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Interesting feature on Inside Health
This is always an interesting programme to listen to, but this week's episode is particularly pertinent as the latest types of anticoagulants are discussed. http://www.bbc.co.uk/programmes/b04mctw7 There's a transcript of the programme on this site as well (if you're unable to listen on iPlayer). Has
This is always an interesting programme to listen to, but this week's episode is particularly pertinent as the latest types of anticoagulants are discussed. http://www.bbc.co.uk/programmes/b04mctw7 There's a transcript of the programme on this site as well (if you're unable to listen on iPlayer). Has
Jo60
in
Hughes Syndrome APS Forum
10 years ago
Pulmonary Hypertension
I have just found this community and don't know whether I belong to this one or not. I have Limited Systemic Sclerosis which has now progressed to Pulmonary Hypertension. There aren't that many in this country that suffers with it, only around 6 to 8,000 in the UK. It affects the pulmonary artery
I have just found this community and don't know whether I belong to this one or not. I have Limited Systemic Sclerosis which has now progressed to Pulmonary Hypertension. There aren't that many in this country that suffers with it, only around 6 to 8,000 in the UK. It affects the pulmonary artery
PaleIndian2
in
Lung Conditions Community Forum
10 years ago
Spontaneous Referral!
Just had to share this as slightly excited - my Rhuematologist has spontaneously asked if I would like her to arrange for me to be seen by Dr David D'Cruz!! It may have something to do with the fact that I had just emailed her to say that I want to inject Heparin if my INR goes below 2.5 rather than
Just had to share this as slightly excited - my Rhuematologist has spontaneously asked if I would like her to arrange for me to be seen by Dr David D'Cruz!! It may have something to do with the fact that I had just emailed her to say that I want to inject Heparin if my INR goes below 2.5 rather than
Elaine77c
in
Hughes Syndrome APS Forum
10 years ago
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Stopping warfarin
I had to stop the 6mg PD warfarin to undergo a hernia opp , hereford..no advice given after the opp on when to start again. So called the doctor the following day, he said to start straight away. 6 days later I end up in emergency in portsmouth to catch the Santander ferry! Apparently its a large blood
I had to stop the 6mg PD warfarin to undergo a hernia opp , hereford..no advice given after the opp on when to start again. So called the doctor the following day, he said to start straight away. 6 days later I end up in emergency in portsmouth to catch the Santander ferry! Apparently its a large blood
fuzzflyer
in
AF Association
10 years ago
inr
I was admitted into hospital with thrombo phlebitis on the 18th of sept this year after a scan it was found that i had a dvt as well i have been on warfren now for 4 weeks and also been using 180 ml of enoxaparin injections a day my inr has been 1.1 1.2 1.1 and is now down to 1.0 any advice on what
I was admitted into hospital with thrombo phlebitis on the 18th of sept this year after a scan it was found that i had a dvt as well i have been on warfren now for 4 weeks and also been using 180 ml of enoxaparin injections a day my inr has been 1.1 1.2 1.1 and is now down to 1.0 any advice on what
jueanne
in
AF Association
10 years ago
Help
I have never had a Stroke, TIA,
Embolism
or anything similar, to my knowledge. I would like to ask for help and advice from all the knowledgeable people on this site. Do you think that Hughes is a possibility, or do you have to have some kind of clotting episode before it can be diagnosed?
I have never had a Stroke, TIA,
Embolism
or anything similar, to my knowledge. I would like to ask for help and advice from all the knowledgeable people on this site. Do you think that Hughes is a possibility, or do you have to have some kind of clotting episode before it can be diagnosed?
lorac1
in
Hughes Syndrome APS Forum
10 years ago
Third time lucky?
Well on the way I have had drainage for ascites in my abdomen, a Pulmonary
Embolism
- treated with daily injections of Clexane, Pleural Effusion which keeps coming back after having it drained several time once was a bit scary when my lung collapsed!
Well on the way I have had drainage for ascites in my abdomen, a Pulmonary
Embolism
- treated with daily injections of Clexane, Pleural Effusion which keeps coming back after having it drained several time once was a bit scary when my lung collapsed!
Tricia12
in
My Ovacome
10 years ago
4th line chemo
She also had a bilateral pulmonary
embolism
and continues to inject daily with Innohep (heparin).
She also had a bilateral pulmonary
embolism
and continues to inject daily with Innohep (heparin).
marymarcy
in
My Ovacome
10 years ago
Off warfarin 3 weeks early
Hi I have written a couple of posts on here, had dvt right calf and put on warfarin for 12 weeks. I had a horrendous time with this medication and never managed to get it changed, even though coag clinic were happy to monitor me on sinthrom. I was bounced back and forth and doc wanted it in writing.
Hi I have written a couple of posts on here, had dvt right calf and put on warfarin for 12 weeks. I had a horrendous time with this medication and never managed to get it changed, even though coag clinic were happy to monitor me on sinthrom. I was bounced back and forth and doc wanted it in writing.
speacock36
in
Anticoagulation Support
10 years ago
I've been offered the flu jab now im on warfarin but im a bit unsure of having it done.
