I started lupron injection 5 months ago and starting my second month on nubeqa. I am extremely fatiqued and feel wiped out all the time. No ambition to do anything. Climbing stairs is an efford have to force myself to get out of bed. Cannot sleep very well. When I get up it feels like I have not slept at all. Joints and body aches and have mood changes that are disrupting things., My cancer is still contained in the prostate but begining to protrude through the capsule and has become castrate resistant and the reason for nubeqa. Go for IMRT radiation in a couple weeks. My question is has anyone else had these reactions to these meds and if so what did you do about it?
Fatiqued and wiped out feeling - Advanced Prostate...
Fatiqued and wiped out feeling
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woppaginny
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Hit the gym 6 days a week, went on mood stabilizers and take THC for sleep. Totally improved my life and outlook
May I ask what type of THC? We know nothing about it. My husband just started his journey this month with ADT and starts chemo this week.
I use gummies in the Indica strain to help with sleep. Start with 5mg and up dose until you get a good nights sleep. The people at the dispensaries are very knowledgeable too
Thanks and helpful, we just didn’t know where to start. We had a ton of information given to us at the medical MJ doctor. You have to see one to get a card in FL. We haven’t went to the dispensary yet.
MrS, what mood stabilizers do you take and what symptoms were you combatting? TIA.
I am currently on Duloxetine 20mg. I was having suicidal thoughts and starting bar fights on a regular basis. My mental outlook is so much better. I see a Psychiatrist about once every 4 months which also helps. Totally took me by surprise
I stop ADT/Nub in Sept to see if my last shot at "cure" worked (whole pelvic IMRT) so I am going to gut it out on the emotional SEs. If PCa returns and I decide to go back on this regiment longer term then I'll want to follow your lead. For now I am avoiding bars. Keep liver enzymes in check and orange is not my color. 😉
Oh man -- I hear you. I haven't been active on healthUnlicked for quite awhile. I just finished a two year run of Lupron injections last year. I was loaded up in my Seminal V's so went the Brachy and Radiation path, which as alright...but the LUPRON. It's that devil in a needle. I lost so much muscle mass and also had the same symptons you are or have been experiencing. I was shocked on the mood swings (which caught me by surprise after I realized I was off the rails)and the dang hot flashes, I learned to use a remote control quiet fan by the bed. I was able to mitigate the sleep issue with some low dose generic Ambien. Tried OTC sleep pills and they just lingered so long I had trouble shaking the tired feelings. The fatigue comes and goes and I found just being active outside (although in Phoenix the summers are brutal so that was hit and miss - the garage and finding little projects kept my mind busy ----heck even screwing in a light bulb took effort - so to speak - but it was being "busy".
I will say most the comments were to hit the gym, exercise, lift light weights,etc. That's what my "ears" heard. But I have never been a gym kinda guy . I should have found my own way at the start of these injections and treatments. I waited too long (about a year) to be more active and muscle through the first several or more minutes of just starting something to just get moving and to start.
Stairs --- I swear they are another evil 
To me the gym is boring. Love sports throughout my life. What I found is just riding a bike at a comfortable pace works wonders. Fresh air, outside, watching the world and nature around you. Fortunately we have lost of trails , so not have to deal with the car knuckleheads on the streets. Hang in there. find your style, if you're a golfer - just go chip and put. Screw the driving range for a while. If you're a reader, take a walk to a local park or bench and read there, not at home. the couch will swallow you up.
74 and Vertical baby!
I support ducttape suggestions 100%Lean in towards anything that feels good and healthy. I hate going to the gym, but I discovered resistance water walking for leg exercise 🤪. Exercise machines bores me to tears, but I discovered that magnet fishing is good upper body exercise 😂. I am almost a hermit when it comes to social interaction, but I discovered I can listen to music and dance all by myself, alone, and feel good getting worn out 😄.
Like Joseph Campbell said in the Bill Moyers interviews way back in the late '80s "follow your bliss". Or go back to the 60s and "if it feels good do it!".
