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Enzyme Replacement Therapy
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Ongoing battle to stay on T3
I have been on T3 only for over 15 years. This was prescribed by a GP and Endo in Essex. 12 years ago I moved to Sheffield then Derbyshire.I had been with my new surgery for 2 years when out of the blue they started getting cagey about giving me T3, At first it was lots of questions and scaremongering
I have been on T3 only for over 15 years. This was prescribed by a GP and Endo in Essex. 12 years ago I moved to Sheffield then Derbyshire.I had been with my new surgery for 2 years when out of the blue they started getting cagey about giving me T3, At first it was lots of questions and scaremongering
Freewoman1997
in
Thyroid UK
4 months ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
7 months ago
Zoladex and HRT
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Sunset-lady
in
Endometriosis UK
10 months ago
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coming off oxicodone
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Jukebox55
in
Restless Legs Syndrome
10 months ago
approachable private endo preferably south essex
hi there I am looking for recommendations for private endocrinologist who is understanding and open to trying t3/ combination therapy. I live in south Essex and am disabled so preferably local but willing to consider online or to travel a bit. Bonus if they are also an nhs endo. I have the list from
hi there I am looking for recommendations for private endocrinologist who is understanding and open to trying t3/ combination therapy. I live in south Essex and am disabled so preferably local but willing to consider online or to travel a bit. Bonus if they are also an nhs endo. I have the list from
TheaW
in
Thyroid UK
4 months ago
Light Therapy Trial: Update starting to recruit in March 2024
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Below is text from an email I received from PhotoPharmics a company that is testing a light therapy device for Parkinson's Disease. I posted about this trial over a year ago and it is now recruiting (see link below): Light Therapy Trial: Update starting to r... - Cure Parkinson's (healthunlocked.com
Canddy
in
Cure Parkinson's
4 months ago
PD and orthopedic surgeries
I’m debating having a partial knee replacement (for patella femoral arthritis) AND/OR Morton’s neuroma surgery. I really need both, but am very concerned about not being able to exercise, the way I usually do, for at least a few months. Would it be wise to schedule both surgeries just a couple of
I’m debating having a partial knee replacement (for patella femoral arthritis) AND/OR Morton’s neuroma surgery. I really need both, but am very concerned about not being able to exercise, the way I usually do, for at least a few months. Would it be wise to schedule both surgeries just a couple of
Ob6842
in
Cure Parkinson's
7 months ago
Wild Variations in Body Temperature
Since I started T3/T4 combination therapy last summer I have been tracking my BP, heart rate and body temperature (orally). I am currently on T3 only and my body temperature fluctuates massively. For example yesterday; 0725: 35.5 0816: 35.4 0927: 35.5 1041: 35.3 1508: 35.3 1602: 35.8 1831: 35.9
Since I started T3/T4 combination therapy last summer I have been tracking my BP, heart rate and body temperature (orally). I am currently on T3 only and my body temperature fluctuates massively. For example yesterday; 0725: 35.5 0816: 35.4 0927: 35.5 1041: 35.3 1508: 35.3 1602: 35.8 1831: 35.9
joey82
in
Thyroid UK
4 months ago
Asprin to prevent dvt
I am having knee replacement next week...We must take blood thnners after to prevent dvt and possible PE.. I get it..Blood thinner of choice is now asprin...tolerated and less side effects.. I am supposed to take the regular dose of 325 mgs BID for a month..I know ASA is not as risky as the the other
I am having knee replacement next week...We must take blood thnners after to prevent dvt and possible PE.. I get it..Blood thinner of choice is now asprin...tolerated and less side effects.. I am supposed to take the regular dose of 325 mgs BID for a month..I know ASA is not as risky as the the other
kellyscats1
in
Kidney Disease
7 months ago
Swanbio gene therapy study
Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very interested but information seems hard to come by. It doesn’t sound like it would repair damage but stop or slow the disease. I wonder if it would eliminate
Anyone know how this study is going? I did a google search and there was something posted a few days ago but you had to buy the report. $500. I’m very interested but information seems hard to come by. It doesn’t sound like it would repair damage but stop or slow the disease. I wonder if it would eliminate
Golfdog3
in
AMN EASIER
4 months ago
New Post RT, RP Salvage Therapy Paper
If we end up going down that road here is a recent paper on it. https://www.auajournals.org/doi/10.1097/JU.0000000000003890 (Post RT) Post RP https://www.auajournals.org/doi/10.1097/JU.0000000000003892 https://www.auajournals.org/doi/10.1097/JU.0000000000003891
If we end up going down that road here is a recent paper on it. https://www.auajournals.org/doi/10.1097/JU.0000000000003890 (Post RT) Post RP https://www.auajournals.org/doi/10.1097/JU.0000000000003892 https://www.auajournals.org/doi/10.1097/JU.0000000000003891
ToolBeltZia
in
Prostate Cancer Network
4 months ago
Fragility score on Osteoscan and different meds.