I have been told that you can have bad side effects from it. Anyone got any advice xx
I have been told that you can have bad side effects from it. Anyone got any advice xx
Hidden
in
Hughes Syndrome APS Forum
10 years ago
INR when taking Fragminshot-
My Hematologist at the hospital (she knows me since several years) wants me at an INR of 2.5 - 3.5. I am selftesting and only go to the lab every 8 weeks. Most of the time I am on an INR of 3.5. I have been much higher with no bleeding but take it down with brusselsprouts in 24 hours if it is too high
My Hematologist at the hospital (she knows me since several years) wants me at an INR of 2.5 - 3.5. I am selftesting and only go to the lab every 8 weeks. Most of the time I am on an INR of 3.5. I have been much higher with no bleeding but take it down with brusselsprouts in 24 hours if it is too high
Lure2
in
Hughes Syndrome APS Forum
10 years ago
New oncologist
Well ladies meet new oncologist today first had a meeting with her registrar ,who was lovely told me for the first time that I have stage 4 cancer and difficult to operate on that is why I have not been given an operation,at the moment he said my cancer is stable and I am well and the longer I stay like
Well ladies meet new oncologist today first had a meeting with her registrar ,who was lovely told me for the first time that I have stage 4 cancer and difficult to operate on that is why I have not been given an operation,at the moment he said my cancer is stable and I am well and the longer I stay like
cancer48
in
My Ovacome
10 years ago
Coumadin
I am taking coumadin for a massive Pulmonary
Embolism
. This is the first time I have had my INR checked since leaving the hospital. It was 4.7 today. Is that too high?
I am taking coumadin for a massive Pulmonary
Embolism
. This is the first time I have had my INR checked since leaving the hospital. It was 4.7 today. Is that too high?
LisaZimber
in
Anticoagulation Support
10 years ago
Heparin trial
Hi everybody, bee to see my rheumatologist, acl.Antibodies running very high so the prof. Wants me in hospital within the next week. He is stopping the aspirin and starting heparin and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Hi everybody, bee to see my rheumatologist, acl.Antibodies running very high so the prof. Wants me in hospital within the next week. He is stopping the aspirin and starting heparin and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Welcome to my roller coaster
Blood gone wild again --Dc {PCP } wants me back on the Enoxaparin 2 shots a day 75 mls --- today -tomorrow --and Thursday -- Warfarin -- 10 mls tonight--7.5 weds---5 on Thurs.--retest Friday ---- i guess he is finally getting it that i can't be doing this testing every week . in the past i have
Blood gone wild again --Dc {PCP } wants me back on the Enoxaparin 2 shots a day 75 mls --- today -tomorrow --and Thursday -- Warfarin -- 10 mls tonight--7.5 weds---5 on Thurs.--retest Friday ---- i guess he is finally getting it that i can't be doing this testing every week . in the past i have
jetjetjet
in
Hughes Syndrome APS Forum
10 years ago
thrombophilia screen, 10 months late now referred back to dvt consultant
hi i had a popliteal dvt in july 2013 came off warfarin in sep 2013 as i had to have another operation on my leg, in july this year i was contacted by dvt clinic to have thrombophilia screening as it should have been done in oct last year but they say it was overlooked, i have now received an appointmet
hi i had a popliteal dvt in july 2013 came off warfarin in sep 2013 as i had to have another operation on my leg, in july this year i was contacted by dvt clinic to have thrombophilia screening as it should have been done in oct last year but they say it was overlooked, i have now received an appointmet
emmalou81
in
Anticoagulation Support
10 years ago
Anyone not on any treatment?
I was diagnosed with Hughes after my miscarriages and have just had a successful pregnancies on 5000 units of fragmin and 150mg aspirin. Post partum I was on 5000 units fragmin for 6 weeks. I have been to the haematologist and they have said that as I have no other symptoms and no history of blood clots
I was diagnosed with Hughes after my miscarriages and have just had a successful pregnancies on 5000 units of fragmin and 150mg aspirin. Post partum I was on 5000 units fragmin for 6 weeks. I have been to the haematologist and they have said that as I have no other symptoms and no history of blood clots
starships
in
Hughes Syndrome APS Forum
10 years ago
Was doin well
For the last three wks was doin good, was at the pain clinic go to docs nxt wk for there input. Anxiety caved me in the last two day, getn treatment for phlebitis, i no i will be ok, taking meds for it, im on carbamezipine, 400mg daily, takes the edge of anxiety, anyone else took this. Xx
For the last three wks was doin good, was at the pain clinic go to docs nxt wk for there input. Anxiety caved me in the last two day, getn treatment for phlebitis, i no i will be ok, taking meds for it, im on carbamezipine, 400mg daily, takes the edge of anxiety, anyone else took this. Xx
painterman
in
Anxiety Support
10 years ago
New here!!
Anyone been recently been diagnosed with a bilateral pulmonary
embolism
. I have been following ACE community and have had some good advice. Just searching for more information. I was diagnosed 3 weeks ago and to be honest it has been a whirlwind.
Anyone been recently been diagnosed with a bilateral pulmonary
embolism
. I have been following ACE community and have had some good advice. Just searching for more information. I was diagnosed 3 weeks ago and to be honest it has been a whirlwind.
kersantti
in
Lung Conditions Community Forum
10 years ago
Pulmonary Embolism
I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, walking stick, crutches and mobility scooter. I am very claustrophobic and had a panic attack when I was made to sit in an old cell. The paramedic who was attending to me did an ECG and as soon as he read the results called
I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, walking stick, crutches and mobility scooter. I am very claustrophobic and had a panic attack when I was made to sit in an old cell. The paramedic who was attending to me did an ECG and as soon as he read the results called
gracekunda
in
LUPUS UK
10 years ago
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