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Experiences with
Enzyme Replacement Therapy
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PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
6 months ago
Hip replacement
Hello I think I have to have a hip replacement. I find it hard with polymyalgia to move my legs without stiffness even with the steroids. So I'm wondering if anyone has had a new hip whilst suffering and how it affects recovery with exercises? Any advice welcome. Thanks
Hello I think I have to have a hip replacement. I find it hard with polymyalgia to move my legs without stiffness even with the steroids. So I'm wondering if anyone has had a new hip whilst suffering and how it affects recovery with exercises? Any advice welcome. Thanks
Hidden
in
PMRGCAuk
1 year ago
Cognition issues
Any suggestions for help regarding memory issues etc as a result of ADT ???
Any suggestions for help regarding memory issues etc as a result of ADT ???
JolleySprings
in
Advanced Prostate Cancer
6 months ago
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Questions
I saw my PSA suddenly rise to 3.67 in January 2023. My PMD was not overly concerned as it was under 4. His plan was to repeat it in 6 months. I will also not I was on Tamsulosin and Finasteride for some time at that point for urinary frequency. That started several years before (at that time I was
I saw my PSA suddenly rise to 3.67 in January 2023. My PMD was not overly concerned as it was under 4. His plan was to repeat it in 6 months. I will also not I was on Tamsulosin and Finasteride for some time at that point for urinary frequency. That started several years before (at that time I was
Cleantop
in
Advanced Prostate Cancer
6 months ago
Low T3
Hello Everybody I am 39 years old and I was diagnosed with Graves in feb 2022. I was put on ADT . I’m currently on 5mg Carbimazole daily and I take selenium 100 daily. I also take Vitamin b complex. Until have been on top of my blood regularly but only t4 and tsh was being tested. My Endo has only
Hello Everybody I am 39 years old and I was diagnosed with Graves in feb 2022. I was put on ADT . I’m currently on 5mg Carbimazole daily and I take selenium 100 daily. I also take Vitamin b complex. Until have been on top of my blood regularly but only t4 and tsh was being tested. My Endo has only
KD786
in
Thyroid UK
6 months ago
IMRT WITHOUT THE JELL
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
I'm scheduled for IMRT Radistion without the jell. Doc says the jell may push cancer microscopic cells away from the prostate. He said the cancer is about to protrude through the capsule and microsopic cancer cells could be out of the capsule and did not want to take a chance of putting the jell in and
woppaginny
in
Advanced Prostate Cancer
3 months ago
New ET diagnosis
Hello…..Was given my diagnosis a week ago today ..still getting my head around it. No obvious symptoms besides now I attribute it most likely to ET… fatigue. My GP was monitoring my platelets getting tad higher each blood test over last couple of years.. he had put me on low dose aspirin but recently
Hello…..Was given my diagnosis a week ago today ..still getting my head around it. No obvious symptoms besides now I attribute it most likely to ET… fatigue. My GP was monitoring my platelets getting tad higher each blood test over last couple of years.. he had put me on low dose aspirin but recently
Stargaye
in
MPN Voice
1 year ago
Invitro study shows Delta Tocotrienol overcomes Docetaxel resistence in PCa
Necroptosis Induced by Delta-Tocotrienol Overcomes Docetaxel Chemoresistance in Prostate Cancer CellsMarina Montagnani Marelli, Giangiacomo Beretta, Roberta Manuela Moretti International Journal of Molecular Sciences 24 (5), 4923, 2023 Prostate cancer (PCa) represents the fifth cause of cancer death
Necroptosis Induced by Delta-Tocotrienol Overcomes Docetaxel Chemoresistance in Prostate Cancer CellsMarina Montagnani Marelli, Giangiacomo Beretta, Roberta Manuela Moretti International Journal of Molecular Sciences 24 (5), 4923, 2023 Prostate cancer (PCa) represents the fifth cause of cancer death
Graham49
in
Fight Prostate Cancer
10 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
6 months ago
Long term ADT bone loss mitigation tips?
