My Bladder Cancer Update.: My latest... - Lung Conditions C...

Lung Conditions Community Forum

56,314 membersβ€’66,939 posts

My Bladder Cancer Update.

Ern007 profile image
Ern007
β€’117 Replies

My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around.

Seems my BCG has worked in as far as there si no tumour growth.

I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade.

So the BCG has worked in containing my BC - I will now go on a course of three BCG probably in May.

Bladder Cancer can return so I will have to be tested regular.

I am better of than a year, even 6 months ago.

Written by
Ern007 profile image
Ern007
To view profiles and participate in discussions please or .
Read more about...
117 Replies
β€’
sassy59 profile image
sassy59

That’s the news I hoped you would get. Let’s hope the cancer doesn’t return and the BCG’s in May work well. So pleased for you. Xxx❀️

Ern007 profile image
Ern007β€’ in reply tosassy59

Thank you Carole - The flexy cystoscopy only took 10 minutes. I am lucky I can tolerate BCG.

I just hope you are doing Ok Carole - Not pleasant ailments at all.

Also I hope with warmer weather, Pete will benefit with less pain. Xxxx:-)

sassy59 profile image
sassy59β€’ in reply toErn007

You are lucky to tolerate BCG Ern.

I’m not too bad thank you and will be happy when the 22nd is here and l get to see the oncologist at QA.

Pete will improve I’m sure but every day is different. Thank you for your kind words. Take care xxxxπŸ€—

Patk1 profile image
Patk1β€’ in reply tosassy59

I hope u get good news too, Carole xxx

sassy59 profile image
sassy59β€’ in reply toPatk1

Thank you Pat. πŸ™πŸ» xxxx

Handel profile image
Handelβ€’ in reply toPatk1

Thinking of you Pat xxxxx

leo60 profile image
leo60β€’ in reply tosassy59

Hope the 22nd goes well 😘 xx

sassy59 profile image
sassy59β€’ in reply toleo60

Thank you very much xxx❀️

Patk1 profile image
Patk1

Fantastic news for u xx

Ern007 profile image
Ern007β€’ in reply toPatk1

Thank you Pat. xx

HungryHufflepuff profile image
HungryHufflepuff

that is good news 😊 Thank you for letting us know. Hopefully the course of BCG vaccines will work well. I’m so happy to know it’s looking promising.

Ern007 profile image
Ern007β€’ in reply toHungryHufflepuff

Thank you HungryHufflepuff - It looked good at diagnoses, then all changed. Until Autumn I was high grade, and BCG is not really for high grade - I am very lucky. :-)

Yoga2011 profile image
Yoga2011

brilliant news, you must be very relieved. Well done πŸ‘

Ern007 profile image
Ern007β€’ in reply toYoga2011

Thank you, yes things looked black since 2022, then it changed. I must be lucky :-)

sandybrown profile image
sandybrown

Hello,

Thank you for your update.

Very happy with your results.

Take care.

Ern007 profile image
Ern007β€’ in reply tosandybrown

Thank you. sandybrown.

Oshgosh profile image
Oshgosh

I’m pleased for you xxx

Ern007 profile image
Ern007β€’ in reply toOshgosh

Thank you Oshgosh xx

helenlw7 profile image
helenlw7

That’s great news. Let’s hope the cancer doesn’t, but at least you’ll be checked regularly.

Ern007 profile image
Ern007β€’ in reply tohelenlw7

Yes it's great news, also the team seem to have woken up, I wanted BCG all the time, it was taken away as an option in 2022. Yes I will be checked a month or so after every course.

helenlw7 profile image
helenlw7β€’ in reply toErn007

Good news

Ern007 profile image
Ern007β€’ in reply tohelenlw7

It is.

Welshcatlady profile image
Welshcatlady

That's great news, fingers crossed 🀞 that it doesn't return.

