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acoustic neuroma
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
I was diagnosed 18 months ago and the size was 0.07 cm. Stayed that size but last mri it’s grown to 1.2 cm. Have another appointment at Mayo tomorrow
Poncegirl
in
Acoustic Neuroma Support
1 year ago
Help with Vitamin K foods
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
Hello I am from Vancouver Island and had Open Heart Surgery in 2022. After my surgery they put you into this room to watch a video on Warfrin and then that's it home you go. Needless to say when I started taking Warfrin my INR was all over the map and still is but getting a bit better. The thing
13131958
in
Hughes Syndrome APS Forum
6 months ago
Pain around bikini line.
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
NewtonEmma1900
in
My Ovacome
2 months ago
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headache, throbbing, eye pain & rolling
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
Hello All, I am new here. I would appreciate advice please. Thanks for reading this. I was diagnosed with high eye pressure/glaucoma on 18/03/2022. My eye pressure was high then because I was on a high dose of Prednisolone. I thought it was steroid induced pressure and it would go away when my
softekcom
in
Glaucoma UK
6 months ago
My Bladder Cancer Update.
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
Ern007
in
Lung Conditions Community Forum
6 months ago
Feeling rough!
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
JulieB5200
in
IBS Network
2 months ago
#1 Symptom Reducer
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
I am a PwP and 56 years old. I'm a bit overwhelmed with all of the information, sometimes conflicting, out there regarding treatments and supplements. I am trying to determine what to try first. I am a predominantly tremor parkie. I exercise regularly & eat well. I take levadopa 25/100 4x a day.
staceysack
in
Cure Parkinson's
6 months ago
Wet AMD and Dry AMD
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
Hello. I was diagnosed with wet AMD in my left eye and possible dry AMD in my right eye. Possible because my specialist saw drusen in my right eye but my eye doctor before him saw drusen also for the past 25 years. As long as nothing changes it should be good he said. I am just curious has anyone been
wanttosee
in
Macular Society
6 months ago
Home pressure monitor to hire?
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Hi all,So 17 months after my trab surgery after everything has been stable, suddenly I'm getting frequent terrible headaches. My local optician tested my pressure for me but by the time I had the appointment the headache had subsided. The pressure was raised by 5 points so my hunch is it was on its way
Bonniecat7
in
Glaucoma UK
6 months ago
amlodipine
I am just out of hospital having suffered an atypical heart attack (no pain) and have been put on Losartan to lower blood pressure. Unfortunately it is dropping diastolic pressure to much. Doctor wanted to try a ca channel blocker and I think I read on this site that some people were able to take amlodipine
I am just out of hospital having suffered an atypical heart attack (no pain) and have been put on Losartan to lower blood pressure. Unfortunately it is dropping diastolic pressure to much. Doctor wanted to try a ca channel blocker and I think I read on this site that some people were able to take amlodipine
Jelbea
in
Restless Legs Syndrome
6 months ago
Tybon Henning Liothyronine
I have been taking this particular liothyronine for many years alongside my levothyroxine and now have been told by the pharmacy that it is no longer available. Could anyone on here please confirm this is the correct information I have been given? I had this particular brand as it was lactose free and
I have been taking this particular liothyronine for many years alongside my levothyroxine and now have been told by the pharmacy that it is no longer available. Could anyone on here please confirm this is the correct information I have been given? I had this particular brand as it was lactose free and
fifi6
in
Thyroid UK
6 months ago
SCT Journey update No.5
Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly
Hi to everyone who reads this, Just thought I’d let you know that am finally in Addenbrookes hospital having chemo as we speak. Had a Hickman line fitted last week. Am on Day 6, had dose of fludara and campath. Been just on fludara until today and was coping well, no side effects. Campath is slightly
LFCLove
in
MPN Voice
5 days ago
Wednesday The 14th.
