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Experiences with
D-bifunctional protein (DBP) deficiency
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Newbie - Should I be considering supplements?
Hi. After months of feeling rubbish I finally got a diagnosis of under active thyroid yesterday and have started on 50 mcg of Levothyroxine today. My GP didn't mention any additional blood testing for vitamin deficiencies. Is this something I should be requesting? Should I be considering taking additional
Hi. After months of feeling rubbish I finally got a diagnosis of under active thyroid yesterday and have started on 50 mcg of Levothyroxine today. My GP didn't mention any additional blood testing for vitamin deficiencies. Is this something I should be requesting? Should I be considering taking additional
AliDo
in
Thyroid UK
11 years ago
DBS
Has anyone any experience of DBS at the QMC Nottingham Uk? I am about to start on the path to DBS and am trying to get as much info as possible. Thanks
Has anyone any experience of DBS at the QMC Nottingham Uk? I am about to start on the path to DBS and am trying to get as much info as possible. Thanks
hairnet
in
Cure Parkinson's
11 years ago
B 12 AND ANTIGENS CARRIED BY RH POSITIVE BLOOD TYPES
I am looking for the name of the test used to detect level of working B12 as opposed to B12 in the pool? I am B RH Positive type with below minimum levels of ferritin for the past five years. Complete Blood Count (CBC) has shown microcytosis and hypochromia consistent with IDA (iron deficiency
I am looking for the name of the test used to detect level of working B12 as opposed to B12 in the pool? I am B RH Positive type with below minimum levels of ferritin for the past five years. Complete Blood Count (CBC) has shown microcytosis and hypochromia consistent with IDA (iron deficiency
Hidden
in
Pernicious Anaemia Society
11 years ago
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to ndt or wait a little longer.
Hello, I've had a plan for this year which I accept I may not follow, but I am setting out a plan so that I remain positive. I have felt unwell since october, and since have had my levo increased, my plan is get to optimum with levo, check in on how I feel then try ndt if I don't feel fully recovered
Hello, I've had a plan for this year which I accept I may not follow, but I am setting out a plan so that I remain positive. I have felt unwell since october, and since have had my levo increased, my plan is get to optimum with levo, check in on how I feel then try ndt if I don't feel fully recovered
Hidden
in
Thyroid UK
11 years ago
Brain Hospital-Channel 5 29/01 10pm
Hi all, for those in the uk, a programe filmed at The walton Centre in Liverpool last year is to be broadcast on Tuesday 29th January at 10pm Channel 5, this is the first of four programes.My wife and myself were filmed (not sure if this footage was used though) as epilepsy is covered. DBS
Hi all, for those in the uk, a programe filmed at The walton Centre in Liverpool last year is to be broadcast on Tuesday 29th January at 10pm Channel 5, this is the first of four programes.My wife and myself were filmed (not sure if this footage was used though) as epilepsy is covered. DBS
Paul72
in
Epilepsy Action
11 years ago
Brain Hospital-Channel 5 29/01 10pm
Hi All, this program might be of interest to some,filmed at The Walton Centre,Liverpool.My wife has severe epilepsy and we was filmed in clinic (not sure if they used this footage).It will be an eye opener to many and maybe give new hope. DBS (deep brain stimulation) is shown in the 1st program
Hi All, this program might be of interest to some,filmed at The Walton Centre,Liverpool.My wife has severe epilepsy and we was filmed in clinic (not sure if they used this footage).It will be an eye opener to many and maybe give new hope. DBS (deep brain stimulation) is shown in the 1st program
Paul72
in
Epilepsy Research Institute
11 years ago
Is DBS the miracle they say it is?
I've seen so many videos of people that have had DBS and it doesn't look like the cure-all they claim it to be. Most of the patients look like they've had a stroke or a slowness of reaction in mind and body. Why is there not more information on what can go wrong? OR am I expecting too much?There has
I've seen so many videos of people that have had DBS and it doesn't look like the cure-all they claim it to be. Most of the patients look like they've had a stroke or a slowness of reaction in mind and body. Why is there not more information on what can go wrong? OR am I expecting too much?There has
4809cats
in
Cure Parkinson's
11 years ago
THE SLEEP MACHINE CAPITAL IDEA capital
THE CONTENT OF WHAT IS WRITTEN IS WHAT MATTERS BE IT CAPITALS OR WHATEVER, CAPITALS ARE EASIER TO READ ,,,,,, THEY ARE BIGGER when your eyesight worsens S.F.A TO DO WITH SHOUTING,, AH SAID SWEET FANNY ADAMS BUT SOME PEOPLE if it says india on the tyres, INDIA IS WHERE THEYRE GOIN AS we
THE CONTENT OF WHAT IS WRITTEN IS WHAT MATTERS BE IT CAPITALS OR WHATEVER, CAPITALS ARE EASIER TO READ ,,,,,, THEY ARE BIGGER when your eyesight worsens S.F.A TO DO WITH SHOUTING,, AH SAID SWEET FANNY ADAMS BUT SOME PEOPLE if it says india on the tyres, INDIA IS WHERE THEYRE GOIN AS we
professor
in
Cure Parkinson's
11 years ago
Ferritin levels
As promised I can now tell you that after 3 months taking 2 x 200mg Ferrous Sulphate tablets my iron level has risen from 30 to normal levels (70 ish) and the doctor has said to just take one per day and see if it stays at this level. I do not get any leg cramps at night now so with this and the the
As promised I can now tell you that after 3 months taking 2 x 200mg Ferrous Sulphate tablets my iron level has risen from 30 to normal levels (70 ish) and the doctor has said to just take one per day and see if it stays at this level. I do not get any leg cramps at night now so with this and the the
beardedtwitch
in
Restless Legs Syndrome
12 years ago
HAS ANYONE HAD D,B,S, TURN UP AND MADE THEM WORSE?
