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Atrioesophageal fistula (AEF)
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Acheybreakeyheart
in
Atrial Fibrillation Support
5 months ago
Is it the time for initial treatment?
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
As I previously stated, my wife was diagnosed with CLL in 2020. Her markers are 13q deletion, 12 trisomy, and TP53, with IGHV muted. She is still in W&W form. So far, I've learned via reading literature and numerous posts about lymphocyte doubling time, lactate dehydrogenase, and lymph nodes. Her lymphocyte
Sagarcanada
in
CLL Support
12 days ago
Second Treatment -Feeling scared
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
My husband has CLL and finished FCR in April 2019. Due to low platelets, enlarged spleen and ALC doubling he needs to start his next treatment even though he feels wellV&R is the treatment starting on 15th May. I have researched extensively including within this group, and am aware of the treatment
Sanders9
in
CLL Support
15 days ago
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Feeling low. Wind out of my sails
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Update - Saw doc this morning and I was hoping that the Enhertu would be working after the 4th cycle, but markers went up +289. Now I am at 2130 (15.3) and the general tumor markers are up almost 4 pts to 56. He said I could do another round of Enhertu and I just said, look, just over a year now and
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
8 months ago
black out
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Helsbell
in
PSP Association
16 days ago
best treatment after Xeloda?
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
I was diagnosed with MBC in Feb 2022 with bone mets. I am HER2 low ER positive. I have been on kisquali, Ibrance, Faslodex, and lastly 4 rounds of Xeloda. Nothing seems to stop my progression, Kisquali sent my liver enzymes sky high. Ibrance/Faslodex progression was slow and markers rose. Xeloda
Breege_M
in
SHARE Metastatic Breast Cancer
8 months ago
New job, Anxiety Attack
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
CatDogLover
in
Anxiety and Depression Support
17 days ago
Surgery to remove FNH
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Elverra30
in
British Liver Trust
17 days ago
Depo and panic attacks?
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
Violetskyss
in
Endometriosis UK
18 days ago
Foraminotomy
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
yorkshirelad1
in
Pain Concern
5 months ago
Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
5 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
20 days ago
ive lost myself
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
thegoat123
in
Anxiety and Depression Support
20 days ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
5 months ago
takotsubo Cardiomyopathy phobia
I have panic disorder and agoraphobia. They say that stress can cause heart attack takotsubo syndrome even if I have a healthy heart. I'm constantly afraid of being scared because of this situation, please help me in case I get too scared and die.
I have panic disorder and agoraphobia. They say that stress can cause heart attack takotsubo syndrome even if I have a healthy heart. I'm constantly afraid of being scared because of this situation, please help me in case I get too scared and die.
nananwaq
in
Anxiety and Depression Support
25 days ago
I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can relate
Skylane2
in
Fibromyalgia Action UK
26 days ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
5 months ago
Movicol/colonoscopy prep for IBS relief
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Book_Worm5
in
IBS Network
5 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
5 months ago
well here IAM…
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
back at it with anxiety and sudden Panic attack symptoms! I was at a restaurant with my family I was eating and suddenly this [i]
IMPENDING DOOM
[/i]feeling came over me! I thought I was gonna blackout! It scared me so bad I ended up with racing heart I felt it in my neck! And Hot Flash in my back
Mindfulnessxo
in
Anxiety and Depression Support
26 days ago
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