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Diagnosed at 61
I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but didn't know what they were, so never saw the doctor. I've had CT scan, MRI and all normal. Had an ECT and that showed abnormal electrical activity in my brain which shocked me. I started Lamotrigine in July
I had a my first tonic clonic seizure June 23. I'd been having focal seizures for 10 years but didn't know what they were, so never saw the doctor. I've had CT scan, MRI and all normal. Had an ECT and that showed abnormal electrical activity in my brain which shocked me. I started Lamotrigine in July
TheCoulerPurple
in
Epilepsy Action
3 months ago
Red nose after Raynaud’s diagnosis
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Morning all 😀 I was diagnosed with Raynaud’s last winter and have since been experiencing horrible nose and cheek issues. m when I get hot or if I eat hot food my nose and cheeks pulsate and go bright red. It then goes almost back to normal as I cool down!! this has left me with a redder than normal
Tor1972
in
Scleroderma & Raynaud's UK (SRUK)
11 months ago
Femseven conti patches
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Hi,Has anyone been prescribed femseven conti patches? I've been prescribed these by the nurse at the GP surgery as an alternative to evorel as they were making me bleed and my anxiety was really bad. I've read on the packet they could increase fibroids so not sure I should be taking them. I'm on 3
Sheep2
in
Endometriosis UK
11 months ago
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hypothyroidism
I am trying to make a change in thyroid medication.....I was trying change over to a natural thyroid and stop my Armour thyroid 90 mcg I was doing good until last month ....got very tired, heart palpitations , joint pain ect.... been trying to get thyroid tested but could not get doctors to do ( long
I am trying to make a change in thyroid medication.....I was trying change over to a natural thyroid and stop my Armour thyroid 90 mcg I was doing good until last month ....got very tired, heart palpitations , joint pain ect.... been trying to get thyroid tested but could not get doctors to do ( long
Spencer7
in
Thyroid UK
3 months ago
What the Dr says...
Hi all , I hope everyone is doing ok. Just a question regarding what my GP said. I have Fybro, arthritis in my spine , had a hip replacement at 46, need a crutch or walking stick on good days , have plantar fascitis, PTSD and other forms of physical restrictions. Recent diagnosis of severe restrictive
Hi all , I hope everyone is doing ok. Just a question regarding what my GP said. I have Fybro, arthritis in my spine , had a hip replacement at 46, need a crutch or walking stick on good days , have plantar fascitis, PTSD and other forms of physical restrictions. Recent diagnosis of severe restrictive
Mrdiagnosis
in
Fibromyalgia Action UK
9 months ago
DENOSUNAB
I have stage 4 incurable lung cancerI have been on this drug for 20 months in respect of my bone cancer. My scans to date have all been stable and continue to show that the cancer has shrunk or disappeared to date. However, as my targeted therapy treatment (Brigatinib) is working, I am enquiring whether
I have stage 4 incurable lung cancerI have been on this drug for 20 months in respect of my bone cancer. My scans to date have all been stable and continue to show that the cancer has shrunk or disappeared to date. However, as my targeted therapy treatment (Brigatinib) is working, I am enquiring whether
Gymbuddie
in
The Roy Castle Lung Cancer Foundation
7 months ago
Higher pulse than average
I’m quite fit but am feeling as though I’ve run a marathon - heart rate up and air hungry . I have UAT and take Armour Thyroid. I’ve reduced the dose from 1 grain am and pm to 1 am and 1/2 pm but it hasn’t made any difference. This has been happening for about two weeks now. I also take HRT, vitamin
I’m quite fit but am feeling as though I’ve run a marathon - heart rate up and air hungry . I have UAT and take Armour Thyroid. I’ve reduced the dose from 1 grain am and pm to 1 am and 1/2 pm but it hasn’t made any difference. This has been happening for about two weeks now. I also take HRT, vitamin
Karen-Eleanor
in
Thyroid UK
11 months ago
Just an update .
I was due to have my hip replacement on 17th August, got to the hospital saw all the relevant people. A Dr came to put an arrow on my leg and asked me how long had i had the scratch on my hip ? I told him i wan not aware i had one ! He took a photo of it, i am not joking when i say it was not even an
I was due to have my hip replacement on 17th August, got to the hospital saw all the relevant people. A Dr came to put an arrow on my leg and asked me how long had i had the scratch on my hip ? I told him i wan not aware i had one ! He took a photo of it, i am not joking when i say it was not even an
Viv54
in
PMRGCAuk
9 months ago
Trying to stay positive when I dont "get" it
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
This pelvic floor tightness came out of nowhere several weeks ago. I never ever knew this existed. Now Im in on baclofen/valium suppositories, HRT therapy 3x a week. I go for hrs where I have no pain and then the spasms and throbbing begins. Is there anyone else going thru a similar situation? Im scared
QueenVic1952
in
Pelvic Pain Support Network
11 months ago
Total Hip Replacement
Hi All, I have had RA since 2013 and have been well-controlled for the last 7 years with Arava (Leflunomide) and Sulfasalazine. I am having a THR in a month's time and I am concerned about stopping these drugs for 2 weeks either side of the op. in case I have a flare while recovering. I am also extremely
Hi All, I have had RA since 2013 and have been well-controlled for the last 7 years with Arava (Leflunomide) and Sulfasalazine. I am having a THR in a month's time and I am concerned about stopping these drugs for 2 weeks either side of the op. in case I have a flare while recovering. I am also extremely
Pat64
in
NRAS
9 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
7 months ago
CBD - my Mum's journey so far
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Lalamccoy
in
PSP Association
7 months ago
Made a desicion, went private
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
TwigwithaWig
in
Thyroid UK
3 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
7 months ago
W&W, Sepsis, Pneumonia,Cellulitis, FEVERS ! - ???
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Had my first visit to the Hematologist . He was patient, he was kind , he was very informative and most important to me , he asked me what my questions and concerns were. Unlike a lot of doctors I worked with as a nurse , ( who MANY have seemed to have lost their Sensitivity chip ) , he was full
Sillysand
in
CLL Support
11 months ago
RANDOMIZED CONTROLLED TRIAL EVALUATING THE CARDIO-METABOLIC EFFECTS OF LEVOTHYROXINE AND LIOTHYRONINE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
helvella
Thyroid UK
in
Thyroid UK
7 months ago
Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
7 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
7 months ago
Cirrhosis diagnosis
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
I have recently been diagnosed with cirrhosis following abnormal blood test and fibroscan. I am a non drinker, with a BMI 22.3. The specialist says I am one of the 5-7% of people with a fatty liver but not over weight and probably hereditary. This has come as a shock. I only had a blood test because
0range5520
in
British Liver Trust
11 months ago
Levo and Lio dosage advice please🙏
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Hi wonderful forum, I'm in a pickle, always in a pickle😛 please could I have some advice on dosages and next steps, please 😁. 23/1/23 first set of results given to private endocrinologist... FT3. 3.8. 3.1-6.8 FT4. 20.5. 12-22 TSH. 0.54. 0.27-4.2 Was on 175mcg Mercury
Ankles
in
Thyroid UK
11 months ago
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