LAST FRIDAY AT THE WALTON CENTRE THEY TURN UP MY D,B,S AND I HAVE NOT BEEN RITE SINCE. . yours EXPORT .
LAST FRIDAY AT THE WALTON CENTRE THEY TURN UP MY D,B,S AND I HAVE NOT BEEN RITE SINCE. . yours EXPORT .
export
in
Cure Parkinson's
12 years ago
Anyone trying LDN or interested in it?
I have recently had an appointment with my neurologist and, as expected, he told me basically that the only way to achieve a reasonable quality of life into the future is to have DBS surgery. He spoke of the risks, that not everyone is suitable etc etc. And that was it. DBS or continue to steadily decline
I have recently had an appointment with my neurologist and, as expected, he told me basically that the only way to achieve a reasonable quality of life into the future is to have DBS surgery. He spoke of the risks, that not everyone is suitable etc etc. And that was it. DBS or continue to steadily decline
batwing7
in
Cure Parkinson's
12 years ago
I'm a carer to my wife who has difficult to control Epilepsy
My wife has had epilepsy since the age of 7.Lisa's epilepsy has been difficult to manage especially over more recent years.We've been to a few hospitals from our Local City to The National Hospital For Neurology & Neurosurgery in London & the Epilepsy Society at Chalfont St.Peter.
My wife has had epilepsy since the age of 7.Lisa's epilepsy has been difficult to manage especially over more recent years.We've been to a few hospitals from our Local City to The National Hospital For Neurology & Neurosurgery in London & the Epilepsy Society at Chalfont St.Peter.
Paul72
in
Epilepsy Society
12 years ago
7 days to dbs
I am scheduled for DBS - gpi on Dec. 7. I will be blogging my experience on my blog: http://christyscorner-chrismwalker.blogspot.com/ Feel free to visit my site and comment or post questions if you'd like.
I am scheduled for DBS - gpi on Dec. 7. I will be blogging my experience on my blog: http://christyscorner-chrismwalker.blogspot.com/ Feel free to visit my site and comment or post questions if you'd like.
chrismw
in
Cure Parkinson's
12 years ago
2 months after DBS implant
Well..... this has been a tough 2 months. First month and a half was waiting for the DBS surgery to heal and only half of the second was turning it on and learning how to manage it. That is still being learned now. I think it is going to be a lo-o-o-o-ng process. Leo is a very impatient man and that
Well..... this has been a tough 2 months. First month and a half was waiting for the DBS surgery to heal and only half of the second was turning it on and learning how to manage it. That is still being learned now. I think it is going to be a lo-o-o-o-ng process. Leo is a very impatient man and that
lmbanni
in
Cure Parkinson's
12 years ago
Anyone had DBS in Australia ?
faydee
in
Cure Parkinson's
12 years ago
To Anyone Who has Undergone DBS
How long did your programming take until you felt as if you were feeling that it was worthwhile . How often were you programmed ?
How long did your programming take until you felt as if you were feeling that it was worthwhile . How often were you programmed ?
faydee
in
Cure Parkinson's
12 years ago
IM HAVIBG TROUBLE POSTING,LOOKING 4 AN EXPERT IN DBS PROGRAMMING 2 LEADING DOCS HAVE GIVEN UP
HAD THE DBS AUG 2011,IT WAS SUCSESSFULL ALL IS IN PLACE
HAD THE DBS AUG 2011,IT WAS SUCSESSFULL ALL IS IN PLACE
supermom
in
Cure Parkinson's
12 years ago
DBS placement site
For those that have DBS, how many have had it placed in the subthalamic nucleus? How about the globus pallidis? Has there been any changes in anxiety or depression since the procedure?
For those that have DBS, how many have had it placed in the subthalamic nucleus? How about the globus pallidis? Has there been any changes in anxiety or depression since the procedure?
etterus
in
Cure Parkinson's
12 years ago
Did you know that only half of our disease is being treated?
It has long been known that we also lose a lot of our noradrenaline neurons too. Recent research shows that it may be that noradrenaline loss is primary cause of most PD symptoms including the motor ones. It also is looking like it is the locus of dyskinesia, So what does this mean for me? It means you
It has long been known that we also lose a lot of our noradrenaline neurons too. Recent research shows that it may be that noradrenaline loss is primary cause of most PD symptoms including the motor ones. It also is looking like it is the locus of dyskinesia, So what does this mean for me? It means you
Conductor71
in
Cure Parkinson's
12 years ago
DBS
Hi I was wondering if anybody has DBS at Salford Royal Infirmary{Hope Hospital} and if so would you be willing to talk over your experience with me.I am being considered for it. Thanks
Hi I was wondering if anybody has DBS at Salford Royal Infirmary{Hope Hospital} and if so would you be willing to talk over your experience with me.I am being considered for it. Thanks
Hidden
in
Cure Parkinson's
12 years ago
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