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ERA protocol - what meds to include
Hey ladies, Last month I did an endometrial biopsy in order to see if the uterine cells look as they should, and they do! Which would mean that the endometritis is gone, at least judging by how the endometrium looks like under a microscope. This month we are doing the Endometrio test (Era, Emma, Alice
Hey ladies, Last month I did an endometrial biopsy in order to see if the uterine cells look as they should, and they do! Which would mean that the endometritis is gone, at least judging by how the endometrium looks like under a microscope. This month we are doing the Endometrio test (Era, Emma, Alice
Anita85
in
Fertility Network UK
11 months ago
Weight gain ?
I’m a 59 year old woman who has always had weight issues - I know how to put it on and I know how to lose it! Over the past year I have put on about a stone and just can’t shift it despite being in a calorie deficit most days. Since my diagnosis (PV) my diet has improved, I drink so much water and exercise
I’m a 59 year old woman who has always had weight issues - I know how to put it on and I know how to lose it! Over the past year I have put on about a stone and just can’t shift it despite being in a calorie deficit most days. Since my diagnosis (PV) my diet has improved, I drink so much water and exercise
EssexDolly
in
MPN Voice
11 months ago
Stent progression
Morning, I posted on here 3 months ago since my LAD Stent. Progression as been great. I'm back to running and last month cycled 250 bike packing miles in France solo. Building my heart rate back up to my normal 170 BPM while running. 150 BPM cycling for short periods only. To note I didn't have
Morning, I posted on here 3 months ago since my LAD Stent. Progression as been great. I'm back to running and last month cycled 250 bike packing miles in France solo. Building my heart rate back up to my normal 170 BPM while running. 150 BPM cycling for short periods only. To note I didn't have
Hidden
in
British Heart Foundation
11 months ago
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prasugrel
I have been taking aspirin with Prasugrel for 12 months since my HA and have now been told by my surgery to stop the Prasugrel and continue with Aspirin. I take ramipril and statins etc as normal but not prasugrel.I have read that it can be taken for up to 30months although this can increase the risk
I have been taking aspirin with Prasugrel for 12 months since my HA and have now been told by my surgery to stop the Prasugrel and continue with Aspirin. I take ramipril and statins etc as normal but not prasugrel.I have read that it can be taken for up to 30months although this can increase the risk
Avagra
in
British Heart Foundation
11 months ago
Advice appreciated.
As readers on this Forum may know, I’m 80 and was diagnosed withCALR + ET 18 months ago. I’m on 75mg aspirin daily and 90mcg Peg interferon fortnightly. Currently doing well and cheerful and in the best of health, with a dog that keeps me on the go, and still taking adventurous holidays. (I can
As readers on this Forum may know, I’m 80 and was diagnosed withCALR + ET 18 months ago. I’m on 75mg aspirin daily and 90mcg Peg interferon fortnightly. Currently doing well and cheerful and in the best of health, with a dog that keeps me on the go, and still taking adventurous holidays. (I can
gilded
in
MPN Voice
11 months ago
Lots of bad stuff happening, what to do?
I was diagnosed with ET close to 3 years ago, January. Put on Hydroxyurea, 500mg 3x a week and all seemed good with platelets.I just turned 69 in October, am a woman and had a heart attack in September from a blocked artery. A stent was put in and I am on drugs to help lower blood pressure, Baby aspirin
I was diagnosed with ET close to 3 years ago, January. Put on Hydroxyurea, 500mg 3x a week and all seemed good with platelets.I just turned 69 in October, am a woman and had a heart attack in September from a blocked artery. A stent was put in and I am on drugs to help lower blood pressure, Baby aspirin
Androg
in
MPN Voice
11 months ago
Collagen and biotin
I'm experiencing hair thinning /lose, assumably menopause as all blood tests fine (GPs advice was to take hair, skin, nails vitamins) and was thinking of taking either collagen (this seems a complete mindfield as there's so many different ones) or biotin. Are these OK to take whilst on meds following
I'm experiencing hair thinning /lose, assumably menopause as all blood tests fine (GPs advice was to take hair, skin, nails vitamins) and was thinking of taking either collagen (this seems a complete mindfield as there's so many different ones) or biotin. Are these OK to take whilst on meds following
Duvetdays15
in
British Heart Foundation
11 months ago
Anti-inflammatories?
I've seen a lot of posts recently on how inflammation is the main cause of RLS. But if so, why don't NSAIDs alleviate RLS? I'm on codeine, but would rather be taking ibuprofen or aspirin if they worked. Alas, they don't. : (
I've seen a lot of posts recently on how inflammation is the main cause of RLS. But if so, why don't NSAIDs alleviate RLS? I'm on codeine, but would rather be taking ibuprofen or aspirin if they worked. Alas, they don't. : (
nocturne
in
Restless Legs Syndrome
11 months ago
ET following Covid Vaccination
I developed Essential Thrombocythemia immediately following my Covid Vaccination and first Booster - lost 1 1/2 stone and platelet count shot through the roof to 1,000. Immediately put on Aspirin a day andHydroxycarbamide. My life changed from then - awful symptoms but not sure if the drugs or the
I developed Essential Thrombocythemia immediately following my Covid Vaccination and first Booster - lost 1 1/2 stone and platelet count shot through the roof to 1,000. Immediately put on Aspirin a day andHydroxycarbamide. My life changed from then - awful symptoms but not sure if the drugs or the
Happydolphin
in
MPN Voice
11 months ago
Beginning To Despair.....
