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new here, possible deep infiltrative endo, not confirmed yet
Hi, i’ve just stumbled upon this group after reasearching endo…. I’m 39 years and always suffered heavy bleeding etc, the past 3 years have been terrible, severe pain, constant bloating left side, hip pain, feel a depressed mess if i’m honest, no quality of life due to symptoms whatsoever. Gynea
Hi, i’ve just stumbled upon this group after reasearching endo…. I’m 39 years and always suffered heavy bleeding etc, the past 3 years have been terrible, severe pain, constant bloating left side, hip pain, feel a depressed mess if i’m honest, no quality of life due to symptoms whatsoever. Gynea
Kimbox
in
Endometriosis UK
2 years ago
pain whilst on zoladex
Hi everyone I just wanted some advice regarding zoladex, I have been using it for the last 9 months for my severe endo but for the last month or so I have started flaring up again I’m always in pain having to take painkillers daily around the clock. I felt fantastic before this last month best I’ve
Hi everyone I just wanted some advice regarding zoladex, I have been using it for the last 9 months for my severe endo but for the last month or so I have started flaring up again I’m always in pain having to take painkillers daily around the clock. I felt fantastic before this last month best I’ve
SK2021
in
Endometriosis UK
2 years ago
Eye sight loss left eye could this be lupus or Connective tissue disease?
hi can anyone advise if eyesight loss due to bright zig zag and fog then total loss with temple pain could be due to lupus or CTD ? I have been to A&E have urgent eye clinic appointment this week. would love to hear from anyone one 😃
hi can anyone advise if eyesight loss due to bright zig zag and fog then total loss with temple pain could be due to lupus or CTD ? I have been to A&E have urgent eye clinic appointment this week. would love to hear from anyone one 😃
Geeforce99
in
LUPUS UK
2 years ago
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Travelling on public transport with liver disease
Hi all, this is not quite the first post from me - have tried to answer a couple of questions some while back - but could really do with some help for myself now. I've not been diagnosed with liver disease but am pretty sure I have it - weight loss, fluid retention and also - for nearly thirty years
Hi all, this is not quite the first post from me - have tried to answer a couple of questions some while back - but could really do with some help for myself now. I've not been diagnosed with liver disease but am pretty sure I have it - weight loss, fluid retention and also - for nearly thirty years
Daphnis61
in
British Liver Trust
2 years ago
Advice needed
I was on the contraceptive pill for 10 years due to bad periods and back pain. In November I came off the pill to start a family. I normally have a 32-35 day cycle. In February I had a 63 day cycle so totally missed a period, I contacted the doctor and they said if I missed another to get in contact
I was on the contraceptive pill for 10 years due to bad periods and back pain. In November I came off the pill to start a family. I normally have a 32-35 day cycle. In February I had a 63 day cycle so totally missed a period, I contacted the doctor and they said if I missed another to get in contact
aco1994
in
Endometriosis UK
2 years ago
Painkillers
Hi everyone, I am currently taking 6 zapain a day but really do not think they are helping. I will discuss with doctor for an alternative to try , but would love to hear if anything has worked for you so I have some idea of what might be available. Thank you to those who reply. cmjoyce
Hi everyone, I am currently taking 6 zapain a day but really do not think they are helping. I will discuss with doctor for an alternative to try , but would love to hear if anything has worked for you so I have some idea of what might be available. Thank you to those who reply. cmjoyce
cmjoyce
in
Arthritis Action
2 years ago
Glaucoma and breast cancer
Hello I wondered if anyone on here is or has been taking the hormone drug tamoxifen? I currently take two lots of eye drops for glaucoma, have had three trabs in the past and in May 2021 a Baerveldt shunt implant. After I recently started the tamoxifen drug I feel that I’m experiencing sore eyes (more
Hello I wondered if anyone on here is or has been taking the hormone drug tamoxifen? I currently take two lots of eye drops for glaucoma, have had three trabs in the past and in May 2021 a Baerveldt shunt implant. After I recently started the tamoxifen drug I feel that I’m experiencing sore eyes (more
Euphor
in
Glaucoma UK
2 years ago
2 months after op still blurred vision, too early to give up?
It has been two months since I had a trab op. My vision was gradually improving but it stopped the last one month ie, no improvement of vision from day 30 to day 60 after op. Doctor seems to suspect this might be as good as it gets. He mentioned my glaucoma was advanced so in some cases, it never goes
It has been two months since I had a trab op. My vision was gradually improving but it stopped the last one month ie, no improvement of vision from day 30 to day 60 after op. Doctor seems to suspect this might be as good as it gets. He mentioned my glaucoma was advanced so in some cases, it never goes
charles555
in
Glaucoma UK
2 years ago
Help change Health Professionals' attitudes to FM and FM diagnosis - your experiences, please... Sorry, a bit of a long read...
Background to my question.
Just had my second total knee replacement and my lovely Physio Salma at my hospital is particularly interested in trying to change attitudes toward FM in certain health sector groups and has made this a major part of her Senior Physio Thesis for which she is presenting
Background to my question.
