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no cure
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
Lily1986
in
Endometriosis UK
10 days ago
Removal or not of ovaries
I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes, bowel endo and distortion of the parametrial and cardinal ligaments. And adenomyosis (diffuse and focal). The ovaries are kissing and described as 'right hand side tubo-ovarian endometriotic complex extends
I have stage 4 endo (DIE), frozen pelvis, bilateral tubo-ovarian complex so endo through tubes, bowel endo and distortion of the parametrial and cardinal ligaments. And adenomyosis (diffuse and focal). The ovaries are kissing and described as 'right hand side tubo-ovarian endometriotic complex extends
Scoutybob
in
Endometriosis UK
1 month ago
B12 shots with folic acid
So, I was diagnosed with b12 and folic acid defficiency due to a bowel resection I had. GP has put me on 12 weekly Hydroxocobalamin 1mg IM injections as well as folic acid 5mg 3 month course. He warned me not to take the folic acid till a month after my first b12 jab. I was just wondering with it being
So, I was diagnosed with b12 and folic acid defficiency due to a bowel resection I had. GP has put me on 12 weekly Hydroxocobalamin 1mg IM injections as well as folic acid 5mg 3 month course. He warned me not to take the folic acid till a month after my first b12 jab. I was just wondering with it being
Jimboz
in
Pernicious Anaemia Society
1 month ago
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perineal myxoid pseudotumor of fat
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
snoochy
in
Kidney Disease
1 month ago
Stomach cramps
Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach cramping all day today. Is this normal? Does anyone have any tips? She's still on laxatives and drinking peppermint tea for gas. Would love to hear
Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach cramping all day today. Is this normal? Does anyone have any tips? She's still on laxatives and drinking peppermint tea for gas. Would love to hear
georgiageorgia182
in
My Ovacome
1 month ago
Operation
Well had my bowel resection 8 weeks ago my concerns about general anaesthetic because of ET and never had operation before was unfounded surgeon said I woke up quick was mobile in hours didn't require painkillers ,got out of hospital on day 3 now having preventative chemo starting Thursday my faith
Well had my bowel resection 8 weeks ago my concerns about general anaesthetic because of ET and never had operation before was unfounded surgeon said I woke up quick was mobile in hours didn't require painkillers ,got out of hospital on day 3 now having preventative chemo starting Thursday my faith
ChillyAsh34
in
MPN Voice
2 months ago
Op update
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic
georgiageorgia182
in
My Ovacome
2 months ago
bowel blockage
Had bowel resection 6 years ago . Iliostomy bag and then successful reversal . Had an appendectomy about a year later, because my appendix were stuck to my ileostomy scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy
Had bowel resection 6 years ago . Iliostomy bag and then successful reversal . Had an appendectomy about a year later, because my appendix were stuck to my ileostomy scar internally. I had pain and went to the hospital, but my surgery wasn’t emergency. I was scheduled about two weeks later for the appendectomy
Gardeningbuff
in
Bowel Disease Support
2 months ago
Dealing with endo after children in late thirties
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma when I was 31 before starting IVF. Now I’m finished having children, I’ve gone back on the pill and run it back to back to prevent periods. I’m
EKP31
in
Endometriosis UK
2 months ago
Endo pregnancy c section or vaginal birth ?
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
hi ladies any one with severe endo and adenymosis? Wondering if you went for a vaginal birth or c section . Iv had 2 major surgery one keyhole and the other laparotomy so my abdominal area is full of scaring and also had a bowel resection . I dreading birth naturally as I have lots of medical trauma
Jade2006
in
Pregnancy and Parenting Support
3 months ago
Blood
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
Well after tests on low red cells turned out to be a polyp which was removed and a large tumour in the bowel which was positive I am 3 weeks into recovery from bowel resection just waiting for preventative chemotherapy all is good first post in a while due to surgery etc
ChillyAsh34
in
MPN Voice
3 months ago
Bowel Resection - what to expect?
Hi everyone I've got Stage 4 Endometriosis which affects my ovaries, colon and appendix. I've had a laparoscopy to remove endometriosis from my ovaries for fertility purposes but I've now been advised that I need a further surgery to remove two parts of my colon and my appendix, which have significant
Hi everyone I've got Stage 4 Endometriosis which affects my ovaries, colon and appendix. I've had a laparoscopy to remove endometriosis from my ovaries for fertility purposes but I've now been advised that I need a further surgery to remove two parts of my colon and my appendix, which have significant
MD54999
in
Endometriosis UK
3 months ago
Bowel or endometrioma pain?
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Loveneige
in
Endometriosis UK
3 months ago
Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
3 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
4 months ago
Experience Taking Xeloda
I was diagnosed in 2019 with breast cancer, in 2020 with uterine, and this February with colon. I am NED with breast and uterine, and am now being treated for the colon cancer. I had a successful bowel resection, and am now about to start chemo. I would like to know how you tolerated Xeloda. Any tips
I was diagnosed in 2019 with breast cancer, in 2020 with uterine, and this February with colon. I am NED with breast and uterine, and am now being treated for the colon cancer. I had a successful bowel resection, and am now about to start chemo. I would like to know how you tolerated Xeloda. Any tips
RIGJ1
in
SHARE Uterine Cancer Support
4 months ago
Heavy bleeding after 5 months on prostap
Hi guys I was diagnosed with severe endometriosis/adenomyosis with the uterus completely attached to the bowel 7 months ago, I’ve been struggling with painful heavy periods for around 12 years, I have been referred 3 times to a gynocologist in the nhs & they have lost my refferal every time, so I was
Hi guys I was diagnosed with severe endometriosis/adenomyosis with the uterus completely attached to the bowel 7 months ago, I’ve been struggling with painful heavy periods for around 12 years, I have been referred 3 times to a gynocologist in the nhs & they have lost my refferal every time, so I was
Gizmo8282
in
Endometriosis UK
5 months ago
Bowel preparation before surgery
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Hi everyone! 💛 Just been on pre op assessment and nurse said I don’t need to do bowel preparation at home. I will have hysterectomy with bowel resection and Endo excision. Has anyone had bowel preparation at hospital just before the operation? I am quite concerned what is going on 🤷♀️
Endolemon
in
Endometriosis UK
5 months ago
frustrated and frightened
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
This is not a question, and sorry very long so don’t feel you need to read, just feel I need to connect with those who understand. I was due to have a total hysterectomy, bowel resection and excision of any endo on Monday at a BSGE centre and have been cancelled last minute due to the junior doctors
Poppyg16
in
Endometriosis UK
5 months ago
bowel resection
please has anyone had bowel resection surgery ? My Doctor just told me that I would need a bowel resection.
please has anyone had bowel resection surgery ? My Doctor just told me that I would need a bowel resection.
Spag
in
Endometriosis UK
5 months ago
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