And paradoxically, let yourself feel the loss that prostate cancer and its treatments have brought into your life. Not being the man you thought you were, or thought you were going to be, is a tough pill to swallow. But the man you are is still pretty amazing. Grieve the loss, but know that you are still here and have pleasures, desires, and joys to experience!
Cancer is your enemy. Not your body. Enjoy your body.
It took me 2 years of Lupron to feel like I've got some idea of how to to this. Also a lot of advice from here in this forum, even though a lot of the exercise advice just didn't work for me at all 😂
Adapt to the change bro. Find your way to dance with your reality, which now, like the rest of us here, includes cancer, and its treatments.
All the best to you 👍. And if it isn't obvious, know that your posting here gave me the courage and opportunity to write what I've written as a way of encouraging myself as well as you. At least I hope I have been encouraging to you. You have done me a favor by showing up and saying your piece. Thank you. With a little bit of luck and grace, maybe we have managed to encourage each other. 😉
Hey, thanks for your feed back, some good advice there. I'm dealing with this but man it is hard. Start IMRT Radiation in acouple weeks which is probably going to make being fatiqued worst.
78 and still verticle
Why so long before starting imrt….or am I reading this incorrectly?
No, your not reading it incorrectly. I started fighting this crap back in 2016 if I remember right. Done tons and tons and tons of research on radiation treatments of all kinds and many other treatments and became a coward about having any kind of radiation. Believe me, researching is great and knowledgible but when you learn everything that treatments cause, it causes problems making serious decission. There were a few treatments I tried to get like Focal Laser Ablation and a few others that did not use any kind of radiation but none were and still are not covered by insurances. They all had excellent outcomes and very few side effects. Side effects were minimmal. I had prostate mri's, cat scans and pet scans and blood test to keep track of the cancer hoping one day a treatment would come along without side effects but that was a dream that never came into being. So here I am, with the cancer starting to protrude throught the capsule doing what I should have done in the beginning. Doc says it is still curable so I had to bite the bullet and do something I'm terrified doing any kind of radiation knowing all the short term and long term problems that can occur. I could go for proton beam therapy or cyerknife but will not find out if I am a candidate for those until 2 weeks from today. They are all radiation of one kind or another but since the cancer is so close to matastizing I got no choice. Cutting the prostate out is out of the question. Now you know the whole story .... LOL Actually not funny
Sorry you find yourself in this position….if it’s any consolation I had imrt in 2013 and my only side effects are minor urinary incontinence and nighttime frequency……on 3 month eligard injections with prednisone and abiraterone without side effects beyond some brain fog and weight gain….on balance a fair trade off…….i would possibly be dead at this time otherwise.
This is more directed at others at an earlier decision point than at you... I've seen many others express that they passed on surgery or radiation for fear in general of the idea of having something cut out of you or being zapped by radiation (apart from the actual potential side effects) which I found odd as before I had surgery, like you, I did TONS of research on both. The side effect profiles looked quite good. Now if I was 75 instead of 55 that could factor into the decision though as it quite possibly could be managed as a chronic disease for the remainder of my life without either of those two definitive treatments where the side effects are going to be less tolerable at an older age. My Dad went the SBRT route 3 years before I went the surgery route. They implanted markers in his prostate and a SpaceOAR spacer between his rectum and prostate. He had no significant side effects. SBRT is great since it only takes 5 sessions. You can now get a Proctox genetic test to make sure you are not in the 15% of people that are predisposed to higher grade side effects of high-dose radiation therapy of SBRT.
There really is no right or wrong decision that can be applied across the board to everyone. But if anyone newly diagnosed asked for my advice, I'd say the best thing I can tell you is in general, base decisions on lots of good data and lean towards the more aggressive option while trying to take the emotion of fear of treatment in general out of your decision process.
Also, the data on focal therapies like laser and cryo is relatively weak as far as curative potential compared to surgery and radiotherapy. But it is understandable that they are attractive to many patients due to their relatively better side effect profile. Unless there is just a confined small amount of Gleason 6 cancer, those focal therapies are otherwise like "bringing a knife to a gun fight" in my opinion.
75 & still verticle & this side of the grass, good way of putting it man.
