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Off warfarin 3 weeks early
Hi I have written a couple of posts on here, had dvt right calf and put on warfarin for 12 weeks. I had a horrendous time with this medication and never managed to get it changed, even though coag clinic were happy to monitor me on sinthrom. I was bounced back and forth and doc wanted it in writing.
Hi I have written a couple of posts on here, had dvt right calf and put on warfarin for 12 weeks. I had a horrendous time with this medication and never managed to get it changed, even though coag clinic were happy to monitor me on sinthrom. I was bounced back and forth and doc wanted it in writing.
speacock36
in
Anticoagulation Support
10 years ago
I've been offered the flu jab now im on warfarin but im a bit unsure of having it done.
I have been told that you can have bad side effects from it. Anyone got any advice xx
I have been told that you can have bad side effects from it. Anyone got any advice xx
Hidden
in
Hughes Syndrome APS Forum
10 years ago
INR when taking Fragminshot-
My Hematologist at the hospital (she knows me since several years) wants me at an INR of 2.5 - 3.5. I am selftesting and only go to the lab every 8 weeks. Most of the time I am on an INR of 3.5. I have been much higher with no bleeding but take it down with brusselsprouts in 24 hours if it is too high
My Hematologist at the hospital (she knows me since several years) wants me at an INR of 2.5 - 3.5. I am selftesting and only go to the lab every 8 weeks. Most of the time I am on an INR of 3.5. I have been much higher with no bleeding but take it down with brusselsprouts in 24 hours if it is too high
Lure2
in
Hughes Syndrome APS Forum
10 years ago
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New oncologist
Well ladies meet new oncologist today first had a meeting with her registrar ,who was lovely told me for the first time that I have stage 4 cancer and difficult to operate on that is why I have not been given an operation,at the moment he said my cancer is stable and I am well and the longer I stay like
Well ladies meet new oncologist today first had a meeting with her registrar ,who was lovely told me for the first time that I have stage 4 cancer and difficult to operate on that is why I have not been given an operation,at the moment he said my cancer is stable and I am well and the longer I stay like
cancer48
in
My Ovacome
10 years ago
Coumadin
I am taking coumadin for a massive Pulmonary
Embolism
. This is the first time I have had my INR checked since leaving the hospital. It was 4.7 today. Is that too high?
I am taking coumadin for a massive Pulmonary
Embolism
. This is the first time I have had my INR checked since leaving the hospital. It was 4.7 today. Is that too high?
LisaZimber
in
Anticoagulation Support
10 years ago
Heparin trial
Hi everybody, bee to see my rheumatologist, acl.Antibodies running very high so the prof. Wants me in hospital within the next week. He is stopping the aspirin and starting heparin and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Hi everybody, bee to see my rheumatologist, acl.Antibodies running very high so the prof. Wants me in hospital within the next week. He is stopping the aspirin and starting heparin and cyclophosphamide. I'm a bit scared, has anyone else been on this? Grateful for your reply Thanks Elfie.
Elfie1
in
Hughes Syndrome APS Forum
10 years ago
Welcome to my roller coaster
Blood gone wild again --Dc {PCP } wants me back on the Enoxaparin 2 shots a day 75 mls --- today -tomorrow --and Thursday -- Warfarin -- 10 mls tonight--7.5 weds---5 on Thurs.--retest Friday ---- i guess he is finally getting it that i can't be doing this testing every week . in the past i have
Blood gone wild again --Dc {PCP } wants me back on the Enoxaparin 2 shots a day 75 mls --- today -tomorrow --and Thursday -- Warfarin -- 10 mls tonight--7.5 weds---5 on Thurs.--retest Friday ---- i guess he is finally getting it that i can't be doing this testing every week . in the past i have
jetjetjet
in
Hughes Syndrome APS Forum
10 years ago
thrombophilia screen, 10 months late now referred back to dvt consultant
hi i had a popliteal dvt in july 2013 came off warfarin in sep 2013 as i had to have another operation on my leg, in july this year i was contacted by dvt clinic to have thrombophilia screening as it should have been done in oct last year but they say it was overlooked, i have now received an appointmet
hi i had a popliteal dvt in july 2013 came off warfarin in sep 2013 as i had to have another operation on my leg, in july this year i was contacted by dvt clinic to have thrombophilia screening as it should have been done in oct last year but they say it was overlooked, i have now received an appointmet
emmalou81
in
Anticoagulation Support
10 years ago
Anyone not on any treatment?
I was diagnosed with Hughes after my miscarriages and have just had a successful pregnancies on 5000 units of fragmin and 150mg aspirin. Post partum I was on 5000 units fragmin for 6 weeks. I have been to the haematologist and they have said that as I have no other symptoms and no history of blood clots
I was diagnosed with Hughes after my miscarriages and have just had a successful pregnancies on 5000 units of fragmin and 150mg aspirin. Post partum I was on 5000 units fragmin for 6 weeks. I have been to the haematologist and they have said that as I have no other symptoms and no history of blood clots
starships
in
Hughes Syndrome APS Forum
10 years ago
Was doin well
For the last three wks was doin good, was at the pain clinic go to docs nxt wk for there input. Anxiety caved me in the last two day, getn treatment for phlebitis, i no i will be ok, taking meds for it, im on carbamezipine, 400mg daily, takes the edge of anxiety, anyone else took this. Xx
For the last three wks was doin good, was at the pain clinic go to docs nxt wk for there input. Anxiety caved me in the last two day, getn treatment for phlebitis, i no i will be ok, taking meds for it, im on carbamezipine, 400mg daily, takes the edge of anxiety, anyone else took this. Xx
painterman
in
Anxiety Support
10 years ago
New here!!