My post RP BCR was diagnosed 8 months ago when they said, "you will be on ADT the rest of your life". I am on Lupron and abiraterone 4 months now. I am taking 1000mg of calcium per day and 2000IU of D3 per day. If I am lucky enough to last years, what else can I do to prevent the loss of bone? Thanks
My post RP BCR was diagnosed 8 months ago when they said, "you will be on ADT the rest of your life". I am on Lupron and abiraterone 4 months now. I am taking 1000mg of calcium per day and 2000IU of D3 per day. If I am lucky enough to last years, what else can I do to prevent the loss of bone? Thanks
jackwfrench
in
Prostate Cancer Network
6 months ago
So tired
Three weeks post knee replacement. PT states they think I am coming along well. Let me tell you... the last several days have been horrible. My stepdad that resides in an assisted living care facility took a sudden turn as to which I spent 3 days .. minus at night because I needed to be in bed for
Three weeks post knee replacement. PT states they think I am coming along well. Let me tell you... the last several days have been horrible. My stepdad that resides in an assisted living care facility took a sudden turn as to which I spent 3 days .. minus at night because I needed to be in bed for
Solily
in
Lung Conditions Community Forum
1 year ago
ADT SE’s
I had a 6 month Lupron shot in April last year. I experienced all the typical SE the worst being the hot flashes at night. I am following the Ssport protocol for a biological reoccurrence. Basically a 6 month adt with 39 radiation treatments last year. Current labs show undetectable PSA with a slow
I had a 6 month Lupron shot in April last year. I experienced all the typical SE the worst being the hot flashes at night. I am following the Ssport protocol for a biological reoccurrence. Basically a 6 month adt with 39 radiation treatments last year. Current labs show undetectable PSA with a slow
plato123
in
Advanced Prostate Cancer
6 months ago
doc report
My report came back metastatic breast to bone. I will have abot 2 weeks of radiation in the arm with hardware. I will take hormone therapy Letrozole and monthly injection Xgeva-no IV and no chemo. Watch thyroid nodules yearly. Doc V. is very aware of kidney function. Only colonoscopy tomorrow. Thanks
My report came back metastatic breast to bone. I will have abot 2 weeks of radiation in the arm with hardware. I will take hormone therapy Letrozole and monthly injection Xgeva-no IV and no chemo. Watch thyroid nodules yearly. Doc V. is very aware of kidney function. Only colonoscopy tomorrow. Thanks
nonna70
in
Kidney Disease
6 months ago
prostap, HRT and lap
Hey everyone. I had my lap done privately last year, gyno advised he couldn’t see anything. I took the images from surgery to one of the specialists on the endo website and they have advised they can see what they think is endo on my pelvic wall and I am currently on NHS waiting for my next laparoscopy
Hey everyone. I had my lap done privately last year, gyno advised he couldn’t see anything. I took the images from surgery to one of the specialists on the endo website and they have advised they can see what they think is endo on my pelvic wall and I am currently on NHS waiting for my next laparoscopy
Kay92jay
in
Endometriosis UK
1 year ago
One month of Orgovyx completed
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As of today I have had virtually no side effects. I purposely lost 8 pounds prior to going on it, and today the scale says I am down another pound. Just back
Just a quick update for those Brothers on, or considering ADT with, Orgovyx. Today I started the second month of my 6 month sentence. As of today I have had virtually no side effects. I purposely lost 8 pounds prior to going on it, and today the scale says I am down another pound. Just back
ToolBeltZia
in
Prostate Cancer Network
6 months ago
PSMA PET Scan????
I'm 4-3/4 years on ADT, MO has ordered NO Scans for 2 years even though I've complained of returning bone pain , groin pain, pain in ribs and spine, as well as thigh and pelvic pain. Also pre treatment cough has returned, (was diagnosed with lung mets as well as bone and lymph node).No scans have been
I'm 4-3/4 years on ADT, MO has ordered NO Scans for 2 years even though I've complained of returning bone pain , groin pain, pain in ribs and spine, as well as thigh and pelvic pain. Also pre treatment cough has returned, (was diagnosed with lung mets as well as bone and lymph node).No scans have been
TommyCarz2
in
Advanced Prostate Cancer
6 months ago
Anger
Good morning, I had seen here recently some comments on anger and how ADT increases it. This is the first I've read about this, and it makes sense as I look back, I have developed anger issues. Question, is it anger from just being in this messed up situation, ADT for a decade, and just feeling the
Good morning, I had seen here recently some comments on anger and how ADT increases it. This is the first I've read about this, and it makes sense as I look back, I have developed anger issues. Question, is it anger from just being in this messed up situation, ADT for a decade, and just feeling the
Survivor1965
in
Advanced Prostate Cancer
6 months ago
Into the Great Unknown
Well, I just wrapped up two years of ADT (Lupron and Xtandi) on top of 36 rounds of radiation, and a RARP. At 57 when diagnosed (PSA 5.2, Gleason 4+3, one affected pelvic lymph node per PSMA PET scan), our plan was to throw the kitchen sink at my PCa and see if we can’t knock it out. Here I am at 59
Well, I just wrapped up two years of ADT (Lupron and Xtandi) on top of 36 rounds of radiation, and a RARP. At 57 when diagnosed (PSA 5.2, Gleason 4+3, one affected pelvic lymph node per PSMA PET scan), our plan was to throw the kitchen sink at my PCa and see if we can’t knock it out. Here I am at 59
aloha_spaceman
in
Advanced Prostate Cancer
6 months ago
Drugs interactions
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
Blueribbon63
in
Advanced Prostate Cancer
6 months ago
Hip replacement
hi, I’m new here. I am 64. I just had a birthday. I was diagnosed with RA in 2004 . I am on Biologics -ORENCIA for five years During the pandemic I had a bad fall and injured my knee . Couldn’t get much Physiotherapy because of the lockdowns so I did what I could on my own . since then I am having
hi, I’m new here. I am 64. I just had a birthday. I was diagnosed with RA in 2004 . I am on Biologics -ORENCIA for five years During the pandemic I had a bad fall and injured my knee . Couldn’t get much Physiotherapy because of the lockdowns so I did what I could on my own . since then I am having
Kitek
in
NRAS
1 year ago
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