and blood tests. I have mets to lungs. But no infection on my lungs. I see my oncologist next week. I am thinking a dose reduction
I am on Ibrance 125 mg and letrozole and I have bloody nose constantly and bleeding gums. I have a cold and slight cough. Not bacterial because I had recent chest x-ray and blood tests. I have mets to lungs. But no infection on my lungs. I see my oncologist next week. I am thinking a dose reduction
monkeygirl62
in
SHARE Metastatic Breast Cancer
1 month ago
your help needed in research about chest x-ray experiences
For those in the UK who've had a chest x-ray referred via their GP, please would you consider completing a research survey, seeking opinions from those affected ? (patients or relatives/caregivers) Whether it turned out to nothing more than a virus, infection or was followed up with other investigations
For those in the UK who've had a chest x-ray referred via their GP, please would you consider completing a research survey, seeking opinions from those affected ? (patients or relatives/caregivers) Whether it turned out to nothing more than a virus, infection or was followed up with other investigations
JanetteR57
in
The Roy Castle Lung Cancer Foundation
1 month ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
4 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
3 months ago
Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
3 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
4 months ago
Skipped beats
Iv posted a lot recently about my story since joing in February I am very grateful for everyone who's shared there stories and experiences and advise it's been nice to know I'm not alone in all of this. I wanted to put together where I am from the start to see if anybody else experienced similar situation
Iv posted a lot recently about my story since joing in February I am very grateful for everyone who's shared there stories and experiences and advise it's been nice to know I'm not alone in all of this. I wanted to put together where I am from the start to see if anybody else experienced similar situation
AWhittaker
in
Heart Rhythm Disorders Support
1 month ago
Anyone have rales/crackles in their lungs with no other symptoms ???
Good morning to everyone .. it is so nice to have the beautiful spring flowers everywhere and the warm sunshine .. I am doing well on my O&V treatment but I have experienced an unsettling problem .. 3 weeks after I started my 13 month on V ,,,, I developed rales/crackles in my left lung ... it occurs
Good morning to everyone .. it is so nice to have the beautiful spring flowers everywhere and the warm sunshine .. I am doing well on my O&V treatment but I have experienced an unsettling problem .. 3 weeks after I started my 13 month on V ,,,, I developed rales/crackles in my left lung ... it occurs
craterlake
in
CLL Support
2 months ago
I have RLS and recently updated iron labs revealed the following: Ferritin=59.2ng/mL & Transferrin Saturation = 53%.
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
I have been taking oral iron supplements (Iron sulfate 325mg) and Vitamin C 200 mg daily on an empty stomach but the ferritin has been going up but slowly but the transferrin saturation has gone up much higher. Should I continue with my iron supplements?
DTache
in
Restless Legs Syndrome
4 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
4 months ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
2 months ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
4 months ago
Felt like Giving Up - Update
Hi I posted about 6 weeks ago as I was really at rock bottom and just didn't know where to turn and felt like giving up, I just wanted to say a belated thanks to everyone who reached out to me with advice, support and positive wishes, it was so much appreciated. After a complaint to PALS I had a call
Hi I posted about 6 weeks ago as I was really at rock bottom and just didn't know where to turn and felt like giving up, I just wanted to say a belated thanks to everyone who reached out to me with advice, support and positive wishes, it was so much appreciated. After a complaint to PALS I had a call
3LittleBirds2
in
NRAS
2 months ago
Pernicious anaemia
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
mully
in
Pernicious Anaemia Society
4 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
4 months ago
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