Ern007 profile image
Ern007β€’ in reply toWelshcatlady

Thank you Welshcatlady I am keeping my fingers crossed, but going to enjoy the spring planting.

Welshcatlady profile image
Welshcatladyβ€’ in reply toErn007

I'm looking forward to getting out in the garden in Spring too. So wet out there now.

Ern007 profile image
Ern007β€’ in reply toWelshcatlady

I know it's been wet for months - I have a few European Fan Palms planted, the cold/frost won't kill them, standing water will, I lost three last year. Spring is a nice time for garden, when you can see everything shooting.

Welshcatlady profile image
Welshcatladyβ€’ in reply toErn007

Yes it's lovely, all the spring flowers in bloom, probably my favourite time of the year!

Ern007 profile image
Ern007β€’ in reply toWelshcatlady

I have Iris, Primroses and a few small daffs flowering now. I agree seeing the buds and shoots is uplifting. For the most part of my adult life, I made a living from plant growing and with Fuchsias, even mail order. It was like wages for a hobby.

Patk1 profile image
Patk1β€’ in reply toErn007

Wow! They're early. Where I am in lancs is v high up &exposed to winds,so my snowdrops r flowering but nothing else yet,although buds are on shrubs x

Ern007 profile image
Ern007β€’ in reply toPatk1

I live in Lanc's but not high up. Iris just 3 have come up in a container, two yellow primroses and one red and white, daffs are very small. First time in many years I have bothered with primroses. love the yellow.

Patk1 profile image
Patk1β€’ in reply toErn007

I love yellow too x

Ern007 profile image
Ern007β€’ in reply toPatk1

Spring time for yellow Pat, not as much in summer. x

Dottie11 profile image
Dottie11

Good news and well done. Not easy this stuff. Fingers crossed going forward. xx

Ern007 profile image
Ern007β€’ in reply toDottie11

Thank you, I am not counting chickens, but looks promising xx

Dottie11 profile image
Dottie11β€’ in reply toErn007

I know what you mean. But looks promising and that is good. One day at a time. xx

Ern007 profile image
Ern007β€’ in reply toDottie11

The only way Dottie11 - i remember when diagnosed in 2021, they said it was "superficial" - They was wrong. xx

Dottie11 profile image
Dottie11β€’ in reply toErn007

I know how that feels. I have been delayed with my lung diagnosis. Lets hope we have a good Summer. xx

Ern007 profile image
Ern007β€’ in reply toDottie11

I hope we have a good Spring and Summer, We really have has a miserable winter - I had a lung diagnosis after a nodule was found on my lung, they would not allow me my BCG - I was with Anne and they said can you just come in here, that was scary. Lung specialist was not that worried over the nodule. he thought it was more likely to be more scarring. That's in the past gonna see how I go with a plan.

Dottie11 profile image
Dottie11β€’ in reply toErn007

Yes fingers crossed for Summer. Less rain please. xx

Ern007 profile image
Ern007β€’ in reply toDottie11

Much less than last year, I live in hope xx

Troilus profile image
Troilus

Good news Ern

Ern007 profile image
Ern007β€’ in reply toTroilus

At last Troilus.

Troilus profile image
Troilusβ€’ in reply toErn007

Good things come to those who wait πŸ˜„

Ern007 profile image
Ern007β€’ in reply toTroilus

Indeed :-)

Danielmystar profile image
Danielmystar

That is good news im glad to hear it .

Ern007 profile image
Ern007β€’ in reply toDanielmystar

Thank you - Danielmystar

BronchyBronwen profile image
BronchyBronwen

Have just this minute received this, and I couldn't be more pleased foryou Ern! Onwards and upwards! Continue to look after yourself. Sending warmest wishes. πŸ™‚πŸ™‚πŸ˜ƒπŸ‘πŸŒΉxx

Ern007 profile image
Ern007β€’ in reply toBronchyBronwen

Thank you BronchyBronwen - With this and my GP looking out for my other complaints, I feel better xx

Cloudancer profile image
Cloudancer

Delighted for you.I continue to keep you in my thoughts.

