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Factor X deficiency
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Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
2 months ago
dose increase?
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
Good morning I’m looking for a bit of advice about whether I should increase my Levothyroxine dose now, or wait a little while. I currently take 125/137.5 alternate days. I took a test after 6 weeks and have attached a picture of the results. I also had an iron panel done at the same time and, as per
BethBeezle
in
Thyroid UK
3 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
2 months ago
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Newbie and confused. Functional B12 deficiency?
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
Hi everyone, I am new here but I have been a member of the thyroid forum for many years. I've also just joined the Sjogren's and the lupus groups because some of my symptoms could be attributed to these though I have no diagnoses, and the Changing Faces group for my rhinophyma. I have Hashi's and thyroid
grumpyold
in
Pernicious Anaemia Society
2 months ago
Iron deficiency
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
After blood tests showed low ferritin and other values indicating iron deficient anaemia, the NHS did a fairly thorough job over 6 months with various tests and procedures to eliminate internal bleeds as a cause ( anticoagulant doesn't help!). Finally given the all clear and advised that iron supplementation
50568789
in
Restless Legs Syndrome
3 months ago
Can low iron cause intolerance to thyroxine?
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
hello, Please see my prev post for my iron results. Since starting levo last year I have felt increasingly unwell on it. Mainly crippling joint and muscle pain which isn’t present when I’m not taking it, unfortunately the introduction of t3 at end of last year has only worsened this too. I can hardly
GreenTealSeal
in
Thyroid UK
3 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
2 months ago
Iron panel values - average and RLS indicated.
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
Iron values and units for RLS patients 1. Total or serum iron Units: micrograms per deciliter (ug/dL) Range: men 65-175 ug/dL Range: women 50-170 ug/dL Range: children: 50-120 ug/dL Recommended value for RLS patients: greater than 60 ug/dL (adults) 2. Per cent iron saturation Units: per cent
fritz34
in
Restless Legs Syndrome
3 months ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
2 months ago
Blood test result - iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron
Lindsayf
in
Thyroid UK
3 months ago
Help with blood results
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Lindsayf
in
Pernicious Anaemia Society
3 months ago
Pernicious anaemia
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
mully
in
Pernicious Anaemia Society
3 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
3 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
3 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
3 months ago
help please
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Hi I’ve just joined the forum , I’ve been diagnosed with pernicious anaemia it’s in the family ,and low folate , I’d had the basic B12 bloods done they said I was ok ? Bloods for B12 showed 2,000 high I only got diagnosed because I asked for an intrinsic factor antibodies gastric parietal cell blood
Windyway
in
Pernicious Anaemia Society
3 months ago
Latest vitamin and iron test results following last post.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Vitamin D 80.3 nmol/L (50-150) Folic Acid 12.3 ug/L (>2.7) Iron 21 umol/L (9-30) Transferrin 2.1 g/L 1 (1.7-3.4g/L) Transferrin Saturation 38% (16-55%) Ferretin 143 ug/L (20-300) Vitamin B12 873 ng/L (160-800) Advice as always appreciated. Thank you.
Pawsedagain
in
Thyroid UK
4 months ago
any way to increase ferritin without increasing iron saturation?
after two months of taking iron supplements (75mg every other night on empty stomach), my ferritin rose from 51 to 158. Unfortunately, my iron saturation rose from 46% to 59%. This is caused by fairly high iron (172) and fairly low transferrin (291), though both are within normal range. My doctor
after two months of taking iron supplements (75mg every other night on empty stomach), my ferritin rose from 51 to 158. Unfortunately, my iron saturation rose from 46% to 59%. This is caused by fairly high iron (172) and fairly low transferrin (291), though both are within normal range. My doctor
707twitcher
in
Restless Legs Syndrome
4 months ago
Iron levels and huge TSH drop
Hi I've got two questions for today if thats ok: 1. I've finally managed to get my iron panel results (second time of trying) and the results are as follows: All in range: Iron 16 TIBC 64.5 UIBC 48.5 Out of range: Transferrin saturation 24.8 Ferritin 13.4 So from what I gather from reading
Hi I've got two questions for today if thats ok: 1. I've finally managed to get my iron panel results (second time of trying) and the results are as follows: All in range: Iron 16 TIBC 64.5 UIBC 48.5 Out of range: Transferrin saturation 24.8 Ferritin 13.4 So from what I gather from reading
Cybob
in
Thyroid UK
4 months ago
First time posting here with questions
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
Hello, I was wondering how to tell if you need b12 injections when you take oral b12 and your serum b12 always comes out looking great? I haven't had it tested recently but past tests always come out way over the range. Anyway, I saw a post by @Marz in which she said that she takes b12 due to having
shirlzoni
in
Thyroid UK
4 months ago
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