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Traveling to France and Germany
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
kdr112
in
Asthma Community Forum
2 years ago
Moving and recent Drs visits
Well finally hit our time frame, listed our house, and moved. It’s been a stressful few weeks but it’s over and I’m thankful. Just before that we went to UCLA and saw quite a few Drs so heres how it went: Rheumy 1 : thinks Lupus is attacking my right knee. She said something about it being different
Well finally hit our time frame, listed our house, and moved. It’s been a stressful few weeks but it’s over and I’m thankful. Just before that we went to UCLA and saw quite a few Drs so heres how it went: Rheumy 1 : thinks Lupus is attacking my right knee. She said something about it being different
JennaShi
in
LUPUS UK
2 years ago
IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
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Can You Damage Your Ablation Work By Over-Exertion After 5 Months?
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
I had a Cyro Ablation on March 16 of this year so it has been 5 months. (Today is August 19.) On April 13, I was taken off Flecainide and then put on a two-week Zio monitor on June 30 to see how effective the ablation was at least at that point. On June 23 I had one Afib episode lasting about 4 hours
willec49
in
Arrhythmia Alliance
2 years ago
RLS specialists in the Midlands/North West
I am based in Shrewsbury. Can anyone recommend a neurologist in the Midlands / North West/ North Wales area who is expert in RLS. After 20 years of managing the condition primarily using exercises and codydramol ( and trying many other substances etc) it has now deteriorated to the extent I need a more
I am based in Shrewsbury. Can anyone recommend a neurologist in the Midlands / North West/ North Wales area who is expert in RLS. After 20 years of managing the condition primarily using exercises and codydramol ( and trying many other substances etc) it has now deteriorated to the extent I need a more
thewanderer
in
Restless Legs Syndrome
2 years ago
Sleep Apnoea!
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
Some will remember that I have posted a few times about my trouble with sleeping, especially withdrawing from Amitriptyline when that wasn’t helping the sleep any more. Well, it appears that I have moderate sleep apnoea. My sleep is disturbed over 19 times per hour! This has led to me having to get
suzy1959
in
PMRGCAuk
2 years ago
Possible Electricity Black Outs this Winter in the UK
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Good afternoon everyone, As well as all the rising fuel cost can I please ask what people have in place that need to use cpap and Nivi machines everyday/night? Just in the worst case event that there possibly may need to be Electricity Black-Outs anytime this winter? I am already listed with my electric
Joseph260268
in
Lung Conditions Community Forum
2 years ago
THC O- a 1 person mini experiment
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
I got my THC O in the mail last Monday and have taken it all week. Here are my personal conclusions. Keep in mind this is just my experience. It may differ for others. DOES IT WORK: Yes. It seems to have the same efficacy, mg to mg, as normal THC. WOULD I RECOMMEND IT: No. Not if you have other options
Guitarpickin
in
Restless Legs Syndrome
2 years ago
immunotherapy Provenge and THC
I use a THC vape pen or grass to help me sleep each night, a couple of puffs. Not medical THC. I have seen some studies showing issues with THC and immunotherapy. Because THC reduces inflammation it can work at cross purposes with the immunotherapy. I will be starting provenge in the next couple of
I use a THC vape pen or grass to help me sleep each night, a couple of puffs. Not medical THC. I have seen some studies showing issues with THC and immunotherapy. Because THC reduces inflammation it can work at cross purposes with the immunotherapy. I will be starting provenge in the next couple of
de-luke
in
Advanced Prostate Cancer
2 years ago
Lung reduction.