My experience with Lupron was so bad I never went back to it after I went to sleep at the wheel & ran off the road but worse was going to sleep mid sentance, that got the wife going. So I took a long brake from ADT & PSA climbed to 19 & these days Firmagon seems the best or has the least SE. That was back in 2011. Using Estradiol gel to keep PSA down now, no SE, only man boobs.
I am so pleaed you found a solution to your debilitating side effects from Lupron..I have had the same problem. It's wicked stuff. Would you be kind enough to share how much estradiol gel you use maybe a measurement as l am seeking that route also.Thank you so much.
The box comes with a measuring paddle with 1.25 & 2.5g & it recomends 2.5 once day.
I can't give you an anecdotal report but my brain is a sponge for knowledge on all these PCa related. I'm going to echo what a few already commented. I've read SO many similar reports and the one thing that seems to be most mentioned as being effective is EXERCISE.
The other is to look into Estradiol patch/gel. You can do a low dose patch I think 0.05-0.1mg with ADT drugs to mitigate side effects although not sure how much it helps with fatigue versus hot flashes. Higher dose as ARIES29 mentions could be a replacement ADT method and you are trading less severe side effect profile for growing man boobs.
The exercise will help with sleep but a lot of people at advanced stage take high-dose Melatonin (20-40mg). It has some evidence of anti-cancer properties and may help you sleep to boot! I'd stay away from Ambien as that's only good for periodic use as you will build a tolerance.
My Dr. gave me Adderall to combat fatigue and keep me motivated and it worked quite well. I found while the adderall was at its peak I needed to move and take advantage of that burst of energy. I then moved onto Modafinil which is used for narcolepsy and shift workers. It is cleaner than Adderall a bit less edgy and still gets the job done of keeping me moving all day.
walk, walk, walk and lift weights at home, just don’t stop moving… pot smoking, gummies, and microdosing mushrooms. I golf, but use a cart for my clubs and walk whenever I can. All the solutions are counter intuitive.
Personally 1st injection is all about feeling and noticing the effects.....2nd injection you'll have more idea what to expect and won't feel as hard hitting and out of the blue.
3rd injection you'll be armed and if you take good solid advice from here you'll do well.
My advice
Exercise/walk.....good for sleep the head n heart.
Weighted exercise....good for sleep, the head, heart and bones.
Talking, sharing, not keeping it all in.
Eat good foods, try avoid high calorie processed food.
Find short term goals.
If we can do this we will be as ok as we can let ourselves be......
And I do not do these things all the time, when I don't, I feel it..............................................and it don't feel nice!
Stay facing forward, watch comedy, smile enjoy what's on offer when it's on offer.
Ps, tell me the same when life n meds gets on top of me????
Your troubles are typical of all of us who are living with PCa and ADT. I'm 8 1/2 years into it and have tried many different ways of coping with the side effects. I did not find that the gym helped me and I hated it but I strongly agree that you have to do some form of exercise. When I was into a 22 month course of leuprolide plus enzalutamide I let myself waste away. I felt at the time that I just couldn't go out and exercise. I just lay around all day, reading and watching online videos. But I paid a high price for that laying around. The less you do the less you are able to do. Vicious circle. Whatever exercise works for you is best. Try different programs but make yourself do something. My solution lately has been walking and a little weigh lifting at home. I still have to make myself do it but it really does help with well being and somewhat with sleep. I've accepted the fact that I'm going to lie awake at night a lot. I know that as we age we need less sleep anyway. But I hate it and I hate the fatigue I still have. But I intend to keep going and finish well. I hope you will too.
I've been on lupron for three years, I go to the gym 3-4 days a week. A few hot flashes but no fatigue. Exercise is a given for this. Good luck and I hope you feel better.
I found trelstar better with side effects than lupron, Aderall for energy and focus and weighted gym workout 1 hr every day or every other day forever 9 years so far. Mets in bones. All the best.
Exercise on ADT may be a ‘given’, but relatively few do the kind they need most-weight bearing. It has nothing to do with gyms per se. Calisthenics do the same thing. Resistance bands. Weights at home.
