Vertigo

[Contra21]

Had anyone suffered vertigo since thyroid removal? Vestibular migraine? I'm bed bound and full of anxiety

[SlowDragon Administrator]

looking at previous posts

You’re currently under medicated for thyroid and now increasing levothyroxine to 125mcg daily

TSH 5.24 mIU/L (.4 - 4) 134.4%

Free T4 (fT4) 14.5 pmol/L (9 - 25) 34.4%

Free T3 (fT3) 4.3 pmol/L (3.5 - 6.5) 26.7%

Aiming for both Ft4 and Ft3 at least 60% through range

Meanwhile your B12 was far too low, likely exacerbated by recent anaesthetic

What vitamin supplements are you taking

Suggest you start on separate B12 initially and add a separate Vitamin B complex after 10-14 days

Low B12 can make you feel very dizzy…..a bit like walking on small rocking boat

Low B12 symptoms

b12deficiency.info/signs-an...

methyl-life.com/blogs/defic...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

When were vitamin D and ferritin levels last tested

Are you taking daily vitamin D continuously

Retest vitamin D now

Your iron is tricky with Thalassemia

But you any still need to increase iron rich foods in your diet

topdoctors.co.uk/medical-ar...

[SlowDragon Administrator]

You may/should see improvement/reduction in ectopic beats as your thyroid and vitamin levels improve

What was last vitamin D test result

Aiming for vitamin D at least over 80nmol (40ng/mL)

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Are you currently taking any magnesium supplement?

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

[SlowDragon Administrator]

With Thalassemia, presumably you should be getting folate levels tested regularly

cdc.gov/ncbddd/thalassemia/....

[Delgor]

Sparklingsunshine - I've tagged as she also has vestibular migraines

[Contra21 in reply to Delgor]

Hope she sees this

[Sparklingsunshine in reply to Contra21]

I was diagnosed with VM last year. I have a history of "normal" migraines since my teenage years. Basically in a nutshell I had a migraine one day, the next day I started experiencing feeling off balance, like walking on a trampoline, visual vertigo, like fast moving tv programmes or computer screens, bright or flashing lights, were a nightmare for me. I also experienced neck pain and pressure.

I never had true vertigo, like I was spinning or the world was spinning, it was more feeling a bit drunk and clumsy. It was better sitting or laying down, worse on standing or walking. VM can often follow on during periods of intense stress. Do you have a history or family history of migraine?

Of course there are other causes of vertigo, anxiety can exacerbate it, a virus that affects the ears like Labrynthitis or vestibular neuritis can be very disabling, BPPV is the most common cause, caused by crystals in the ear canal becoming displaced. Its very easily treated either by GP or at home, by doing the Epley manouvre.

I saw both ENT and Neurology consultants to get my diagnosis. Many GP's aren't very aware of VM as its considered quite specialist. I tried several preventative medications with no success but eventually discovered Venlafaxine which has worked well for me.

[Batty1]

I can 100% relate…. Lost my Thyroid and Migraines have been my best friend and this strange vertigo that makes it impossible for me to walk in the dark or drive… agh!

[Contra21 in reply to Batty1]

How long have you had attacks for?

[Batty1 in reply to Contra21]

I’ve had migraines off and on MORE on then off since my thyroidectomy never had them prior and the odd vertigo that makes driving and walking in the dark for several months now …. I read a blog recently of a women who ticked every issue that I have been having with this weird vertigo and inability to walk or drive in the dark …. Vestibular migraines… so weird.

[Contra21 in reply to Batty1]

Yup vestibular migraine hell on earth

[Batty1 in reply to Contra21]

You have Vestibular Migraines… What are your symptoms?

[Contra21 in reply to Batty1]

I do. Have you been diagnosed?

[Batty1 in reply to Contra21]

No, only connected the dots when I read that ladies blog about it …, do you suffer with odd vertigo and trouble walking in the dark?

[Contra21 in reply to Batty1]

I've had it 10 years. Tips might only be bppv .

[Batty1 in reply to Contra21]

Do you have trouble walking in the dark?

[Contra21 in reply to Batty1]

Yup and the rest!

[Batty1 in reply to Contra21]

What type of medication do you take for it and does it help?

[Contra21 in reply to Batty1]

I do vestibular therapy I'm scared of the meds but do get diagnosed 1st . Can you sleep

[Batty1 in reply to Contra21]

Yes I sleep pretty well … My biggest issue is not being able to walk in the dark … it’s maddening and dangerous.

[Contra21 in reply to Batty1]

I wish that was my only symptom . Walk every day strengthen your valnce be out in nature

[Batty1 in reply to Contra21]

Sadly I developed Psoriatic Arthritis after my Thyroidectomy so walking isn’t that easy for me anymore and with my wonky balance it’s definitely not safe … I stationary bike for 2 hours a day 7 days a week.

[Contra21 in reply to Batty1]

Arthritis caused by no thyroid?

[Batty1 in reply to Contra21]

My Rheumatologist believes the combination of the thyroidectomy and the medication I was on to treat my psoriasis that I was made to stop taking caused my Psoriatic Arthritis flare …. Prior to my Thyroidectomy I did not suffer any type of joint issues actually I was super fit and extremely active and then my life and health took a nose dive I spent almost 2 years house bound and bed ridden from this psoriatic arthritis flare…. Now I can’t walk in the dark.. annoying!