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DBS journey
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
jeeves19
in
Cure Parkinson's
7 months ago
'Abnormal' TSH result
Just received online results of my recent annual blood test. I have Hashimoto's (16 years) and on levothyroxine. Serum Free T4 14pmol/L [9-23] Serum Free T3 4.3pmol/L [2.4-6] TSH 0.18 [0.3 - 4.2] - with a note of 'abnormal - need to speak to doctor. I know they will be pressing for me to
Just received online results of my recent annual blood test. I have Hashimoto's (16 years) and on levothyroxine. Serum Free T4 14pmol/L [9-23] Serum Free T3 4.3pmol/L [2.4-6] TSH 0.18 [0.3 - 4.2] - with a note of 'abnormal - need to speak to doctor. I know they will be pressing for me to
Kacey12
in
Thyroid UK
9 months ago
Foslevodopa-Foscarbidopa (Vyalev)
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
7 months ago
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DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
7 months ago
LCHF / IF for August?
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Hi all The title means Low Carbohydrate High Fat / Intermittent fasting. Both are ways of eating that can help people loose weight without the need to count calories or eat less and without the need to go hungry. Both ways of eating can also help to ease several health conditions. IF and LCHF work
Professor-Yaffle
Visitor
in
Weight Loss Support
9 months ago
Recent Blood results - your advice
I have been on Levothyroxine now for about 6 weeks. My results are as follows: I got tested at 8.50 am and hadn't taken any medication from the morning before at 6am. I ate nothing before test. I felt good for a few days but feel as bad as ever again - just low mood and tired and no energy. I was
I have been on Levothyroxine now for about 6 weeks. My results are as follows: I got tested at 8.50 am and hadn't taken any medication from the morning before at 6am. I ate nothing before test. I felt good for a few days but feel as bad as ever again - just low mood and tired and no energy. I was
Sunflower535
in
Thyroid UK
9 months ago
Crockpot recipes
Hello, as a heart attack surviver I am on a wholefood, low carb, low sugar campaign and with the above and intermittent fasting ( GP approved)I am 2 stone lighter than when I came out of hospital on 3d March this year . I am looking for some good recipe ideas for a Crockpot! It's my latest toy and I'm
Hello, as a heart attack surviver I am on a wholefood, low carb, low sugar campaign and with the above and intermittent fasting ( GP approved)I am 2 stone lighter than when I came out of hospital on 3d March this year . I am looking for some good recipe ideas for a Crockpot! It's my latest toy and I'm
Instructor57
in
Healthy Eating
9 months ago
Just look at this guy! 70 years old...
I wasn't convinced of the usefulness of micro workouts throughout the day, I always thought you needed to do it all in one go. Then I discovered this guy... 70 years old and looking GOOD!! Lots of useful tips here. He also follows a low carb diet and practises intermittent fasting, but that's by the
I wasn't convinced of the usefulness of micro workouts throughout the day, I always thought you needed to do it all in one go. Then I discovered this guy... 70 years old and looking GOOD!! Lots of useful tips here. He also follows a low carb diet and practises intermittent fasting, but that's by the
Curlygurly2
in
Strength & Flex
9 months ago
"BREAKTHROUGH" device approved by FDA for PD
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
PDWarrior1900
in
Cure Parkinson's
7 months ago
Optimizing Thyroid Hormones for Better Results on Low-Carb Diets Interview Amy Berger
https://youtu.be/ZE6-FHf-0oY Please check it out. Very interesting information especially for the new members of this community
https://youtu.be/ZE6-FHf-0oY Please check it out. Very interesting information especially for the new members of this community
olgadimitri
in
Thyroid UK
9 months ago
Week 1 done
Well, this time last week I had no idea that I may have kidney disease, no symptoms, that I have slightly raised glucose, (how can that be when I don’t drink, avoid all sugars, eat very low carb??🤷♀️) bmi too high etc etc. Having got over the initial huge shock I have just completed week 1 and even
Well, this time last week I had no idea that I may have kidney disease, no symptoms, that I have slightly raised glucose, (how can that be when I don’t drink, avoid all sugars, eat very low carb??🤷♀️) bmi too high etc etc. Having got over the initial huge shock I have just completed week 1 and even
AmItooOld
in
Couch to 5K
9 months ago
A DNA test, a book and a diet - my AFib Eureka moment !