When guys say they can’t lift because they’re not a ‘gym guy’ and refer to how much it bores them I understand. But ADT wastes muscles swiftly and continuously, and is the driver of the fatigue those drugs are known for.
It’s simply non negotiable if you really want to thrive on ADT.
If going to a gym to lift 5 days a week for an hour a day to lift makes me a ‘gym guy’, then what does practicing music for 5 hours every day make me? No one enjoys it, but the results are profound. It kills the fatigue, and minimizes or even eliminates the muscle loss on ADT. Even small amounts of it are vastly better than nothing.
Walking, running, biking, golfing, pickleball, cycling etc are all great exercise, but if you don’t do resistance training of some kind regularly on ADT you’re digging a hole that is very difficult to climb out of later. Certain types of manual labor, farming etc the few exceptions.
We need it because we are already old and losing muscle at an accelerating rate naturally, even without ADT.
Again, it takes surprisingly little of it to make a big difference.
Wife of a prostate cancer guy here—just had a knee replacement five weeks ago so no gym or weights in that period (just stationery bike for knee and walking) and I am shocked at the muscle loss in such a short time. At our age we absolutely must keep doing weights regularly. Easy to get a few hand weights for home use plus some resistance bands if you don’t want to go out of the house. Can use your body for planks, lunges, etc. Use it or lose it!
For those (like me) that don't like to work out just to work out, pick up the book "Body By Science" (think it's by Dr. Doug McGuff) it explains the "Super Slow" method of resistance training. A trainer who was a client of mine introduced me to it. I'd do 6 machines for about 75 seconds each in fairly quick succession using this method. Took no more than 20 minutes but it KICKS YOUR ASS and is both resistance and cardio workout at the same time. But I'd rather spend 20 minutes twice a week than an hour in a gym 3 or 4 times a week. The results were fantastic. At age 55 I can only tolerate a full body (including legs) workout once a week now mixed with upper body only and bike rides or skiing (things I LIKE to do) as the muscles (especially your larger ones) need more time when you are older to recover. It's also low-impact so good for people with joint issues as you minimize the torque on your joints by changing movements very slowly. The best way to describe it is like if a Sloth were lifting weights. LOL. It's not about repetitions but Time Under Tension. It's all about efficiency if you don't like to work out just for the sake of working out and this method is the best bang for the least amount of time commitment.
There are many ways to lift, no one way is best, but also no one way is the most time efficient.
Intensity and varying your approach are the 2 metrics that matter most. Your body will get used to anything so progressive resistance is necessary if one wants to get stronger.
Effort matters most of all; In gyms, most people of all ages tend to do the same workout: 10 reps of a moderately challenging weight, sit and stare at the phone for a few minutes, repeat, move to another lift, repeat. Better than nothing I suppose.
Concentrating on the eccentric phase to the extreme is great, but again no greater than several other methods if done with equal focus and effort.
The drive to get more result for less work is innate, but it is mostly folly. If you believe a certain workout is better, then for you it will be.
I agree the body will adapt so best to not do the same thing all the time. There's a lot of "Bro Science" out there advocating certain types of workouts and/or diets/supplements. The thing I like about this approach (and the book that explains it) is it's fully based in solid science from a doctor/scientist, not a trainer.
Your cluster of symptoms is pervasive and coincident with pharmaceutical attempts to shotgun this debilitating disease. Have been on Lupron and X-Tandi for three years, X-Geva for two. Injest 500-600 mg Ca daily. My oncologist reports that segueing to Xytiga or Nubeqa hasn’t been productive enough to warrant switching meds.
My regimen includes walking, going up and down our stairs and keeping my mind highly alert with personal projects that interest me. I agree with the sentiments expressed of the boring nature of gym exercise. I’ve become more of a chef and often collaborate w my wife on making meals when my energy level allows for it. We make a lot of salads with a bed of fresh greens, pumpkin seeds, veggies and extra virgin olive oil. She often has to do the chopping while I do the seasonings.