Just had my second total knee replacement and my lovely Physio Salma at my hospital is particularly interested in trying to change attitudes toward FM in certain health sector groups and has made this a major part of her Senior Physio Thesis for which she is presenting
denny_the_wench
in
Fibromyalgia Action UK
2 years ago
Thyroid and Supplements to help Perimenopause
Hi, I have Hypothyroidism and take Thyroxine and NDT. I have been having symptoms over the last 6-8 months similar to Thyroid which I now believe to be Perimenopause. I started on Collagen which has helped with joint pain and saw a GP last week who suggested Black Cohosh and Red Clover to see how
Hi, I have Hypothyroidism and take Thyroxine and NDT. I have been having symptoms over the last 6-8 months similar to Thyroid which I now believe to be Perimenopause. I started on Collagen which has helped with joint pain and saw a GP last week who suggested Black Cohosh and Red Clover to see how
ju01749
in
Thyroid UK
2 years ago
Go to IBS comforts
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Currently in a pretty strong flare up for first time in a while and I wondered what everyones go too and when in a flare up. Mine so far: Buscopan Cold wet flannel Imodium instants (hate the taste of these!) Various layers of pillows and weighted blanket on my stomach My favourite music playlist
Loulabelle1709
in
IBS Network
2 years ago
Simbrinza eye drops
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
We have contacted Novartis pharmaceutical corporation for an update about the supply difficulty with obtaining Simbrinza eye drops. In a verbal message, they said: “There is an interruption in the supply of Simbrinza eye drops. There is no confirmed date of when it is likely to be made available again
TomS_GlaucomaUK
Administrator
in
Glaucoma UK
2 years ago
Peripheral Neuropathy PN Activist
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
PN at Mayo Clinic offers better care and definition - see Peripheral Neuropathy. John Hopkins Medicine https://www.hopkinsmedicine.org/health/conditions-and-diseases/peripheral-neuropathy Peripheral Neuropathy | Johns Hopkins Medicinereports “Usually a peripheral neuropathy can’t be cured, but you
CIPN
in
Neuropathy Support
2 years ago
A really long post, I’m sorry.
His LFTS are monitored by his rheumatologist who only in the beginning of the year said they are happy with everything and said they didn’t need to see him for a year (they were seeing him every six months) obviously for his
pain
too but they kept a
eye
on his liver too.
His LFTS are monitored by his rheumatologist who only in the beginning of the year said they are happy with everything and said they didn’t need to see him for a year (they were seeing him every six months) obviously for his
pain
too but they kept a
eye
on his liver too.
Booksand
in
British Liver Trust
11 months ago
Does this sound like fibro?
I also started to get migraine and
pain
in my left
eye
. I have found it very hard to get any help or treatment from my GP. At Christmas I was given Pregabalin for the occipital nerve pain which helped a little.
I also started to get migraine and
pain
in my left
eye
. I have found it very hard to get any help or treatment from my GP. At Christmas I was given Pregabalin for the occipital nerve pain which helped a little.
robin_of_loxley
in
Fibromyalgia Action UK
1 year ago
help what painkillers best for flares and fibro
spent yesterday with the world going on and me out of it tramadol seems to be losing effect started antidepressant not sure if its doing anything any ideas
spent yesterday with the world going on and me out of it tramadol seems to be losing effect started antidepressant not sure if its doing anything any ideas
pauluk60
in
NRAS
2 years ago
Is this a flare
Hi all thought I’d update you on my post is this a flare!!!! As no painkillers helped just wondered if I was having a flare but thank goodness no I’m not. I’ve had an MRI and found a disc pressing on a nerve but requires no surgery at the moment. however my ESR was raised as was my CRP. Have been
Hi all thought I’d update you on my post is this a flare!!!! As no painkillers helped just wondered if I was having a flare but thank goodness no I’m not. I’ve had an MRI and found a disc pressing on a nerve but requires no surgery at the moment. however my ESR was raised as was my CRP. Have been
Reddev
in
PMRGCAuk
2 years ago
Sunday’s Poem is Tarantella
Do you remember an Inn, Miranda? Do you remember an Inn? And the tedding and the spreading Of the straw for a bedding, And the fleas that tease in the High Pyrenees, And the wine that tasted of the tar? And the cheers and the jeers of the young muleteers (Under the vine of the dark verandah)
Do you remember an Inn, Miranda? Do you remember an Inn? And the tedding and the spreading Of the straw for a bedding, And the fleas that tease in the High Pyrenees, And the wine that tasted of the tar? And the cheers and the jeers of the young muleteers (Under the vine of the dark verandah)
Lyd12
in
Lung Conditions Community Forum
2 years ago
combo Jakafi and Pegasys
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
i am just stated the combo treatment of Jakafi 20mg twice perday + Pegasys 135mcg weekly for PV and it success to reduce my PLT from 1.2mi to 300k; HCT from 47 to 41,3; WBC from 27 to 16 and HGB from 18 to 14. does anyone with same treatment can share their experience with this combo...? thanks
william-Indo
in
MPN Voice
2 years ago
My eyesight problems
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Hi everybody, I have normal pressure glaucoma. I use Monoprost drops in my right eye. I have had a trab in my left eye since January 2019. My pressures are fairly stable though the damage to my left eye is getting worse. I've always been shortsighted and obviously wear prescription specs. The last
Quiet_Lin
in
Glaucoma UK
2 years ago
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