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Nightingales
in
PMRGCAuk
10 months ago
I don’t know what to do!!!
I wish I knew the right answer.. Today I had a follow-up with my orthopedic doctor it didn’t go to good. A little back story about two months ago I started seeing a new ortho doctor because I have been having pain in my right hip. I already had an MRI/ XRay done so I knew what was going on with the
I wish I knew the right answer.. Today I had a follow-up with my orthopedic doctor it didn’t go to good. A little back story about two months ago I started seeing a new ortho doctor because I have been having pain in my right hip. I already had an MRI/ XRay done so I knew what was going on with the
Dolphfan47
in
Anxiety and Depression Support
7 months ago
A Miracle
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Hi Everyone, It's been a while and I pray that everyone is one step closer to healing. I'm back to share good news and hopefully offer a glimpse of hope to others. My husband has recovered from PMR! This community was so helpful, encouraging and supportive that I had to come back and share. Moreover
Popsca
in
PMRGCAuk
4 months ago
Hip replacements with copd
Don't think I've wrote about the pain I've been in this past 12 months ,started the year with hip and surpost to be siatica pain ,couldn't put my foot on floor for two months as to painful ,just getting a bit better from that when I fractured my spine in three places ,iwas diagnosed with severe osteoporosis
Don't think I've wrote about the pain I've been in this past 12 months ,started the year with hip and surpost to be siatica pain ,couldn't put my foot on floor for two months as to painful ,just getting a bit better from that when I fractured my spine in three places ,iwas diagnosed with severe osteoporosis
Alice70
in
Lung Conditions Community Forum
7 months ago
insurance issue
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
hi guys, My mother was diagnosed with her2+ve braa we ya cancer stage 4. doctor recommended the below medications : Paclitaxel + cyclophosphamide + phesgo+ zolodronic acid . I have corporate insurance in new India insurance with mediassist. These people are not approving phesgo which is targeted
Srikalakm
in
Breast Cancer India
4 months ago
Treatment stopped
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
We thought Erlotinib was working for my dad, his tumour had reduced significantly on October scan ( started on drug Aug 23) but Jan scan showed growth, cough back and has been getting steadily worse with weight down to 7 stone ,diarrhoea and debilitating fatigue. Although Oncologist thought a standard
Adaughter
in
The Roy Castle Lung Cancer Foundation
4 months ago
Excellent speech/voice app for PWP.
FIrst a disclaimer - i am not associated in any way with the app i want to recommend, just a fellow 'parkie' looking for an app to help/complement my speech therapy. I was looking for something comparative with my speech therapy ( long vowels, functional terms, reading, improvized speech analysis..
FIrst a disclaimer - i am not associated in any way with the app i want to recommend, just a fellow 'parkie' looking for an app to help/complement my speech therapy. I was looking for something comparative with my speech therapy ( long vowels, functional terms, reading, improvized speech analysis..
inovator
in
Cure Parkinson's
4 months ago
Women are not taken seriously by most doctors when experiencing health problems.
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
DandyButch
in
Thyroid UK
10 months ago
Endoscopy was a bust.............
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
I got to the hospital fairly early for my apt. at 1.30pm and i was the second patient on the list. Dr lee came to see me and he was lovely. He has hinted that i might need a valve replacement as it is thickening quite a lot. I don't remember much about it as the sedation was working and afterwards
sylvi
in
NRAS
7 months ago
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