Ern007 profile image
Ern007β€’ in reply toCloudancer

Thank you Cloudancer for your king remark .

rosco59 profile image
rosco59

Great news! Very pleased for you.

Ern007 profile image
Ern007β€’ in reply torosco59

Thank you rosco59

Issy22 profile image
Issy22

That is good news Ern007 I hope you continue to recover and I wish you well

Ern007 profile image
Ern007β€’ in reply toIssy22

Thank you Issy22 - I have a plan now. that's all I wanted.

Issy22 profile image
Issy22β€’ in reply toErn007

That’s good πŸ‘

B0xermad profile image
B0xermad

Hi Ern what positive news for you, I am pleased for you that it is under control

Ern007 profile image
Ern007β€’ in reply toB0xermad

Thank you Boxermad - I hope they keep it that way, I have a feeling they will do there best this time.

Alberta56 profile image
Alberta56

Hooray!!πŸŽ†πŸŽ†πŸŽ‡πŸ’πŸ’πŸŒ·πŸŒ±πŸŒ΄

Ern007 profile image
Ern007β€’ in reply toAlberta56

Thank you Chris - I am interested in next move, hope it's BCG xx

Alberta56 profile image
Alberta56β€’ in reply toErn007

🀞🀞🀞🀞 xxx

sunshineday profile image
sunshineday

So pleased to hear your good news Ern, and hope things just keep getting better. With spring on the way as well it's onwards and upwards. Joy xx

Ern007 profile image
Ern007β€’ in reply tosunshineday

Thank you Joy, i hope they keep up my BCG xx

Ergendl profile image
Ergendl

That is great news, Ern. Hoping the present state proves stable for the forseeable future. All the best xx

Ern007 profile image
Ern007β€’ in reply toErgendl

Thank you Ergendl - I agree in total with your post xx

Izb1 profile image
Izb1

This is such good news Ern and so pleased for you x

Ern007 profile image
Ern007β€’ in reply toIzb1

Thank you Ixb1 - It is good news after three years of negatives, only in 2022 they was talking about a Cystoscopy - I really hope that one is buried . x

Izb1 profile image
Izb1β€’ in reply toErn007

Oh me too Ern, in fact not buried but bloody cremated lol x

Ern007 profile image
Ern007β€’ in reply toIzb1

Spot onlzb1 - Then burry the ashes lol x

Digger0 profile image
Digger0

Brilliant news - my friend was one of the first to have this treatmeant once it was approved, and is still going strong!

Ern007 profile image
Ern007β€’ in reply toDigger0

Thank you Digger0 - I was took off it, so glad I went low grade to get it back, it's not tolerated by everyone, so am am a bit lucky. Glad to here about your friend.

stravinsky1 profile image
stravinsky1

Wow that is good news, I am really pleased for you.

Ern007 profile image
Ern007β€’ in reply tostravinsky1

Thank you stravinsky1 - best news sinse 2020/

Bingo88 profile image
Bingo88

That's great news Ern007 I bet you and your family are pleased. Long may it continue. Take care. Brian

Ern007 profile image
Ern007β€’ in reply toBingo88

Thank you Brian - After all the negatives, wanting to remove my bladder, this really is a possitive, I hope I am checked reglarily.

Mellywelly profile image
Mellywelly

That's such good news, may it continue for a long time to come. πŸ˜πŸ˜‰

Ern007 profile image
Ern007β€’ in reply toMellywelly

Thank you Mellywelly - I am hoping I stay on BCG permanent, I expect biopsies will still be needed, :-)

Numptybrain profile image
Numptybrain

That’s fantastic news Ern, your year is definitely starting in the right direction for you. I’m so pleased for you, keep up with the art too. I really am so chuffed, that’s definitely put a smile on my face today.

