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The mother of all flares!
I have been having my worst flare ever in the 10 plus years of PMR. I have increased pred to 22.5 from 11 mgs and it is still not yet fully under control. I wish I had increased my dose more quickly but I had no idea it was this bad. I don't usually have blood tests for CRP but this week it was 43 and
I have been having my worst flare ever in the 10 plus years of PMR. I have increased pred to 22.5 from 11 mgs and it is still not yet fully under control. I wish I had increased my dose more quickly but I had no idea it was this bad. I don't usually have blood tests for CRP but this week it was 43 and
suzy1959
in
PMRGCAuk
2 years ago
Medical Cannabis and Liver Fibrosis
I am wondering if it safe to use a small amount of Medical MJ such as a gummy with CBD, CBN and THC for pain and sleep at night. The doctor didn't comment when I told her that I was taking a small amount. Has anyone had any experience with this? I don't want to make things worse.
I am wondering if it safe to use a small amount of Medical MJ such as a gummy with CBD, CBN and THC for pain and sleep at night. The doctor didn't comment when I told her that I was taking a small amount. Has anyone had any experience with this? I don't want to make things worse.
Nonotnash2022
in
Living with Fatty Liver and NASH
2 years ago
Cannabis and RLS
what experience have people had with CBD oils. Cannabis without THC. Does it help with sleep, hot feet or RLS?
what experience have people had with CBD oils. Cannabis without THC. Does it help with sleep, hot feet or RLS?
Kampan
in
Restless Legs Syndrome
2 years ago
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Go back on Pramaprexol?
I was on Miropex/Pramaprexol for 15 years for RLS until I augmented late 2021. I phased out the Pramapexol slowly as recommended by this site and Mayo Clinic(complete hell),as I began Gabapentin. I hated the side effects so switched to Pregabalin,which I also hated. I now take 100 MG of Tramadol
I was on Miropex/Pramaprexol for 15 years for RLS until I augmented late 2021. I phased out the Pramapexol slowly as recommended by this site and Mayo Clinic(complete hell),as I began Gabapentin. I hated the side effects so switched to Pregabalin,which I also hated. I now take 100 MG of Tramadol
SteveWess
in
Restless Legs Syndrome
2 years ago
I have heart anxiety.
I currently have a cold which really triggers my anxiety. I also recently started cpap treatment also (it's on hold while I get through this). My issues right now are feeling sick but no runny nose, cough, or fever. So my anxiety is that it's something else and not a cold. That of course makes me think
I currently have a cold which really triggers my anxiety. I also recently started cpap treatment also (it's on hold while I get through this). My issues right now are feeling sick but no runny nose, cough, or fever. So my anxiety is that it's something else and not a cold. That of course makes me think
GP76
in
Anxiety Support
2 years ago
Hi. Anyone got any info, please on whether THC oil and/or CBD oil might be helpful with AFib?
Dealing with the symptoms and the anxiety.
Dealing with the symptoms and the anxiety.
Pump
in
AF Association
2 years ago
Living with Fibromyalgia
Good day. Its great hearing that I'm not the only one living with this awful condition. Some days I feel normal and the next useless. What happened?! I was always happy to be busy and take on jobs. Help at school. A business woman. Ran my own home bakery. My children are still young and need
Good day. Its great hearing that I'm not the only one living with this awful condition. Some days I feel normal and the next useless. What happened?! I was always happy to be busy and take on jobs. Help at school. A business woman. Ran my own home bakery. My children are still young and need
mishjas01
in
Fibromyalgia Action UK
2 years ago
Newbie, hi
I'm 60. I was diagnosed 1 month ago with RLS. I've had symptoms since I was about 13 years old. I'm taking Pregabalin and have just moved onto my clinical dose. I'm not enjoying the side effects but hope they will pass. My life has been one of dealing with excessive daytime sleepiness, mental health
I'm 60. I was diagnosed 1 month ago with RLS. I've had symptoms since I was about 13 years old. I'm taking Pregabalin and have just moved onto my clinical dose. I'm not enjoying the side effects but hope they will pass. My life has been one of dealing with excessive daytime sleepiness, mental health
AsleepInYorkshire
in
Restless Legs Syndrome
2 years ago
cpap feels like the air is less clear … stuffy … even more stuffy than breathing without it on ?
