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APS Symptoms
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
As many of you know I have been diagnosed with Sjogrens Syndrome, Lupus, Fibromyalgia in addition to APS. I was on Warfarin from 2015 - 2020 (following a clot on my brain) My target was 4 and below that I was unable to function. Migraines, every muscle hurt, could hardly walk etc. in 2020 my INR became
WendyWoo50
in
Hughes Syndrome APS Forum
11 months ago
dual platelet therapy
does anyone know what drug can be used as an alternative to aspirin ,I am on clopidogrel and aspirin but think he aspirin is upsetting my stomach I am already on lansoprozle to calm it down but think an alternative to aspirin would be the answer .
does anyone know what drug can be used as an alternative to aspirin ,I am on clopidogrel and aspirin but think he aspirin is upsetting my stomach I am already on lansoprozle to calm it down but think an alternative to aspirin would be the answer .
Maxbar
in
British Heart Foundation
11 months ago
Does anyone know
I was listening to morning live on Monday and Dr Ranj Singh was on the programme talking about blood thinners he said with some of them you shouldn't eat Brocoli or drink Cranberry juice. I'm on Asprin and Ticagrelor what are your thoughts im a bit worried should I or should I not be consuming both.
I was listening to morning live on Monday and Dr Ranj Singh was on the programme talking about blood thinners he said with some of them you shouldn't eat Brocoli or drink Cranberry juice. I'm on Asprin and Ticagrelor what are your thoughts im a bit worried should I or should I not be consuming both.
Coopergirl52
in
British Heart Foundation
11 months ago
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MPN specialist Claire Harrison
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Hello everyone I don’t know if anyone can help,I was diagnosed 4years ago with PV Jack 2 & taking hydroxy & Asprin. I’m anaemic & am due a venesection next Monday. The medication I’m on doesn’t seem to be working as my bloods are all over the place. I was referred by my Haematologist in June this
Wilbob
in
MPN Voice
11 months ago
Loss of libido following angioplasty
Hi everyone, I am a male, 45 years old and had a heart attack in July 2023. I had 6 stents inserted into my 3 arteries and ever since taking these medications: Asprin 75mg once a day Atorvastatin 80mg once a day Lansoprazole 30 mg once a day Nebivolol 2.5 mg once a day (I used to be on Biosprolol
Hi everyone, I am a male, 45 years old and had a heart attack in July 2023. I had 6 stents inserted into my 3 arteries and ever since taking these medications: Asprin 75mg once a day Atorvastatin 80mg once a day Lansoprazole 30 mg once a day Nebivolol 2.5 mg once a day (I used to be on Biosprolol
Tarrabing
in
British Heart Foundation
11 months ago
Covid and platelets
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
I’ve been on treatment for triple negative ET for almost three years now., taking Hydroxycarbomide (2 one day snd 3 the next) plus aspirin. Over the last year my platelets have come down to 540. However, since my last test three months ago, I have had Covid and a Covid vaccine. My blood test result
EdwinaJ
in
MPN Voice
11 months ago
Prepping for a frozen cycle
Hello all Could I please ask whether anyone has used the Optibac probiotics for a fresh cycle or a frozen cycle? I hadn’t heard of them until recently. If so which ones did you choose or which did your clinic suggest to use? I’m guessing intimate flora for women which suggest they reach the womb. The
Hello all Could I please ask whether anyone has used the Optibac probiotics for a fresh cycle or a frozen cycle? I hadn’t heard of them until recently. If so which ones did you choose or which did your clinic suggest to use? I’m guessing intimate flora for women which suggest they reach the womb. The
Jules0277
in
Fertility Network UK
11 months ago
Had paroxysmal since 2016
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
I’m a 68 yo male and have had 5 or 6 AF episodes since 2016 and one in the last 2 years. Docs put me on Multaq (anti arrhythmia) and Eliquis 2 years ago and the last episode was this past June was diagnosed as Atrial Flutter. Normal sinus rhythm was restored about 10 minutes after a calcium blocker
RoyMac
in
AF Association
11 months ago
incredibly lucky
I feel so incredibly lucky after reading some of your stories. I had a HA 5 yrs ago, was told that if someone has to have a HA they would want one like yours? It was explained to me that it was on the right side and very low down?? I stayed overnight in hospital and the first time I saw a consultant
I feel so incredibly lucky after reading some of your stories. I had a HA 5 yrs ago, was told that if someone has to have a HA they would want one like yours? It was explained to me that it was on the right side and very low down?? I stayed overnight in hospital and the first time I saw a consultant
Calm2
in
British Heart Foundation
11 months ago
Sciatic Nerve and Prednisone
I am not sure anyone may want to comment on this, but i will ask anyway. I'm posting for my 89 year old sister who has been on 10mg of Prednisone for at least 3 years for back pain. She is suffering now from sciatic pain which is causing her not to be able to sleep because of the pain. Her GP has
I am not sure anyone may want to comment on this, but i will ask anyway. I'm posting for my 89 year old sister who has been on 10mg of Prednisone for at least 3 years for back pain. She is suffering now from sciatic pain which is causing her not to be able to sleep because of the pain. Her GP has
RaisinBran
in
PMRGCAuk
11 months ago
Steroids or Intralipids or both?
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
Hi everyone, I’m about to start my next FET cycle. After repeated implantation failures I had all the tests (EMMA ALICE ERA and NKC) I have natural killer cells so they want to put me on steroids and the Intralipids. I know all this is considered a bit experimental by HFEA and it’s on their red/ grey
FierceGrace85
in
Fertility Network UK
11 months ago
Emergency cardiac admission to hospital. Advice please.