I promised a painting for the 14 and being a heart shape canvas I could not use the easel. I ruined the picture with my sleeve going in paint on palate and it got onto painting - Ruined. I have done one not as good by painting the canvas black, and painted a picture ok for black canvas, Could not
I promised a painting for the 14 and being a heart shape canvas I could not use the easel. I ruined the picture with my sleeve going in paint on palate and it got onto painting - Ruined. I have done one not as good by painting the canvas black, and painted a picture ok for black canvas, Could not
Ern007
in
Lung Conditions Community Forum
6 months ago
help??
hi everyone ! I have hypo .. since last 10 years Recently last year or so my levels are up and down .. lots of meds adjusting Anyway had pet scan ( for mediastinal lymph node) biopsy negative but still enlarged cross and esr raised for nearly a year ..so pet scan .. which showed something on thyroid
hi everyone ! I have hypo .. since last 10 years Recently last year or so my levels are up and down .. lots of meds adjusting Anyway had pet scan ( for mediastinal lymph node) biopsy negative but still enlarged cross and esr raised for nearly a year ..so pet scan .. which showed something on thyroid
Jo-boo64
in
Thyroid UK
6 months ago
Steroids for digital ulcer
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
I have Reynauds, Scleroderma, and Sjogrens. I have been referred to a rheumatologist but only seen GP so far. I have been prescribed steroids (4 x 5mg per day , for 3 days, then reducing number per day) . I am in agonising pain with little effect when I take them. The pain increases in the evening
Crookedfinger
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Home tonometer
Hi there, has anyone got a home tonometer?I have narrow angles, and raised eye pressure, I had a laser iridotomy about 5 years ago, the holes are still open but my eye pressure still remains on the high side. I went to emergency eye clinic yesterday to get my eye pressures check as I had pain in my left
Hi there, has anyone got a home tonometer?I have narrow angles, and raised eye pressure, I had a laser iridotomy about 5 years ago, the holes are still open but my eye pressure still remains on the high side. I went to emergency eye clinic yesterday to get my eye pressures check as I had pain in my left
Dmfan1
in
Glaucoma UK
6 months ago
Oncolytic Virotherapy Platform Designed to Target All Tumor Sites: we will have some news soon, oncolytics are very promising (CLD-201)
– Preclinical models have demonstrated the ability to resist oncolytic virus inactivation by human serum and target diverse tumor types – Novel therapeutic approach allows for ease of administration, increased cost-effectiveness, and the ability to reach a broad patient population Enough for me to
– Preclinical models have demonstrated the ability to resist oncolytic virus inactivation by human serum and target diverse tumor types – Novel therapeutic approach allows for ease of administration, increased cost-effectiveness, and the ability to reach a broad patient population Enough for me to
Maxone73
in
Advanced Prostate Cancer
6 months ago
DOAC - changes
Some time ago, I started Rivaroxaban but stopped due to side effects. Was switched to Apixaban but had more (different) side effects from that. My GP was very helpful and suggested Edoxaban. It appears that the choice of DOAC is as much random rather than individually considered for the patient! At
Some time ago, I started Rivaroxaban but stopped due to side effects. Was switched to Apixaban but had more (different) side effects from that. My GP was very helpful and suggested Edoxaban. It appears that the choice of DOAC is as much random rather than individually considered for the patient! At
Carew
in
Atrial Fibrillation Support
6 months ago
Going to dentist
I'd like to know how people with tinnitus/hyperacusis cope at dental visits plseAsking for my hubby who hasn't been dentist for over a year and needs to go but is so anxious about any noise that may trigger a noise level. He can wear headphones but the hyperacusis will still be exacerbated. Any advice
I'd like to know how people with tinnitus/hyperacusis cope at dental visits plseAsking for my hubby who hasn't been dentist for over a year and needs to go but is so anxious about any noise that may trigger a noise level. He can wear headphones but the hyperacusis will still be exacerbated. Any advice
Spinach123
in
Tinnitus UK
20 days ago
Does anyone else have discomfort when going over bumps in car
Hi all, I usually wear a hearing aid in one ear and have done for several months now. This is for T, mild hearing loss and balance problems.Before getting the hearing aid for many years there would be discomfort, mild pain and a feeling of something moving, bouncing in my ear that would last for only
Hi all, I usually wear a hearing aid in one ear and have done for several months now. This is for T, mild hearing loss and balance problems.Before getting the hearing aid for many years there would be discomfort, mild pain and a feeling of something moving, bouncing in my ear that would last for only
penelope2
in
Tinnitus UK
1 year ago
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