my cpap makes the air I’m breathing feel very stuffy … not quite got to grips with this …. As I’m new to this I’m wondering could it be a machine problem …. I sort of thought my air would feel clear … sorry for so many questions …. I’ve washed tubing and filter btw…
my cpap makes the air I’m breathing feel very stuffy … not quite got to grips with this …. As I’m new to this I’m wondering could it be a machine problem …. I sort of thought my air would feel clear … sorry for so many questions …. I’ve washed tubing and filter btw…
Delilahmy
in
Sleep Matters
2 years ago
still struggling with machine and mask
had the cpap for almost a month now and seem to have 2 bad nights and one ok night. Have only felt the benefit for one day …. When I felt like I didn’t need a daily sleep. Still with the nose mask and still struggling with comfort… I don’t want to moan and I am persevering but wonder if something
had the cpap for almost a month now and seem to have 2 bad nights and one ok night. Have only felt the benefit for one day …. When I felt like I didn’t need a daily sleep. Still with the nose mask and still struggling with comfort… I don’t want to moan and I am persevering but wonder if something
Delilahmy
in
Sleep Matters
2 years ago
RLS/PLMs and treatment
I would like to share information concerning my health particularly in relation to RLS/PLMs hoping that others with the condition may be helped. My experience of RLS could go back to my teens when, whilst seated and playing cards with my brother, we would both be moving our legs quite rapidly, toes
I would like to share information concerning my health particularly in relation to RLS/PLMs hoping that others with the condition may be helped. My experience of RLS could go back to my teens when, whilst seated and playing cards with my brother, we would both be moving our legs quite rapidly, toes
Eccleston
in
Restless Legs Syndrome
2 years ago
Improvement in fatigue
I'm what the sleep doctors call, "a long sleeper," sleeping on average 11 hours a night. A year ago my kidneys failed due to an allergic reaction to medicine and I've been in stage 4 CKD since. One of the worst side effects for me was the added fatigue. My primary care physician suggested that
I'm what the sleep doctors call, "a long sleeper," sleeping on average 11 hours a night. A year ago my kidneys failed due to an allergic reaction to medicine and I've been in stage 4 CKD since. One of the worst side effects for me was the added fatigue. My primary care physician suggested that
Kidneybetter
in
Kidney Disease
2 years ago
hello this is my first post just diagnosed with sleep apnea
just starting with cpap machine and in second week … had basal mask which struggled with the seal so changed to face mask which I struggled more with… uncomfortable and seal leaking … can’t seem to settle apart from 2 ok nights. Still feeling so fatigued during the day. Added a humidifier but used
just starting with cpap machine and in second week … had basal mask which struggled with the seal so changed to face mask which I struggled more with… uncomfortable and seal leaking … can’t seem to settle apart from 2 ok nights. Still feeling so fatigued during the day. Added a humidifier but used
Delilahmy
in
Sleep Matters
2 years ago
ICU and teeth/dental hygiene gums
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Hello, this might seem a strange one, given all the other major after-effects of intensive care, but I got a bit of a shock yesterday to be told I have gum disease. Given my regular daily brushing it was a bit of a shock When I thought about it I realised I did not brush my teeth for nearly three
Gooddaysunshine
in
ICUsteps
2 years ago
Cisplatin based chemotherapy and neck irradiation for cancer has caused Parkinsonism/MSA symptoms in my husband and no diagnosis yet. Help.
My husband received treatment for head and neck cancer 10 years ago. He’s in remission but the long term effects have caused problems. Now, he struggles with severe orthostatic hypotension; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing
My husband received treatment for head and neck cancer 10 years ago. He’s in remission but the long term effects have caused problems. Now, he struggles with severe orthostatic hypotension; dizziness when standing up and labile blood pressure when sleeping. It’s hard to determine why his swallowing
Jillian100
in
Multiple System Atrophy Trust
2 years ago
Newly diagnosed
My profile has pertinent info. 63 yrs old. Just diagnosed in April with stage IV, mets in 6 spots on bones. Starting Docetaxel in 10 days. Any suggestions on minimizing side effects. Planning to use ice packs for hands and feet. Anything else? THC products for nausea? Thanks
My profile has pertinent info. 63 yrs old. Just diagnosed in April with stage IV, mets in 6 spots on bones. Starting Docetaxel in 10 days. Any suggestions on minimizing side effects. Planning to use ice packs for hands and feet. Anything else? THC products for nausea? Thanks
rsgdmd
in
Advanced Prostate Cancer
2 years ago
Did anyone here know that Sleep Apnea can cause AF?
hubby has had AF for 3years.not really doing well. Originally it was off and on. Didn't see a consultant for 2years as he had left for Machester(UK)Cardiology. Finally it all came to ahead and has had 1 ablation (failed) in May 2022. Put on amiadarone till next ablation August (2022). That failed
hubby has had AF for 3years.not really doing well. Originally it was off and on. Didn't see a consultant for 2years as he had left for Machester(UK)Cardiology. Finally it all came to ahead and has had 1 ablation (failed) in May 2022. Put on amiadarone till next ablation August (2022). That failed
Billybobjo1234
in
AF Association
2 years ago
Traveling to France and Germany
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
Hello all! I have a wonderful opportunity to travel to France and Germany in early October. It’s been a dream of mine to travel abroad but I’m overwhelmed with all the paraphernalia I have to take; medicines for my asthma, emergency meds, cpap, etc. I’m unsure of the weather during that time and other
kdr112
in
Asthma Community Forum
2 years ago
Moving and recent Drs visits
Well finally hit our time frame, listed our house, and moved. It’s been a stressful few weeks but it’s over and I’m thankful. Just before that we went to UCLA and saw quite a few Drs so heres how it went: Rheumy 1 : thinks Lupus is attacking my right knee. She said something about it being different
Well finally hit our time frame, listed our house, and moved. It’s been a stressful few weeks but it’s over and I’m thankful. Just before that we went to UCLA and saw quite a few Drs so heres how it went: Rheumy 1 : thinks Lupus is attacking my right knee. She said something about it being different
JennaShi
in
LUPUS UK
2 years ago
IS HE GOING TO SLIDE OUT OF THIS ONE?!
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
My friends may remember that in June 2021 I went to have a pacemaker inserted. During the procedure I suffered a pneumothorax which was not acted on for 3 hrs. In consequence I went into collapse and respiratory failure and my children were summoned because they gave me 10 mins to live. Due to my b.
Hidden
in
Lung Conditions Community Forum
2 years ago
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