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my Afib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone Afib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my Afib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone Afib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
Dyldog
in
Arrhythmia Alliance
10 months ago
A DNA test, a book and a diet - AFib Eureka moment !
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my AFib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone AFib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
First I wanted to say what a fantastic group this is and just how much it has supported, reassured and lifted me on my AFib journey, it’s been invaluable I’m a 61 year old woman with paroxysmal lone AFib, possibly SVT too. My story in brief is that I was diagnosed 3 years ago after my Fitbit showed
Dyldog
in
AF Association
10 months ago
Is going gluten free worth it and achievable?
Hi, lots of times I see advice here to go gluten free. Be really interested to hear what people think. Is it’s really worth it and is it achievable? At the moment I’m far from gluten free. I love wholewheat pasta and sourdough. I tested negative for celiac disease but my genes were analyzed as part
Hi, lots of times I see advice here to go gluten free. Be really interested to hear what people think. Is it’s really worth it and is it achievable? At the moment I’m far from gluten free. I love wholewheat pasta and sourdough. I tested negative for celiac disease but my genes were analyzed as part
Hashiboy
in
Thyroid UK
10 months ago
Gluten free diet
I notice that a strictly gluten free diet is often recommended on this forum. What is the reason, and does it apply to both hyper and hypothyroidism?
I notice that a strictly gluten free diet is often recommended on this forum. What is the reason, and does it apply to both hyper and hypothyroidism?
TLVR
in
Thyroid UK
10 months ago
Not recurred in almost 5 years
I got regular bursts of self-resolving Afib since the age of 19, ten minutes here and there. During this time I was chronically low carb dieting and overexercising. My longest episode was in 2019, at age 29, where I woke up in it. Went to A&E and it self resolved about 10 hours later. Had PACs/PVCs since
I got regular bursts of self-resolving Afib since the age of 19, ten minutes here and there. During this time I was chronically low carb dieting and overexercising. My longest episode was in 2019, at age 29, where I woke up in it. Went to A&E and it self resolved about 10 hours later. Had PACs/PVCs since
LordAmongWolves
in
AF Association
10 months ago
At a low
I am feeling absolutely awful. Headache, glands in neck throbbing, upset stomach and weak/achey. Can hardly lift my arm up but it aches.Bloods posted last month looked ok apart from Vit D which I am taking (with K2) Day 5 of gluten free diet. I don't know where to go from here I feel so awful. Taking
I am feeling absolutely awful. Headache, glands in neck throbbing, upset stomach and weak/achey. Can hardly lift my arm up but it aches.Bloods posted last month looked ok apart from Vit D which I am taking (with K2) Day 5 of gluten free diet. I don't know where to go from here I feel so awful. Taking
Lolalottie
in
Thyroid UK
10 months ago
When will we reconcile with the fact that there is no cure now? Possibly never?
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
This is a vent. Sorry for this, but I am frustrated with the disease and the daily stress of living with it. People don't understand what we're going through and have limited patience with our strange condition. Family and friends who observe us at close quarters start to form their own opinions about
pdpatient
in
Cure Parkinson's
8 months ago
DBS and balance
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
My left side is amore severe than right hence the voltage is higher and more contact points . My body tends to tilt to the right’ and I tend to fall backward on the right, My neurologist tried to reduce the frequency, it helps with the balance but not so good at reducing stiffness. Any insight?
limcheeese22
in
Cure Parkinson's
8 months ago
Too much C\L worsens symptoms?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
Dx 6 years ago DBS 3 years ago . lately take extra dose for some occasions, my body becomes more tense, stiffer and slower no dskynesia though then I take another dose to address it ,sometimes work sometimes don’t, it confuses me, Does anyone have experience to share?
limcheeese22
in
Cure Parkinson's
8 months ago
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