Hi, I'm new to the forum. I got diagnosed with COPD by my GP last October after a chest x-ray. GP referred me to the lung medicine clinic, luckily got an appointment in January. My fev1 was 19% which explained why I was struggling. I didn't get to see my consultant at the appointment unfortunately. Prescribed
Hi, I'm new to the forum. I got diagnosed with COPD by my GP last October after a chest x-ray. GP referred me to the lung medicine clinic, luckily got an appointment in January. My fev1 was 19% which explained why I was struggling. I didn't get to see my consultant at the appointment unfortunately. Prescribed
jacic64
in
COPD Friends
2 years ago
Besremi - CBC after the 11th dose kept at 175mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 11th dose (results of 7/19/2022; 1st dose results was on 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Uniphyllin Continus 400mg
Hi everyone. Is any one else having trouble getting Uniphyllin Continus 400mg? I'm meant to take one, twice a day, but my chemist says that there are none available. I'm having to take two 200mg twice a day now, which obviously, is more expensive to the NHS. It's not really a big problem but, are they
Hi everyone. Is any one else having trouble getting Uniphyllin Continus 400mg? I'm meant to take one, twice a day, but my chemist says that there are none available. I'm having to take two 200mg twice a day now, which obviously, is more expensive to the NHS. It's not really a big problem but, are they
Dave_H1
in
COPD Friends
2 years ago
For the THC curious-especially in places where it is illegal
Just this morning I learned of a new product hitting the market. It’s THC O. Because it’s new it is not yet illegal and maybe, hopefully it never will be. I’ve never tried THC O and can’t vouch for it. But I learned about it in an email from Premium Jane, which is a great company, making clean, lab tested
Just this morning I learned of a new product hitting the market. It’s THC O. Because it’s new it is not yet illegal and maybe, hopefully it never will be. I’ve never tried THC O and can’t vouch for it. But I learned about it in an email from Premium Jane, which is a great company, making clean, lab tested
Guitarpickin
in
Restless Legs Syndrome
2 years ago
moving my cardiology care from Barts to Lincoln. Being tested for Sleep Apnoea.
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
we moved here ( a couple of miles from Lincoln cathedral) from East London 6 months ago. I have sick sinus brady/tachy23 years, been previously looked after by prof Schilling and team at Barts, so was concerned how the transfer would work. I am on my 3rd pacemaker which is monitored by ep's at Barts
Icenae
in
Atrial Fibrillation Support
2 years ago
CBD and Palmitoylethanolamide might not go together (or maybe they do)
So 3 out of the last 9 nights I have had minor RBD episodes. That is a lot for me. And it made me think about the fact that I have been on Palmitoylethanolamide for over a month, and then about a week ago I started having CBD also before going to bed. And this made me remember something I read about
So 3 out of the last 9 nights I have had minor RBD episodes. That is a lot for me. And it made me think about the fact that I have been on Palmitoylethanolamide for over a month, and then about a week ago I started having CBD also before going to bed. And this made me remember something I read about
Bolt_Upright
in
Cure Parkinson's
2 years ago
Besremi - CBC after the 9th dose at 175 mcg (25mcg lower than previous); no CBC test after the 8th dose
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 9th dose (results of 6/23/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
Just got CPAP
Just received a CPAP this week after several months wait. Tried it the first night using a full mask. Stopped using after 1 hour because of sore throat, sore nasal lining. Too dry! Will try to use on a Friday night with higher humidity setting. My history: major LAD heart attack with complications 23
Just received a CPAP this week after several months wait. Tried it the first night using a full mask. Stopped using after 1 hour because of sore throat, sore nasal lining. Too dry! Will try to use on a Friday night with higher humidity setting. My history: major LAD heart attack with complications 23
Haresear55
in
Sleep Matters
2 years ago
Any one have experience using CPAP? Please help!
I awoke with a headache yet again. All night I was up and down. I've been diagnosed with obstructive sleep apnea and am awaiting a cpap machine. I attempt to change my sleeping position to help, but it doesn't always work. Sleeping sitting up helps sometimes, but not always. I'm probably just moaning
I awoke with a headache yet again. All night I was up and down. I've been diagnosed with obstructive sleep apnea and am awaiting a cpap machine. I attempt to change my sleeping position to help, but it doesn't always work. Sleeping sitting up helps sometimes, but not always. I'm probably just moaning
ClaireMotley87
in
Sleep Matters
2 years ago
Medical Marijuana and RLS, but mostly PLMD
Has anyone had any success with Legal THC in treatment mostly PLMD. Periodic Limb Motion Disorder?
Has anyone had any success with Legal THC in treatment mostly PLMD. Periodic Limb Motion Disorder?
Wanman4
in
Restless Legs Syndrome
2 years ago
Besremi - CBC and CMP after the 7th dose kept at 200mcg
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 7th dose (results of 5/25/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Just want to share my Besremi experience for anything to be learned from it. Above picture shows my CBC after the 7th dose (results of 5/25/2022; 1st dose results was 2/18/2022). HISTORY: Diagnosed with PV 4 years ago; JAK2 positive with very low erythropoeitin; I am now 64 years old; Only phlebotomy
Pat032018
in
MPN Voice
2 years ago
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