It’s the game we play to stay as personally involved and engaged as can be and avoid being a couch potato. Last October, we took the leap for a rigorous two week tour of Egypt—it was now or never—and while I had to beg off certain activities due to fatigue, the overall physicality of it coupled with the mental stimulation of coming face to face with ancient history and immersion into a phenomenal experience larger than self proved therapeutic and inspirational. What works for you?
In the interim, whenever I can, I go through our belongings and seek out places to hand out for a lot of them while I can still be mentally alert to do so. I’d rather light a candle than curse the proverbial darkness. I don’t have a burden to cling to perceived grievances, which would further deplete my energy. Make hay while the sun shines.
I literally feel you. I am not on your protocol, but other ADT meds. I was taking Oxy and Tramadol 2-3x/ daily. Started Gaia Turmeric Supreme for Joints. Ensure you don't get the one with wild lettuce. I take 1 pill twice a day. No narcs for 45 days. Good luck
I'm in my 20th month of Orgovyx and Erleada out 24 months (at least until my PSA will likely start rising...).
I read about the positive effects of exercise prior to starting ADT and faithfully exercised with hand weights and tai chi daily for a couple of months prior to starting and about 5 months after starting ADT.
During my 2 months of radiation I dropped 20+ lbs due to bowel complications and lack of nutrition dealing with that. I basically only ate a bit soup in the evening after my treatment. My fatigue grew to be much worse and my exercise dropped off to at most a 1 mile walk every day.
Here I am about 14 months post radiation and have yet to start back with tai chi or the hand weights. My joints ache upon rising from laying or sitting and I force myself to walk a lot which helps the joint pain to a great extent. I still intend to return to my tai chi and hand weights when these drugs are leaving my system in a few months.
Recently I have been going fishing as much as possible. I'm lucky to have a couple of urban ponds nearby (10-15 minute drive) and the fishing provides some impetus to walk a lot and much of it on variable terrain. I carry a small lightweight camping stool to sit on when using my old fingers and bad eyes to tie knots in 2 to 4 lb line on tiny jigs with ultralight spinning gear or 4x or 5x tippet with #16 to #12 flies, but stand or walk around when fishing and change my location on the pond periodically. I use either a very small gear bag for fly fishing or another small one for minimalist spinning stuff so I'm pretty mobile.
I use barbless hooks and don't really care if I catch much and release what I do catch, but find that my mood is greatly enhanced by the water, the wind, the birds, and just the commune with nature. These ponds attract geese, ducks, herons, red-winged blackbirds, the occasional eagle and others. I see fish and turtles, the occasional water snake, and the sort of insects that hatch and lift from the water surface. There is as much walking as I can handle over a few hours and a reason to get out and do "something". I tell my wife I'll be back in a couple of hours, but it is usually more like 4 hours. I take a thermos of coffee or cold water and a snack and keep a liquid laundry detergent bottle with the spout removed as a discrete disposable urinal in the truck.
I meditate some and think over some of the podcasts that I listen to during much of the sleepless part of my nights. (Rupert Sheldrake, Iain McGilchrist, CAC, and many others...). I also listen to audiobook novels at night or in the evening for escapism.
I took my granddaughter "fishing" a few days ago and it's a bit different spending the entire time untangling, tying, or baiting her hook or trying to keep her from chasing the birds, falling in the water, or getting out of my sight, but the exercise part was pretty much the same, just without the serenity I'm accustomed to. After 4 hours of "fishing" she was asleep in her carseat within about 5 minutes of leaving the pond. After delivering her home and a couple of glasses of cabernet sauvignon, I was pretty relaxed myself after that "fishing" trip.
Now, that's the kind of "fishing" I like
If you are referring to the granddaughter I did sort of leave out the trips to the bathroom, picking up after her spilled drinks and snacks and twice the effort in "policing the area" after her many mishaps. She was nice and clean when I picked her up. When I dropped her off her mom said "so you've been eating chocolate, did pawpaw make you wash your hands" (no), and "What is that all over your jeans?" (green powerbait) and "we can wash your new boots..." etc. I did make her wear sunglasses and a hat for hook safety and we had no booboos or tears.
