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Insomnia? Some good results here
I've had insomnia since having thyroid issues (even before medication) on and off for years. Recently, since last year it has been constant and extremley distressing. Mostly falling asleep ok but waking a few hours later EVERY night. I have asked tons of advice and followed many suggestions. Ear
I've had insomnia since having thyroid issues (even before medication) on and off for years. Recently, since last year it has been constant and extremley distressing. Mostly falling asleep ok but waking a few hours later EVERY night. I have asked tons of advice and followed many suggestions. Ear
dayoff
in
Thyroid UK
1 year ago
Orgovyx + Abiaterone?
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
I have very high risk prostate cancer (Gleason 9, negative PSMA for spread, MRI suggests possible spread to seminal vessel, PSA in 7s before treatment). Due to cardiac history (stroke and heart attack) MO is being cautious and has started dosing Eligard at 1 Month intervals to make sure I am doing ok
Hope49823
in
Advanced Prostate Cancer
4 months ago
HRT patch help
I’m on my mock cycle for a IVF donor egg transfer. I’ve started oestrogen patches but I seem to be getting shooting electric shock pains up the side of my head / neck. Has anybody experienced similar? Many thanks xx
I’m on my mock cycle for a IVF donor egg transfer. I’ve started oestrogen patches but I seem to be getting shooting electric shock pains up the side of my head / neck. Has anybody experienced similar? Many thanks xx
Steadman80
in
Fertility Network UK
1 year ago
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Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
3 months ago
Shoud I be concerned with my PSA rising from .79 to 1.01 in about 10 months?
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
Diagnosed with prostate cancer in August'18 with PSA of 7.84, Greason score of 7 (4+3) before being treated with SBRT without ADT at UCLA in October'18. Reached nadir at .79 after 4.5 years after SBRT treatment. My latest PSA number as of 01/12/24 is 1.01 as compared to 0.93 (10/16/23), 0.93 (07
mike2344
in
Prostate Cancer Network
4 months ago
Retiredlass
I am 73 and have had fibro for 7 years. I live alone with my 2 dogs and 2 cats. I am currently on no pain medication although I do take Duloxetine twice a day. I also have osteoarthritis and currently am awaiting a knee replacement. I already have one hip replacement. Like a lot of you I am sure have
I am 73 and have had fibro for 7 years. I live alone with my 2 dogs and 2 cats. I am currently on no pain medication although I do take Duloxetine twice a day. I also have osteoarthritis and currently am awaiting a knee replacement. I already have one hip replacement. Like a lot of you I am sure have
Retiredlass
in
Fibromyalgia Action UK
11 months ago
Cribiform Prostate Cancer
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
I have some findings of cribiform cancer in my cancer biopsy. I will start treatment with ADT this mnonth and SBRT in April, 2024. Cribiform cancer in the literature is associated with significantly worse outcomes. Does anyone have experience with this?
Worked_the_World
in
Advanced Prostate Cancer
4 months ago
First Lutetium Treatment
Hello, After many years on ADT and ARPI drugs, my prostate cancer is back. My medical oncologists have discovered several new lesions. I am now on the verge of starting Lutetium. The list of side effects provided to me is somewhat daunting. I have been told the risks and side effects include:
Hello, After many years on ADT and ARPI drugs, my prostate cancer is back. My medical oncologists have discovered several new lesions. I am now on the verge of starting Lutetium. The list of side effects provided to me is somewhat daunting. I have been told the risks and side effects include:
RyderLake2
in
Advanced Prostate Cancer
4 months ago
Adding second line hormonal therapy?
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
Hello everyone. My father's treatment from diagnosis consisted of ADT (Zoladex, 3-month injections as of now) and 6 courses of Docetaxel chemotherapy. PSA nadir was 0.89 after 7 months of treatment but after that the last 3 PSA tests show increase (PSA 2.310 on 24 Oct. 2023, PSA 6.81 on 24 Nov. 2023
gio2x
in
Advanced Prostate Cancer
4 months ago
knee replacement
saw a private Dr yesterday about my knee. The complete opposite to what my NHS consultant said. He says right away it’s swollen - I said it’s been like that most of the past 5 years / am used to it and hopping along. Quick run through my health and where am at and says of course you need a knee replacement
saw a private Dr yesterday about my knee. The complete opposite to what my NHS consultant said. He says right away it’s swollen - I said it’s been like that most of the past 5 years / am used to it and hopping along. Quick run through my health and where am at and says of course you need a knee replacement
TheBoys
in
Arthritis Action
11 months ago
How to monitor PCa after you stop ADT?
