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Enzyme Replacement Therapy
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Hip replacement
hi, I’m new here. I am 64. I just had a birthday. I was diagnosed with RA in 2004 . I am on Biologics -ORENCIA for five years During the pandemic I had a bad fall and injured my knee . Couldn’t get much Physiotherapy because of the lockdowns so I did what I could on my own . since then I am having
hi, I’m new here. I am 64. I just had a birthday. I was diagnosed with RA in 2004 . I am on Biologics -ORENCIA for five years During the pandemic I had a bad fall and injured my knee . Couldn’t get much Physiotherapy because of the lockdowns so I did what I could on my own . since then I am having
Kitek
in
NRAS
1 year ago
Aids post knee replacement
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
I'm due a total knee replacement next month. I already have an easy reach grabber, a leg raiser and a raised toilet seat from when I had a new hip last year. Are there other things that people have found helpful? Thanks 😊 x
greynot
in
NRAS
1 year ago
Triplet Therapy
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
My husband is going to start triplet therapy starting with a firmagon shot next week followed by chemo. How much is the typical gap between ADT and starting chemo - 2 weeks, 4 weeks ?
Cali3
in
Advanced Prostate Cancer
6 months ago
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Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
6 months ago
anxiety/holding down jobs
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
Hi brothers and sisters., i got diagnosed as having pernicious 2 and half years ago - ive always had anxiety - more so in the workplace, ive only worked 4 months in the last 3 years due to anxiety- but feel maybe the anxiety worse after the pernicious diagnosis? definetelt feels like that for me.
dolphin66stag
in
Pernicious Anaemia Society
8 months ago
The search for reasons
Hi I haven't posted anything for ages and on the whole since my hip replacement, infection and second replacement I have been doing well. PMR symptoms minimal, weight lose steady since I stopped taking prednisone health general improving. Always looking for reasons why it happened to me though. I am
Hi I haven't posted anything for ages and on the whole since my hip replacement, infection and second replacement I have been doing well. PMR symptoms minimal, weight lose steady since I stopped taking prednisone health general improving. Always looking for reasons why it happened to me though. I am
Hiibilly
in
PMRGCAuk
1 year ago
Fatiqued and wiped out feeling
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept
woppaginny
in
Advanced Prostate Cancer
4 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
5 months ago
ADT and crying
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
Does anyone else that has been on ADT drugs for years have trouble with tears or crying for no real reason? I tear up anymore at just the thought of something sad. It’s a major pain in the ass, not to mention embarrassing because I am still employed. Wondering if there is a solution other than stopping
joeguy
in
Advanced Prostate Cancer
6 months ago
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
6 months ago
Thanks and hope to all
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
No questions …just wanted to thank everyone for all your input and support …especially during the holidays. Had my Christmas radiation treatment yesterday and 7 of 15 linac dose today.. Brachytherapy prior with ADT for the last 7 months. Things seem to be going as smoothly as it sometimes does. Appreciate
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
Numbness, hrt
Sorry this post is 2 questions. I have an underactive thyriod. Been on 100mg of levo for 8 years now. But over past 2 years been feeling much worse. 6 months ago went on to hrt but think this is making me worse although initially felt better. Does anyone else suffer problems with menopause, hrt
Sorry this post is 2 questions. I have an underactive thyriod. Been on 100mg of levo for 8 years now. But over past 2 years been feeling much worse. 6 months ago went on to hrt but think this is making me worse although initially felt better. Does anyone else suffer problems with menopause, hrt
Billy2023
in
Thyroid UK
1 year ago
Right Hip Replacement June 21, 2023
Hello all. My name is Chris, a 55 year old from the US. For the past 2 years I've had debilitating hip pain in my right hip. I just kept putting off a doctor's visit believing "it would get better". Well, this spring when my answer to every "do you want to?" question was "NO", I finally got fed
Hello all. My name is Chris, a 55 year old from the US. For the past 2 years I've had debilitating hip pain in my right hip. I just kept putting off a doctor's visit believing "it would get better". Well, this spring when my answer to every "do you want to?" question was "NO", I finally got fed
NewHip6-21-23
in
Couch to 5K
1 year ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
6 months ago
Struggling to make the best education choices
Hello, My 6-year-old son was diagnosed with ADHD about a year ago. Because of his age, we tried PCIT behavior therapy and while we saw some mild improvements there was no real change. I have homeschooled my son since he was 3. It started off as preschool working on language development in conjunction
Hello, My 6-year-old son was diagnosed with ADHD about a year ago. Because of his age, we tried PCIT behavior therapy and while we saw some mild improvements there was no real change. I have homeschooled my son since he was 3. It started off as preschool working on language development in conjunction
kt01513
in
CHADD's ADHD Parents Together
11 months ago
CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
6 months ago
QoL Rest Ye Merry Gentlemen/women :-)
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
dockam
in
Advanced Prostate Cancer
6 months ago
happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
7 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
7 months ago
Ovarian cyst
In 2020 I had my left ovary removed.July 2022 scan revealed a cyst but to check i had another scan in Dec 2022 scan results said I have cyst on left ovary!!!! When I questioned this as I don't have a left ovary I was told not to have HRT for my menopause and rescan in 6 months. I'm now getting strange
In 2020 I had my left ovary removed.July 2022 scan revealed a cyst but to check i had another scan in Dec 2022 scan results said I have cyst on left ovary!!!! When I questioned this as I don't have a left ovary I was told not to have HRT for my menopause and rescan in 6 months. I'm now getting strange
Purple_Cavalier
in
Endometriosis UK
1 year ago
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