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Dry eye syndrome
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UK Hospitals-Dopamine Agonists
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
I just had an appointment with a head pharmacist at St George's hospital in Tooting, London about my next MS drug treatment.We somehow got onto the subject of RLS and he surprised me by actually knowing about the disease and that dopamine agonists are bad news. He said that St George's do NOT prescribe
Joolsg
in
Restless Legs Syndrome
6 months ago
The answer I received from my concern about the treatments on the RLS Foundation website
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
My email to Karla Dzienkowski, who is Executive Director of the Restless Legs Syndrome Foundation: Recently a post on the forum indicated that Dr. John Winkleman has set up a site for health professionals to learn about RLS at rlscurbside.org/resources/. Naturally I went out there and was quite disturbed
SueJohnson
in
Restless Legs Syndrome
6 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
1 month ago
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Horizant
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
Hi everyone and Sue Johnson. I'm wondering if Horizant is the same as Pregabalin? I guess it is a stronger version of gabapentin. I have tried it and it seems to work pretty good for me.
DocCookie
in
Restless Legs Syndrome
1 month ago
Duloxetine - restless legs
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Hi, I am on Duloxetine 60 mg and Trazadone 100 mg. Since going on the Duloxetine my RLS seems to be worse. I don’t really want to give it up right now as I have only been on it 3 weeks and since I have tried several anti-depressants I want to give this one a fair go. The Trazadone helps me sleep a
Chamie
in
Restless Legs Syndrome
6 months ago
Eye Prescription change
hi everyone, just come from the opticians today and my prescription as changed from R -1.25 / L -2.25 last time I went about 18 months ago to today R -1.75 / L - 2.75. I’m on Brinzolamide & Ganfort eye drops for Glaucoma. Last check up was last month and the eye hospital were happy and back in 6 months
hi everyone, just come from the opticians today and my prescription as changed from R -1.25 / L -2.25 last time I went about 18 months ago to today R -1.75 / L - 2.75. I’m on Brinzolamide & Ganfort eye drops for Glaucoma. Last check up was last month and the eye hospital were happy and back in 6 months
Welshsailor
in
Glaucoma UK
4 months ago
The problem with Buprenorphine, BTBD9 and serotonin syndrome
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
Typicallygaslit
in
Restless Legs Syndrome
6 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
7 months ago
Medical cannabis for RLS/PLMD
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Has anybody tried and had good results with Medical Cannabis for RLS/PLMD. Looking at this in case Buprenorphine does not work. So far on 0.4 sublingual tablet, severe side effects during day and not working at night now!! Worked for first 3 nights. Beginning to think that husband cannot take any prescribed
Ephemera
in
Restless Legs Syndrome
6 months ago
Achille, fingers and now eye Inflammation need hope it will stop.
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Hi. I'm counting the days to see the rhumathologist. I'm starting to get really discourage. The list of problem can't stop getting longer. I got 5 day only of prednisone for my achille tendonitis. It's was the best days of my last two years. But as soon as it stop the pain and stiffness come back and
Shadow35
in
NRAS
7 months ago
GCA and hair loss
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in a week Mon. and stay on it for 2 weeks, etc. then down by l0% every 2 weeks if all holds. I am losing my hair. Will taking folic acid help?
Groda
in
PMRGCAuk
8 months ago
medication timing???
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
I am now almost 4 weeks free of Pramipexole 😀 I feel like I am over the worst ( back from hell) but I’m now religiously waking at 11pm then again at 12pm (and sometimes at 1am) with RLS. I have a 10 minute walk around the house and this does ease my pain. I am slowly increasing my Gabapentin dose and
Cookiebum24
in
Restless Legs Syndrome
2 months ago
Restless leg syndrome
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
I have been taking 1 or 2 mg ropinorole for about 5 years. It worked sometimes, my Doctor started giving me 5/325 hydrocodone which has helped me ALOT. It seems if I walk a lot or have a lot of stress my legs get bad at night. At least I know that I will make it through the night. I also take trazadone
Lynnygrl
in
Restless Legs Syndrome
6 months ago
pregabalin vs buprenorphine
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
I’ve been off pramipexole for a bit over two weeks. I had a fairly easy transition off it thanks to buprenorphine and cannabis, along with pointers picked up here about iron supplements, diet, etc. I started pregabalin but stopped taking it after 10 days or so because of the comments about it not fully
707twitcher
in
Restless Legs Syndrome
6 months ago
Mouth dryness no saliva
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
Hi all,Spoke to the Rheumatology nurse today ,was suggesting sprays a d pastilles for saliva replacement. But I want to know what any of you has use or have actually come across that is beneficial as a saliva replacement in day time and at night. Problem has is I have already have problems with my
KnitSewPurl
in
LUPUS UK
8 months ago
Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
8 months ago
Suboxone's side effects
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
Hi, I have been taking Suboxone for almost two and half months now without too much undesirable effects, but lately all of a sudden my blood pressure goes up to 170 systole after I take Suboxone and I also experience heart palpitation. My blood pressure usually ranges from 110 systole so I am not sure
halperinchen
in
Restless Legs Syndrome
6 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
8 months ago
SERTRALINE VERSUS TRAZODONE
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
I have been weaning myself off Sertraline and am now down from 75mg to 25mg daily. It has at times, been a torturous process. I was recommended by Sue to try Trazodone instead of Sertraline so that was why I began weaning off it. However, on reading the leaflet for Trazodone the side effects are quite
Lettucenotforget
in
Restless Legs Syndrome
6 months ago
My profile
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly positive. Not getting enough sleep however. At present a lot of mental discomfort with buzzing at the sides of my head /where I suspect the arteries
BillCapita
in
PMRGCAuk
6 months ago
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