Just an update on my problems with low heart rate etc........ My long quest to try to discover why for several years now I have been waking up around 5 or 6 o'clock every morning feeling absolutely terrible continues on. My mobility has also got really very bad and it is becoming more and more difficult
Just an update on my problems with low heart rate etc........ My long quest to try to discover why for several years now I have been waking up around 5 or 6 o'clock every morning feeling absolutely terrible continues on. My mobility has also got really very bad and it is becoming more and more difficult
Channeal
in
British Heart Foundation
11 months ago
Ramipril Or Reflux - Unsure What Is Causing My Cough
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Bhunabhoy
in
British Heart Foundation
11 months ago
increased headaches not on Aspirin
Hi all, Just a query question plz. I recently went to hospital with bleeding from my back passage after ongoing toilet problems. I had lots of blood tests carried out and everything appeared to be ok, although they told me to come off the Aspirin for a while and speak to my Heamo on next appointment
Hi all, Just a query question plz. I recently went to hospital with bleeding from my back passage after ongoing toilet problems. I had lots of blood tests carried out and everything appeared to be ok, although they told me to come off the Aspirin for a while and speak to my Heamo on next appointment
Grendall
in
MPN Voice
11 months ago
unpleasant side effects
hi My bisoprolol was increased to 10mg 2 weeks ago and Ranolazine was increased to 2x 375mg twice a day.I’m also on 500mg of ramipril along with Amlodipine aspirin and other heart meds. For the last couple of weeks when I wake up I’m so dizzy it lasts minutes then I get up but I’m also having side
hi My bisoprolol was increased to 10mg 2 weeks ago and Ranolazine was increased to 2x 375mg twice a day.I’m also on 500mg of ramipril along with Amlodipine aspirin and other heart meds. For the last couple of weeks when I wake up I’m so dizzy it lasts minutes then I get up but I’m also having side
Jenzhearts
in
British Heart Foundation
11 months ago
Ramipril or Reflux - hard to tell why I have this cough
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Hi I had a heart attack followed by an angioplasty last month, and I am on the meds listed at the end of this message. In general terms I feel really good since the stent was fitted, and five weeks in I’m walking as much as I used to, but am still taking it easy in terms of strenuous activity. Have
Bhunabhoy
in
British Heart Foundation
11 months ago
Dizzy spells
7 weeks after my aortic valve replacement, recovering well, do get the occasional dizzy spell though, is this down to my meds? I'm taking bisoprolol, lansoprazole,asprin and atorvastatin.
7 weeks after my aortic valve replacement, recovering well, do get the occasional dizzy spell though, is this down to my meds? I'm taking bisoprolol, lansoprazole,asprin and atorvastatin.
Coolgoalee
in
British Heart Foundation
11 months ago
Mild left ventricular systolic disfunction
At a pre opp assessment for a minor opp they identified a Left Bundle Branch Block, which I had never heard of. Eventually got to see a Cardiologist who put me on Ramipiril, Bisoprolol and a Statin, and sent me for an MRI and CT scan. Took some time and the results were just sent to GP, with no further
At a pre opp assessment for a minor opp they identified a Left Bundle Branch Block, which I had never heard of. Eventually got to see a Cardiologist who put me on Ramipiril, Bisoprolol and a Statin, and sent me for an MRI and CT scan. Took some time and the results were just sent to GP, with no further
Beanlover
in
British Heart Foundation
11 months ago
Anagrelide (Agrylin)
I am a 74 year old living in the U.S. - diagnosed with ET CALR 2 mutation in 2021. Was put on Hydrea aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the hydrea - against my doctor's recommendation. No, she is not an MPN specialist
I am a 74 year old living in the U.S. - diagnosed with ET CALR 2 mutation in 2021. Was put on Hydrea aka hydroxyurea and low dose aspirin immediately. After about a year, began developing side effects and decided to stop the hydrea - against my doctor's recommendation. No, she is not an MPN specialist
mpnunlocked
in
MPN Voice
11 months ago
Heart attack, 6 month on
So today is the 6 month anniversary of my heart attack, would like to share my journey so far.Friday 28th heart attack at 5 side footy, A&E, cardio ward, angio, CABG. Pretty standard stuff. I consider myself to have been very lucky. Had great care, recovery good, no heart damage, normal heart rate and
So today is the 6 month anniversary of my heart attack, would like to share my journey so far.Friday 28th heart attack at 5 side footy, A&E, cardio ward, angio, CABG. Pretty standard stuff. I consider myself to have been very lucky. Had great care, recovery good, no heart damage, normal heart rate and
MattG1875
in
British Heart Foundation
11 months ago
Anyone taking 325mg aspirin with 1000-1500 HU daily for ET?
I'm 75 and my platelets are under 700. I also take fish oil along with a dozen prescription meds. My oncologist prescribed this much aspirin and HU. Should I be concerned? Anyone else taking this much aspirin and HU? I take 1000 every other day and 1500 opposite days.
I'm 75 and my platelets are under 700. I also take fish oil along with a dozen prescription meds. My oncologist prescribed this much aspirin and HU. Should I be concerned? Anyone else taking this much aspirin and HU? I take 1000 every other day and 1500 opposite days.
jewelmaker
in
MPN Voice
11 months ago
Fatigue
Hi everyone. I got diagnosed with ET with an MPL gene mutation in December 2021. I take 75mg of aspirin a day. My platelet count hovers around 500 and goes up if I'm fighting any viruses. The fatigue aspect is what I'm really struggling with. It makes me feel incredibly low. My GP has put me on antidepressants
Hi everyone. I got diagnosed with ET with an MPL gene mutation in December 2021. I take 75mg of aspirin a day. My platelet count hovers around 500 and goes up if I'm fighting any viruses. The fatigue aspect is what I'm really struggling with. It makes me feel incredibly low. My GP has put me on antidepressants
LittleMsTired
in
MPN Voice
11 months ago
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