Wendy xx

Ern007 profile image
Ern007β€’ in reply toNumptybrain

Thank you Wendy - I was weighing it up this morning, I guess it will be a rigid next time and biopsies, seems they now have a plan round removal is not for me. Another pic will be Saturday or Sunday, maybe a seascape or sunrise, I never know till it starts lol xx

Loopylorre profile image
Loopylorre

Good news for you, that’s great, good their going to be keeping good checks on you too, xx

Ern007 profile image
Ern007β€’ in reply toLoopylorre

Thank you Loopylorre - they really need to have checks, even if they are biopsies. I think my GP will help there xx

JJ_7 profile image
JJ_7

That's great news Ern. I hope the continued treatment is effective and next year this time we have full remission. Looking forward to a painting from you soon ;) Best wishes xxxπŸ’—πŸ’—πŸ’—

Ern007 profile image
Ern007β€’ in reply toJJ_7

Thank you JJ-7 - It needs the treatment to be effective and I hope on a regular basis - There is no tumour but the site of the original one hold sway, was high grade but now low grade. so I expect biopsies will still be part of treatment. xxx;-)

There will be a new painting Saturday or Sunday, maybe more conventional. x

JJ_7 profile image
JJ_7β€’ in reply toErn007

I look forward to seeing it. BTW have you seen the film "The Girl With a Pearl Earing 2003 ? I am a Vermeer fan having seen his work in Delft , The Hague, and Amsterdam. I enjoyed the film immensly (Even though a bit historically inaccurate)

Ern007 profile image
Ern007β€’ in reply toJJ_7

No I have not seen the film. I remember on Google it said with Nexflix and Prime, it was not on my region the message I got, now you jogged my memory I will buy the DVD. When I have seen "The Girl With a Pearl Earing" - I can't help to compare to the "Mona Lisa" - There is a nice story to that "The girl with the Pear earing" was called "The Mona Lisa" of the North because by some as the "The Girl With a Pearl Earing" was second only to the "Mona Lisa"

I know which I prefer!

I think with biographies on film in particular loses some accuracy - The same with Elizabtheth 1 and Van Gogh.

If you ever go to Spain, try Malaga and it's superb Picasso museum, I enjoyed it a lot.

JJ_7 profile image
JJ_7β€’ in reply toErn007

Thanks for the Picasso tip. Im not sure Im fit enough for a trip to Spain but will certainly visit if Im able to. :)x

Ern007 profile image
Ern007β€’ in reply toJJ_7

You and me both - My GP advised me not fly even to the Isle of Man.

Shirleyj profile image
Shirleyj

Good news for you, long may it continue 😊

Ern007 profile image
Ern007β€’ in reply toShirleyj

Thank you Shirley. I think I will be tested and have biopsies every three months or so. :-)

Mooka profile image
Mooka

That’s great news. Long may it continue

Ern007 profile image
Ern007β€’ in reply toMooka

Thank you, I will be checked regular''

Handel profile image
Handel

Brilliant News Ern. Always thinking of you. Love and hugs. Jan xxx

Ern007 profile image
Ern007β€’ in reply toHandel

Thank you Jan, appreciates and Lancashire hugs to you xx

leo60 profile image
leo60

Yay! I'm really happy for you Ern, well done for coping 😊 not sure I would have done!

Btw, I know I am down south, but I have had primroses flowering all winter! Nothing seems to know what time of year it is! xx

Ern007 profile image
Ern007

Thank you Laurie -climate so different down South - I think though over the last few years, with warmer winters everything is possible - I will now have BCG and after that will be biopsies I think, I am in a kind of Limbo lol xx

In a pot but never been indoors
Snowdrops_17 profile image
Snowdrops_17β€’ in reply toErn007

All will be well Ern007πŸ‘ I keep you in my prayers πŸ™πŸ₯°

HerLadyship profile image
HerLadyship

That's really good news....glad to hear it!