Brings back memories. Sounds like you did an A+ job of pawpawing.
When my grandson was young, wherever I took him he had "an emergency poo". We would barely get set up and he would say, "Poppy, I need to go poo". Led to some interesting solutions that came in handy when I became incontinent before my diagnosis
enzalutemide snd lupron did exactly this for me. Avolition diffuse arthrslgias etc despite all the exercise i could tolerate etc. three months post treatment now and symptoms persist although milder. “Endure”
Yes but not as severe as you. One suggestion is Provigil, a medication that my oncologist prescribed. It helps with fatigue and concentration. As a longtime depressed person, and having just (hopefully) emerged from that, IMHO it's best to be stubborn. Don't expect every day to be the same; take the bad with the good. When you finally get to the other side, be grateful.
THC and exercise are both YMMV. If you're in TX I can advise you on getting legal THC supplements if you DM me. If you're THC naive, start with a low dose; the immediate effect of THC is to increase your heart rate and blood pressure so you don't want to overdo it until you get accustomed to it.
I think you may know what I'm going to say...ESTROGEN ESTROGEN ESTROGEN!
You can add low-dose estrogen to treat hot flashes, or high-dose estrogen to treat fatigue, hot flashes, osteoporosis, lipid problems, sleep quality, mood, and more via patches (most common) or gels/cream/paste. It's readily available and CHEAP.
The downsides are enlarged breasts, muscle loss/weakness (due to having zero testosterone), and increased risk of breast cancer in men, especially if you have BRCA 1/2 gene mutations. You should get your genes tested FOR FREE at promiseforcancer.org. It's a quick saliva test.
If you send me a private chat message and a note, I will send you literature about the safety and efficacy of transdermal estrogen. Send me your questions, and I will answer them.
Bob
Estrogen pros vs cons
As I read your comments above two things impacted me. First my heart goes out to all of you with those terrible side effects. Second, I really appreciate how lucky I am.
I will be 79 soon and maybe I can offer a couple of suggestions to make the the gym more tolerable if not enjoyable. First, go to the gym at the same time each day that way you will make acquaintances. You may need to ask when do most of the older guys come and adjust your schedule to that time.
This next one may sound really dumb but most newbie’s try to do too much. For a week or two limited yourself to no more than 20 minutes with extremely low weights or dumbells REPEAT VERY LOW AMOUNTS OF WEIGHT. If you are new limit your yourself to dumbbells and use no more then 20 pounds.
You and tens of thousands of other men with prostate cancer being treated with ADT. Exercise helps, especially for muscle mass and weight control, and is always good, but a lot of its benefits are largely mental. Going faster when you are low on gas doesn't increase the miles you can get out of what you have. ADT is hard on your body no matter what you do to try and alleviate it. 🦊
So woppaginny, Regarding da shit we endure..........We're like twins....The way I beat da shit is to laugh and to try to make people laugh. Wop = without pass port.... Ginny ginny ginny = Italian sub machine gun......I'm from the old normal where we made fun of each other, laughed and still hung out......Anyway hang in there but I'll leave you with just this one "What's the definition of I T foreplay?" "Rosa I'm home".......
Good Luck, Good Health and Good Humor.
j-o-h-n
Oh yes...exactly those symptoms. I began with Lupron and was wired for a few days. Then the hot flashes and tiredness started, along with lethargy and even stair-climbing challenges. You just have to take it one day at a time and manage what comes each day's symptoms. Radiation also has its challenges, but they are also very manageable. I can help walk you through this.
My wife and I hot flash together...which is entertaining, to say the least. We call them power surges. Humor really helps.
yes it’s horrible stuff soon you’ll get hot flashes and woman’s breasts. irritable you are turning into a woman. I took the stuff and now my onc wants me to start again. I’m working with Mass general to find a suitable substitution I want to avoid it any way possible
That’s exactly what I did, mass alternatives as I was not going to turn into a woman if all possible, made me just cringe at the thought…
So what did you do? We should keep in touch we have a lot in common
Marshsmi@msn.com
What did you do?
