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A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
6 months ago
Good Morning 🩷 new to the group....
After my Pulmonary
embolism
it was seen that the Apixaban wasn't working! .2% of the population it doesn't work for and I was in that percentile!
After my Pulmonary
embolism
it was seen that the Apixaban wasn't working! .2% of the population it doesn't work for and I was in that percentile!
NorthernShel
in
Hughes Syndrome APS Forum
4 months ago
R223 - PSA 26 Doubled since February
On Warfarin as multi pulmonary
embolism
while having chemotherapy 2010. We would be grateful of any thoughts or advice kind regards Jan & Tony
On Warfarin as multi pulmonary
embolism
while having chemotherapy 2010. We would be grateful of any thoughts or advice kind regards Jan & Tony
Janhpr
in
Advanced Prostate Cancer
3 months ago
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Have SCT and Just searching for answers
Doctors could not find the cause Age 46(2008): Suffered a pulmonary
embolism
(blood clot) in my right lung 2013: Diagnosed with CKD, stage 3 also HBP (off meds since May 2023 due to dietary changes) Not on dialysis 2014: Diagnosed with venous insufficiency (pain with blood flow in my right leg)
Doctors could not find the cause Age 46(2008): Suffered a pulmonary
embolism
(blood clot) in my right lung 2013: Diagnosed with CKD, stage 3 also HBP (off meds since May 2023 due to dietary changes) Not on dialysis 2014: Diagnosed with venous insufficiency (pain with blood flow in my right leg)
Beachluvr62
in
Sickle Cell Society
4 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
8 months ago
Hu days update
Well surprised as I've had bilateral pulmonary
embolism
last year big redflag. Heam is another locom so I politely asked how many Et MPN patients they had treated ( you can imagine the response)didn't go down well.
Well surprised as I've had bilateral pulmonary
embolism
last year big redflag. Heam is another locom so I politely asked how many Et MPN patients they had treated ( you can imagine the response)didn't go down well.
Spanelmad
in
MPN Voice
8 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
8 months ago
Causes of Afib
Fibrillation and You" It lists common causes of Afib: High blood pressure Coronary heart disease Mitral valve disease (caused by rheumatic heart disease, valve problems at birth, or infection) Congenital heart disease (abnormality of the heart present since birth) Pneumonia Lung cancer Pulmonary
embolism
Fibrillation and You" It lists common causes of Afib: High blood pressure Coronary heart disease Mitral valve disease (caused by rheumatic heart disease, valve problems at birth, or infection) Congenital heart disease (abnormality of the heart present since birth) Pneumonia Lung cancer Pulmonary
embolism
fibnum
in
AF Association
6 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
8 months ago
Itching
Well this is my first post, I've recently been diagnosed with Etjac2 after 10 years of raised platelets (but under the nhs sussex threshold) .Last year I suffered bilateral pulmonary
embolism
in the October and then had to fight to see a Heamatologist.
Well this is my first post, I've recently been diagnosed with Etjac2 after 10 years of raised platelets (but under the nhs sussex threshold) .Last year I suffered bilateral pulmonary
embolism
in the October and then had to fight to see a Heamatologist.
Spanelmad
in
MPN Voice
10 months ago
Anticoagulation Therapy
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
TracyAdmin
Partner
in
AF Association
9 months ago
First Post
I had a (DVT), white matter brain lesions, pulmonary
embolism
, and a blood clotting disorder, now on long term anticoagulants. I also have acute bleeding requiring transfusions, mouth ulcers, esophageal and GI lesions, and iron deficiency anemia.
I had a (DVT), white matter brain lesions, pulmonary
embolism
, and a blood clotting disorder, now on long term anticoagulants. I also have acute bleeding requiring transfusions, mouth ulcers, esophageal and GI lesions, and iron deficiency anemia.
Coalbeach
in
Behçet's UK
4 days ago
It all started with a purple toe!
The doctor was concerned it was an
embolism
and I was sent for several tests and to see a consultant. It appears from an ECG that I have a left bundle branch block and it was suggested I take Rosuvastatin and Clopidogrel as a blood thinner.
The doctor was concerned it was an
embolism
and I was sent for several tests and to see a consultant. It appears from an ECG that I have a left bundle branch block and it was suggested I take Rosuvastatin and Clopidogrel as a blood thinner.
KatyB
in
Cholesterol Support
9 months ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
10 months ago
Pulmonary embolism
Hi, living in the UK so will need a UK based one. I have recently been diagnosed, i would like to know if there is any advise there could be with Health insurance since i am on warfarin for life now, Secondary to the this i would like to also know about the NHS medically exempt form/Card. Has
Hi, living in the UK so will need a UK based one. I have recently been diagnosed, i would like to know if there is any advise there could be with Health insurance since i am on warfarin for life now, Secondary to the this i would like to also know about the NHS medically exempt form/Card. Has
SelfCoagucheck
in
Anticoagulation Support
1 year ago
More Challenges to Overcome!
Everything was reasonably ok, ruling out pulmonary
embolism
, adrenal crisis, thyroid, etc, but the ECG did show my heart kept slipping into a short-lived SVT rhythm. They increased my Propranolol till I see my cardiologist next Thu. I was home by midday Wed. Oh!.....
Everything was reasonably ok, ruling out pulmonary
embolism
, adrenal crisis, thyroid, etc, but the ECG did show my heart kept slipping into a short-lived SVT rhythm. They increased my Propranolol till I see my cardiologist next Thu. I was home by midday Wed. Oh!.....
Kendrew
in
PMRGCAuk
3 months ago
heparin innohep Uk
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
Kev667
in
Hughes Syndrome APS Forum
10 months ago
Lupron Injection Site Pain
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Yzinger
in
Advanced Prostate Cancer
11 months ago
B12 and piece of mind. Coming to terms with being sick.
Another about rare anaphylaxis and lastly one about pulmonary
embolism
! suffice it to say scary stuff even if rare. I love my dad, but when I am ill no one researches and helps me with my symptoms and how to find answers.
Another about rare anaphylaxis and lastly one about pulmonary
embolism
! suffice it to say scary stuff even if rare. I love my dad, but when I am ill no one researches and helps me with my symptoms and how to find answers.
Gobbozoid
in
Pernicious Anaemia Society
30 days ago
Apixaban / Eliquis Hair Loss
I’m a 40 year old male that was recently diagnosed with pulmonary
embolism
.
I’m a 40 year old male that was recently diagnosed with pulmonary
embolism
.
owinkelm
in
AF Association
11 months ago
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