Ern007 profile image
Ern007β€’ in reply toHerLadyship

Thank you.

jackdup profile image
jackdup

Congratulaions that is very good news.

Ern007 profile image
Ern007β€’ in reply tojackdup

Thank you, now I know I will get treatment I wanted but, I will need to be tested and probably biopsies, but still this is a good improvement.

Katinka46 profile image
Katinka46

So pleased for you.

And keep those pictures coming.

K xx

Ern007 profile image
Ern007β€’ in reply toKatinka46

Thank you.Katinka46 I will xx

Germantara profile image
Germantara

I'm pleased for you it's good news

Ern007 profile image
Ern007β€’ in reply toGermantara

Thank you Germantara,

Chinadoll81 profile image
Chinadoll81

What is aBCG? Husband has bladder cancer.

Ern007 profile image
Ern007β€’ in reply toChinadoll81

Hi Chinadoll81 , BCG is Immunotherapy - It is a weakened form of the tuberculosis (TB) bacteria live vaccine. BCG stands for "bacille Calmette-Guerin," - I have had three courses of BCG without any problems. Read Link

my.clevelandclinic.org/heal...

watergazer profile image
watergazer

That’s good news Ern. Fingers crossed the cancer doesn’t return x

Ern007 profile image
Ern007β€’ in reply towatergazer

Thank you watergazer. I am hoping it does not return, has changed on me before - But twice since before Christmas it was still there but low grade. That's what i hope it stays at x

MoyB profile image
MoyB

Great news!xx Moy

Threecats profile image
Threecats

Sorry Ern, I’ve not been on the forum for a while, so missed this before. I’m delighted to hear your news that the BCG treatment has worked well for you this time. Long may it continue to do so.

Ern007 profile image
Ern007β€’ in reply toThreecats

Sorry a moth to answer Just seen this. Thank you.

Caspiana profile image
Caspiana

Oh wow. I am so very happy to read this Ern. See ? No expiry date in sight. What did I tell you. This made my day. Long may it last. Very best wishes to you. xx 😁

CDPO16 profile image
CDPO16

Good news Ern, I'm so pleased for you xx

Ern007 profile image
Ern007

Thank you Carole - It means a lot of testing but I don't mind that. How are you Carole, are you any better xx

BronchyBronwen profile image
BronchyBronwen

Really such good news Ern, and long may it continue so. xx 🌷🌷🌷

sandybrown profile image
sandybrown

Hi,

I received a letter from the hospital, all clear.

I can relax now.

Ern007 profile image
Ern007β€’ in reply tosandybrown

Nice one, pleased for you, I was chuffed when it wend to to low grade, I bet you need to relax.

Snowdrops_17 profile image
Snowdrops_17

Good luck for May Ern007! So glad there is no Tumour growth! You have so much to deal with, honestly, but I can see that painting gives you joy darling! I do have some acrylic paint! When I have moved to my new home sometimes in April 2024 and I am sorted out, I might give it a Go! I have seen some of your paintings you have posted, love them all πŸ‘πŸ₯°πŸ’•

Not what you're looking for?

You may also like...

My Bladder Cancer Update.

As I stand now I have my LAST BCG treatment this Thursday, that will be followed in six to eight...
Ern007 profile image
β€’

My Latest Bladder Cancer Update.

I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my...
Ern007 profile image
β€’

Bladder Cancer Update,

A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade,...
Ern007 profile image
β€’

A update on treatment/ and more.

I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into...
Ern007 profile image
β€’

My Cancer and other health issues update.

After months of pretty bad news over my bladder cancer which is high grade and had spread to the...
Ern007 profile image
β€’

Moderation team

See all
AsthmaandLung profile image
AsthmaandLungAdministrator
moderator_AandLUK profile image
moderator_AandLUKAdministrator
Claire_ALUK profile image
Claire_ALUKAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.