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
I've been on Zoladex implants for coming up to 4 years in February. I plan to stop ADT next time when it's due, as my PSA is always "undetectable" and it's been 4 years of physical and mental torment for me (the side effects). I think that enough is enough now. Does anyone have advice on the best ways
BluesmanNick
in
Advanced Prostate Cancer
4 months ago
Side effects of Relvar Ellipta?
Hi, I have been on Relvar Ellipta for, I think, four years now. It works well to control my asthma, but I wonder if anybody has got any side effects from this medicine? Apart from asthma, I have problems with a heart valve (Mitral), and I am hormone treatment for prostate cancer, and also I take Budesonide
Hi, I have been on Relvar Ellipta for, I think, four years now. It works well to control my asthma, but I wonder if anybody has got any side effects from this medicine? Apart from asthma, I have problems with a heart valve (Mitral), and I am hormone treatment for prostate cancer, and also I take Budesonide
crille
in
Asthma Community Forum
4 months ago
How soon after taking 4 month eligard shot can you switch to firmagon?
I started my hormone treatment with firmagon + apalutamide beginning 2023. The treatment worked fantastic and all my pain faded away and my psa dropped from 350 to .09 over 11 months. My life was as near normal as can be expected with cancer. Almost immediately my MO was recomending to switch to 4
I started my hormone treatment with firmagon + apalutamide beginning 2023. The treatment worked fantastic and all my pain faded away and my psa dropped from 350 to .09 over 11 months. My life was as near normal as can be expected with cancer. Almost immediately my MO was recomending to switch to 4
skiingfiend
in
Advanced Prostate Cancer
4 months ago
My journey thus far
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
I am currently at the point of deciding on treatment for my high risk prostate cancer. Here is where things stand thus far:
October 2023:
PSA of 22 discovered at routine physical
November 2023:
PSA score of 25.6 upon retest by urologist
December 2023:
TRUS Biopsy. Cancer in
CavScout
in
Advanced Prostate Cancer
4 months ago
Darolutamide and Desunomab Questions
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
Prostate was radiated in 2021 and pelvic node and pelvis in 2023. Cancer is growing prostate, shrinking in pelvic node, and spread to an abdominal node. Opinions are welcome on two subjects. I have started on ADT Orgovyx with no side effects in a month. The urologist plans to add an ARI (reception
vintage42
in
Advanced Prostate Cancer
4 months ago
Hip Replacement and RA
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Angie2212
in
NRAS
9 months ago
The NIR project, a neuro-illumination technology to combat PD
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
Esperanto
in
Cure Parkinson's
10 months ago
Overwhelmed, what do I do next? Mutations In my Germline & a Tier 1 ATM Frameshift Alteration
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
My Germline is I’m missing a blm copy like a bloom syndrome drop My Genomic Tier 1 is a ATM Frameshift Alteration I have a battery of mutations listed in my profile bio. My PSA in the last 4 months is rising from <0.06 in October to 0.46 last week. I’m on Firmagon monthly, Zytiga with Prednisone
Shorehousejam
in
Advanced Prostate Cancer
5 months ago
tips to convince gynaecologist to give me a hysterectomy
Hello I need some effective tips to convince my gynaecologist to give me a hysterectomy I have had laps in the past to remove endo I have had two children I do not want anymore I have been on prostap injections for the past 16 to 18 months and cannot tolerate the side-effects anymore Mood
Hello I need some effective tips to convince my gynaecologist to give me a hysterectomy I have had laps in the past to remove endo I have had two children I do not want anymore I have been on prostap injections for the past 16 to 18 months and cannot tolerate the side-effects anymore Mood
Prettythings1
in
Endometriosis UK
1 year ago
Any Data or MO Advice Regarding Dutasteride / Finasteride At Very Early Biochemical Recurrence?
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
Does anyone know of any studies or MO advice they've gotten regarding use of Dutasteride or Finasteride at very early signs of Biochemical Reccurrence (uPSA in the 0.03 - 0.1 range) prior to Salvage Radiotherapy? It's obviously going to slow PSA doubling time and thereby probably lengthen the time
jazj
in
Advanced Prostate Cancer
5 months ago
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