Have SCT and Just searching for answers - Sickle Cell Society

Sickle Cell Society

2,001 members521 posts

Have SCT and Just searching for answers

Beachluvr62 profile image
0 Replies

Hello,

I'm 62 but I've had a series of medical issues and after some constant research, none of my doctors have ever attributed the issues from SCT or my hematologist flat out denies there's no correlation.

My history is this:

Age 11: Diagnosed with SCT (Inherited from my father)

Age 11/12: Had severe cluster migraine headaches for several years, prescribed medication

Age 36: Diagnosed with Type 2 Diabetes (no longer on meds as of May 2023) - dietary changes

Age 38(2000): Stroke (ischemic) with some issues affecting the right side of my body. Doctors could not find the cause

Age 46(2008): Suffered a pulmonary embolism (blood clot) in my right lung

2013: Diagnosed with CKD, stage 3 also HBP (off meds since May 2023 due to dietary changes) Not on dialysis

2014: Diagnosed with venous insufficiency (pain with blood flow in my right leg) Sometimes I still have terrible cramping in both legs and behind the thighs.

2017: Diagnosed with a blood plasma disorder (MGUS) Dr calculates I've had this approx 12 yrs

I did read in some medical journals that CKD can be linked to SCT but with all these other blood-related issues I feel there has to be a connection. Just want to know so I can be properly treated.

Written by
Beachluvr62 profile image
Beachluvr62
To view profiles and participate in discussions please or .
Read more about...

You may also like...

Can SCT go away over time?

when I joined the military and they did their own blood work, they said I didn't have the sickle...

Sickle cell trait problems

cell trait hb d heterozygote so my card says I inherited it from my dad who was also a carrier. I...

Sickle cell trait but having complications?

I have sickle cell trait. My blood level is always dangerously low. Hb 6 g/dl. I have headaches...

I have full blown sickle cell and i lose hope a lot

Sickle Cell Trait is a disease.

supplements like fish oil in high doses can help your blood. I have seen what alcohol can do to the...