I had severe left sided pain Wednesday evening. Grabbed my hospital bag and took a taxi to emergency. It wasn't a heart attack but i was admitted to cardiology ward because of irregular ecg. On Sunday morning i am having a cardiac catheterization to look for and treat any narrowing of arteries. I
I had severe left sided pain Wednesday evening. Grabbed my hospital bag and took a taxi to emergency. It wasn't a heart attack but i was admitted to cardiology ward because of irregular ecg. On Sunday morning i am having a cardiac catheterization to look for and treat any narrowing of arteries. I
agingfeminist
in
PMRGCAuk
11 months ago
Is this normal?
After my blood tests last week I was asked to go in on Thursday for a transfusion, as haemoglobin only 69. Felt better for a few days after that but started to get breathless again from Tuesday. Had another transfusion today. Nurse said I might need them weekly for a while. Not on any drugs for the MF
After my blood tests last week I was asked to go in on Thursday for a transfusion, as haemoglobin only 69. Felt better for a few days after that but started to get breathless again from Tuesday. Had another transfusion today. Nurse said I might need them weekly for a while. Not on any drugs for the MF
lizzziep
in
MPN Voice
11 months ago
Tummy problems
Hello everyone. I was diagnosed with ET couple of years ago and I take Hydroxy and aspirin. I’ve got a strange tummy ache. Not hurting really more uncomfortable and don’t feel hungry much. If I eat I feel full very soon and push my plate away.. I am not losing weight unfortunately, in fact I’ve put
Hello everyone. I was diagnosed with ET couple of years ago and I take Hydroxy and aspirin. I’ve got a strange tummy ache. Not hurting really more uncomfortable and don’t feel hungry much. If I eat I feel full very soon and push my plate away.. I am not losing weight unfortunately, in fact I’ve put
Cokopops
in
MPN Voice
11 months ago
NSTEMI and BP / Heart Rate
Hoping for some enlightenment here to satisfy my own curiosity. Had an NSTEMI July 2022- and all is good now - no other intervention beyond yr1 meds - now just Bisoprolol, Atorvastin and Disc Aspirin. Moderate lifestyle changes have seen weight fall from 94.6 on discharge to 77.6 this morning - consistent
Hoping for some enlightenment here to satisfy my own curiosity. Had an NSTEMI July 2022- and all is good now - no other intervention beyond yr1 meds - now just Bisoprolol, Atorvastin and Disc Aspirin. Moderate lifestyle changes have seen weight fall from 94.6 on discharge to 77.6 this morning - consistent
doktordru
in
British Heart Foundation
11 months ago
preserved and impaired ventricles
My echo shows LV preserved EF-55% and RV is impaired im in Asprin,Bisoprolol,Ramipril and 80mg Atorvastatin. Not sure what preserved and impaired entails,anyone ?
My echo shows LV preserved EF-55% and RV is impaired im in Asprin,Bisoprolol,Ramipril and 80mg Atorvastatin. Not sure what preserved and impaired entails,anyone ?
Avagra
in
British Heart Foundation
11 months ago
Should I be worried that I had blood today in my stool
Happy Wednesday. I am taking following medicines: Metformin 1000mg twice a day Aspirin 81mg at night Losartan 12.5mg at night Metoprolol extended release 50mg at night Prasugrel 10mg at night LAST NIGHT I switched from Atorvastatin 40mg every night to Rosuvastatin 20mg. I am not sure if this
Happy Wednesday. I am taking following medicines: Metformin 1000mg twice a day Aspirin 81mg at night Losartan 12.5mg at night Metoprolol extended release 50mg at night Prasugrel 10mg at night LAST NIGHT I switched from Atorvastatin 40mg every night to Rosuvastatin 20mg. I am not sure if this
michellefisherm
in
British Heart Foundation
11 months ago
IBS & coated Asprin
hi all, Since changing to the coated Asprin around 3 weeks ago my IBS has flared up. I am having terrible cramps. I was wandering if anybody else has found this with coated Asprin. I have also restarted work in the last 3 weeks, my husband says it could be related to the stress/ anxiety of starting
hi all, Since changing to the coated Asprin around 3 weeks ago my IBS has flared up. I am having terrible cramps. I was wandering if anybody else has found this with coated Asprin. I have also restarted work in the last 3 weeks, my husband says it could be related to the stress/ anxiety of starting
Winimops
in
British Heart Foundation
11 months ago
Watch Out for Vit B12 Deficiency on PPIs & Vit D3
Hi all I had 2 stents in 2020 and as usual was on cocktail of drugs. At present only on 75 mg Apsirin & Ivabradine 5 mg OD along with Omeprozole - PPI 20 mg. Been on PPIs for 3 years as Aspirin doesn't go well with my tummy. Recently started to feel bit nervous, tired, recurrent headaches & unproductive
Hi all I had 2 stents in 2020 and as usual was on cocktail of drugs. At present only on 75 mg Apsirin & Ivabradine 5 mg OD along with Omeprozole - PPI 20 mg. Been on PPIs for 3 years as Aspirin doesn't go well with my tummy. Recently started to feel bit nervous, tired, recurrent headaches & unproductive
Hidden
in
British Heart Foundation
11 months ago
stopping Hydrea for 8 weeks…
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Good evening from Queensland 🌼 Just sharing that I saw Dr Cleary, my haematologist, today. She decided to take me off Hydrea for 8 weeks to see if my symptoms subside and if the Hydrea is causing them. I haven’t been on a high dose of Hydrea. I began in May on 500mg every 2nd day. Then the past 2
Pachena
in
MPN Voice
11 months ago
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