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COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
6 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
Atrial Fibrillation Support
6 months ago
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Recovering from Pneumonia
hello, I posted 2 weeks ago about having pneumonia and got some really helpful replies so thank you. I’m 25, asthmatic and started feeling poorly on 17th Jan. I have been back and forwards to the doctors & hospital, had 14 days of antibiotics now and feeling much better with regards to the coughing,
hello, I posted 2 weeks ago about having pneumonia and got some really helpful replies so thank you. I’m 25, asthmatic and started feeling poorly on 17th Jan. I have been back and forwards to the doctors & hospital, had 14 days of antibiotics now and feeling much better with regards to the coughing,
Leanne1b
in
Asthma Community Forum
6 months ago
bleed in eye
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
I have retinopathy in eye and dry eye and have been given drops to help at night I have type 2 diabetes the cold made it bleed in jan and had pain for six months but leprechaun warm and went away by self
Eastwood1
in
Pain Concern
10 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
6 months ago
Hydroxychloroquine not made a difference
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
Hi there, I have undifferentiated connective tissue disease and sjogrens syndrome. I just wondered if anyone else found hydroxychloroquine didnt help them? There was no difference for me but I continued under the guidance of my rheumatologist and have now come off of it as am trying a different medication
DogsMakeLifeGood
in
LUPUS UK
10 months ago
Covid and prednisone
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
Hi, Covid finally got me 10 days ago for the first time and today I'm still testing positive and I'm still isolating from everyone else in the house. Prior to getting Covid, I've been on DL's 5 week taper with me being at the 5 week mark of 12 mg's that began two weeks ago Sunday. By Thursday of that
perceptual63
in
PMRGCAuk
6 months ago
Most know the story. Something I can't figure out.
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
Most people here know my wife's story and went to the hospital with Eshauphageal erosion, but a typo on her Chart (Fibrosis vs Cirrhosis) had a dramatic impact. Doctors thought they were dealing with Cirrhosis vs NASH with Fibrosis. That was tracked down to a dictaphone error. In reality, two weeks
ceward204
in
British Liver Trust
6 months ago
A new year, a new (re)start, and another memento from covid.
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
A lovely vrb asked after me the other day, and I realised I haven't posted since I got my ear infection, so here's what's been happening - or not! So, the ear infection back in November caused vertigo, which stopped me from running because it just felt too weird. I was just getting back from that when
grumpyoldgirl
Graduate
in
Couch to 5K
6 months ago
Ibs worse since Covid
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
Just wondering has anyone else's symptoms worsened since Covid ? mine certainly have and I have noticed that a lot of people on here are saying that they are feeling worse in the last one to two years, I am just reeling from my latest bout and it's been gradually worsening over the last 18 months or
buggins55
in
IBS Network
6 months ago
iga vasculitis
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
hello my name is Marc I have been diagnosed with iga vasculitis. I’ve been struggling for twelve months trying not to let this beat me do you legs improve or get worse as you get older
Frosty_nights89
in
Vasculitis UK
6 months ago
sick day rules for labyrinthitis
Hi Once again looking for a little guidance please. I’m currently on 8mg a day using DSNS method of tapering and ok so far. However 3 weeks ago I got a really bad head cold which was followed by labyrinthitis. This resulted in appalling vertigo and sickness which confined me to my pit for 3 days. GP
Hi Once again looking for a little guidance please. I’m currently on 8mg a day using DSNS method of tapering and ok so far. However 3 weeks ago I got a really bad head cold which was followed by labyrinthitis. This resulted in appalling vertigo and sickness which confined me to my pit for 3 days. GP
Mandyq
in
PMRGCAuk
8 months ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
10 months ago
immunosuppressed, covid positive - anyone have an experience with antivirals?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Myositis UK
6 months ago
Covid positive with ILD - antiviral experience ?
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with ILD. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it for last 4 years). I wonder if anyone could share their Covid experiences and
ruablue
in
Living with Interstitial Lung Disease (ILD)
6 months ago
Covid positive - anyone with antiviral experience
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
hello lovely people of this wonderful forum - seeking any insight or guidance I was diagnosed (11 months ago) with scleroderma & myositis with lung involvement (ILD) on Mycophenolate for treatment. Despite being very cautious and careful, I have just tested positive for Covid, (having avoided it
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
More to deal with. Early birthday gift I guess.
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
I get all my shots as soon as they are available. Besides, Lupron had current flu, covid and RVS. Thought I must have caught flu and but feeling different about it. Worst sore throat every and continually spit phlegm and spittle. Went to our local ER and came up with the winner, COVID! Caught it
SpencerBoy11
in
Advanced Prostate Cancer
6 months ago
Dry mouth and throat
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
I have a constantly dry throat and meds, probably from meds. Other than carrying water around with me whenever I go out, or a constant supply of cough sweets, does anyone have any suggestions? Thanks
veggiefan70
in
Fibromyalgia Action UK
8 months ago
Father has had PBC for 16 years - Odd complications since COVID?
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Hello all, I wonder if anyone here who has PBC (or has a family member with PBC) has had similar experiences post covid? My father was diagnosed 16 years ago. Recently he contracted COVID and was hospitalised (he's also been a type 1 diabetic since birth, so 60 years). Within a day of getting COVID
Kylewillmott
in
PBC Foundation
6 months ago
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