Recently last year or so my levels are up and down .. lots of meds adjusting
Anyway had pet scan ( for mediastinal lymph node) biopsy negative but still enlarged cross and esr raised for nearly a year ..so pet scan .. which showed something on thyroid ( no results) but couple days got text telling me I had us thyroid .. again no results given to me .. but again text saying ent appointment .. yesterday .. dr was not very helpful told me nothing when I asked about pet/ us .. said they don’t go by that ?
and I have now got to have neck US ? And after that will get results .. now obviously very worried ..
apologies for long story
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Jo-boo64
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- First, you not only have a legal right to know the results of all your tests and investigations but, to have print outs of them. So, please, make that a priority to get print-outs from your GP practice and ensure/request that the blood tests particularly have the reference ranges with them, too, as these can differ from lab to lab. Then you can start posting them here - range in (brackets).
- Secondly, in order to be able to help you further, the admin and more knowledgeable members on this forum, really need to see at least some of your thyroid blood tests - expressed as Thyroid Function Tests or TFT - in as much detail as possible (T3, T4, TSH and any auto thyroid antibodies tested) and particularly those from when you were diagnosed "hypo", as well as any replacement thyroid hormones you have been on since.
- Thirdly, it really helps to be able to get a picture of your thyroid journey if you can at least start to fill in your Bio (any questions on how to do that just ask), particularly once you get those results and can start putting those on your Bio to save you having to keep repeating them from post to post.
- Lastly, but by no means least, I am so, so sorry that you too have a very unhelpful GP/Dr who seems to think it's acceptable to send you texts to 'order' you to the next test, scan or whatever, whilst telling you the previous ones were "normal" or "negative" - all without discussion or proper explanation - and expect you to have unending trust and faith in them. This is not acceptable and, I assure you, you are sadly far from alone: you have absolutely come to the right place to start taking back control of your own health and care; to start getting answers to your questions, certainly in relation to your thyroid and its function; and to, hopefully, get you back on track with your health. This is a wonderfully caring, supportive and knowledgeable forum. 👍 Please don't hesitate to ask any further questions. 🙂
I will be requesting all results from my gp for latest scans etc
I have tpo ( 600)from 2021 and all tft also from then and recent do I post here or in bio? .. I also have copd and pet scan requested by respiratory.. they do eventually go onto my gp record but takes weeks sometimes .,
if serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)
Post discussing how biotin can affect test results
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten.
Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
as coeliac test is negative you can immediately go on strictly gluten free diet
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
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