Anyone been recently been diagnosed with a bilateral pulmonary
embolism
. I have been following ACE community and have had some good advice. Just searching for more information. I was diagnosed 3 weeks ago and to be honest it has been a whirlwind.
Anyone been recently been diagnosed with a bilateral pulmonary
embolism
. I have been following ACE community and have had some good advice. Just searching for more information. I was diagnosed 3 weeks ago and to be honest it has been a whirlwind.
kersantti
in
Lung Conditions Community Forum
10 years ago
Pulmonary Embolism
I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, walking stick, crutches and mobility scooter. I am very claustrophobic and had a panic attack when I was made to sit in an old cell. The paramedic who was attending to me did an ECG and as soon as he read the results called
I have had Lupus for 13 years. It affects mostly my mobility, I use wheelchair, walking stick, crutches and mobility scooter. I am very claustrophobic and had a panic attack when I was made to sit in an old cell. The paramedic who was attending to me did an ECG and as soon as he read the results called
gracekunda
in
LUPUS UK
10 years ago
DBS safe for older patients
Complications included wound infections, bleeding, pneumonia and pulmonary
embolism
. However, the overall risk of complications did not significantly increase with age, the researchers reported Aug. 25 in the journal JAMA Neurology.
Complications included wound infections, bleeding, pneumonia and pulmonary
embolism
. However, the overall risk of complications did not significantly increase with age, the researchers reported Aug. 25 in the journal JAMA Neurology.
Hidden
in
Cure Parkinson's
10 years ago
PE
I have recently been diagnosed with bilateral pulmonary
embolism
and currently taking warfarein. Into my second week. I am not getting any straight answers to some simple questions and was wondering if anyone could help.
I have recently been diagnosed with bilateral pulmonary
embolism
and currently taking warfarein. Into my second week. I am not getting any straight answers to some simple questions and was wondering if anyone could help.
kersantti
in
Anticoagulation Support
10 years ago
Warfarin Alternatives
I'm currently on warfarin but in the very early stages of considering one of the alternatives. My first question arises from the fact that dabigatran is taken twice a day, apixaban twice a day but, as I understand it, rivaroxaban is only once a day? Given that 'once a day' is surely more convenient
I'm currently on warfarin but in the very early stages of considering one of the alternatives. My first question arises from the fact that dabigatran is taken twice a day, apixaban twice a day but, as I understand it, rivaroxaban is only once a day? Given that 'once a day' is surely more convenient
AnticoagulateNow
in
AF Association
10 years ago
OHSU Update
He stated the recovery time from a Pulmonary
Embolism
is very real and lengthy laced with much pain. I feel like the heaviness in my heart is leaving from carrying the wonder that comes with this disease. I hope to have a full report with more details for everyone to share.
He stated the recovery time from a Pulmonary
Embolism
is very real and lengthy laced with much pain. I feel like the heaviness in my heart is leaving from carrying the wonder that comes with this disease. I hope to have a full report with more details for everyone to share.
beccafullcircle
in
Hughes Syndrome APS Forum
10 years ago
Conflicting GP advice
I had a few clots 20+years ago , was diagnosed as having APS on warfarin for 5+ years. Then consistently tested negative for all clotting disorders. I came off warfarin and was just on Aspirin no problems for years. Have felt a bit 'off colour' for a few months and at the beginning of July discovered
I had a few clots 20+years ago , was diagnosed as having APS on warfarin for 5+ years. Then consistently tested negative for all clotting disorders. I came off warfarin and was just on Aspirin no problems for years. Have felt a bit 'off colour' for a few months and at the beginning of July discovered
Lucky67
in
Hughes Syndrome APS Forum
10 years ago
Lung function tests?
I have stage 1 very mild bullous emphysema, I had a lung volume test in 2012 and 2013 should I have one every year, I had a ct scan back in 2011 and nothing since. After my 2013 lung volume test doc said I was caught very early and since I have a good fev of 79% to 81% there was no need for follow ups
I have stage 1 very mild bullous emphysema, I had a lung volume test in 2012 and 2013 should I have one every year, I had a ct scan back in 2011 and nothing since. After my 2013 lung volume test doc said I was caught very early and since I have a good fev of 79% to 81% there was no need for follow ups
1968
in
Lung Conditions Community Forum
10 years ago
Protein s deficiency
Hi Was diagnosed with DVT and been on Heparin (now off) and Warfarin for nearly two months out of a three month treatment time. There was no obvious reason for the DVT and all the main factors were ruled out and I'm an active 36 yr old. My GP sent me for a lot of blood tests and I believe they took about
Hi Was diagnosed with DVT and been on Heparin (now off) and Warfarin for nearly two months out of a three month treatment time. There was no obvious reason for the DVT and all the main factors were ruled out and I'm an active 36 yr old. My GP sent me for a lot of blood tests and I believe they took about
Richyb78
in
Anticoagulation Support
10 years ago
Scary times
Hi everyone New to all this and it's quite scary. I'm 61 and have recently be diagnosed with multiple bilateral pulmonary embolisms and left sided pneumonia. Had Heparin and now on Warfarin. INR is not stable but then who's is? ... This forum's a great idea and you've all educated and calmed my ignorance
Hi everyone New to all this and it's quite scary. I'm 61 and have recently be diagnosed with multiple bilateral pulmonary embolisms and left sided pneumonia. Had Heparin and now on Warfarin. INR is not stable but then who's is? ... This forum's a great idea and you've all educated and calmed my ignorance
Tadmad
in
Anticoagulation Support
10 years ago
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