Yes they are horrible. I’m only 59 and just a cpl years in this dreaded disease and really feel for for my colleagues that have been dealing w this a lot longer. I started lupron but switched to orgavix after 3 months as I wanted my testosterone to return as quickly as possible after getting off these drugs. Also added zytiga n prednisone per MO’s rec and have to say orgavix was much more tolerable and the prednisone gave me a lot more energy so I was able to do push ups (10) and still surf for 20-30 minutes whereas I used to go for two hours n not blink an eye but I’ll take it. Followed up w the 32 sessions of radiation n then decided to research real hard on other options. After months of research finally came across this article from pub med stating that repurposing ivermectin as a potential pca drug shows quite a bit of promise in early trials. So I wasn’t about to wait the 10 years for clinical trials to b completed as I might b dead by then. learned ivermectin has been used millions of times safely and was willing to give it a shot. So I weened off the adt after 7 months n took the ivermectin the last month of adt. My psa dropped to its lowest level of .11, went to 1.95 within a month post adt. Subsequently has dropped for a year straight n now sits at .75. Just had psma scan with a cpl suspicious areas showing up on the ribs n spine, met w radiation oncologist n he says they’re not definitive n so minute that they’re not worth treating at this time. He also said just keep doing what your doing w the ivermectin, we’ll assess quarterly n hope the psa continues to drop. So hopefully this protocol continues to work and giving my age I feel I’m way to active n have a desire to stay that way. I’m willing to give this a shot, thus far am having great results. Something to ponder n most importantly read as much as you can on this disease as my ro said there are so many ways to treat it. Good luck in whichever route you choose, God bless…😁😇😇
Thanks for this info. I’m 4 months into adt and wanting to do the iver along with adt and also fenben. I haven’t been able to find any contradictions, mostly stay away from ssri, so I’m going to give it a try.
There are some contraindications on the fenben with some people. If your going to do the ADT then the ivermectin will probably b enough as my psa dropped like crazy w the two. Also studies show the ivermectin keeps the cancer cells from becoming castrate resistant, therefore theoretically should allow ADT to work forever…
Thanks for the suggestion I really can’t take Lupron again!
Hey Guys! great comments all around (and london 441 maybe I will start going to the gym and do the light weights (since I am a lightweight) -- maybe even throw in a few grunts and groans to liven it up and get some folks chuckling! But I don't think I'll try those deep squat!........In all honesty remember to laugh at yourself and find a bit of humor if you can.
On the radiation journey. I did the IMRT route of brachy, and honestly, the HARDEST part was the timing of home much fluid I had to have in my bladder prior to the treatments so the could model the targeted SV and Prostate radiation to avoid my bladder. It takes a bit of practice to find the sweet spot of not enough, or too much ---I had to do the short-step-hold-your crotch a few times when my bladder was shouting at me when I get to the Rad place.... had to drain and then wait to fill before they will start to get you zapped up (I live about 45+ minutes from the Radiation place...prayed in my own way that there was not stopped traffic jam)
A reference point -- I did have some dang penis pain on urination early after the brachytherapy and then a few times from the IMRT - only a few times. BUT there is a over the counter medication called AZO Urinary relief. it is tablet and it worked like a charm
the downside -- it turns your pee orange.
As an ex hippie, that was cool in itself. But that is the old days, and just not on the list in our household now. So now it is adult grape juice for me,!
So the THC folks in the crowd -- I'm jealous 
. enjoy yourselves. smile listen to great music and like Lewellen said - sing baby! just got down with a little Steely Dan, Some Ricky Skaggs and Bruce Hornsby, and Aretha, Baby!
ph and and I should have tried AZO pee party with a black light bulb in the bathroom......
Party On Troopers!
Great post, why can’t you do the thc, it has great anti cancer properties
It's (THC) a choice/option for sure; but my sweetheart is against it personally -and I respect her feelings and it is no skin off my nose (so to speak) to just forgo and not blink an eye.
in fact I hope that folks that are new to THC and even CBD are finding relief for any pain or nutso symptoms; for those that use and enjoy-- have at it! Be safe.
Cheers and Hope Easer and Spring to all
DT
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