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Experiences with
D-bifunctional protein (DBP) deficiency
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Levothyroxine and Raloxofene ( Evista) - does Evista prevent Levo being used properly?
Just read some research that taking Raloxifene with Levo is a no no - ( drug interaction renders Levo useless as it can't be absorbed in presence of Raloxifene) . I am very concerned as I have been on both for years - and have gained 2 stone - my TSH was 3 (on 100mcg Levo) but Labs refusing GP request
Just read some research that taking Raloxifene with Levo is a no no - ( drug interaction renders Levo useless as it can't be absorbed in presence of Raloxifene) . I am very concerned as I have been on both for years - and have gained 2 stone - my TSH was 3 (on 100mcg Levo) but Labs refusing GP request
hwbrand
in
Thyroid UK
10 years ago
Airport Security
I had DBS surgery a year ago and tomorrow I am going to travel by plane. I am concerned if there is any problem going through security.
I had DBS surgery a year ago and tomorrow I am going to travel by plane. I am concerned if there is any problem going through security.
Brooke
in
Cure Parkinson's
10 years ago
Blood tests
I finally got my gp to do further blood tests can anyone advise me on the results serum vitamin b12 210ng (211-911) serum folate 10.1 ng/ml (3.4-15.8) serum free t4 12.8 pmol/L (10-18.7) serum tsh level 3.53miu/L (0.38-5.5) serum ferritin 43 ng/mL (22.0-322.0) anti nuclear factor (xaC2s) positive
I finally got my gp to do further blood tests can anyone advise me on the results serum vitamin b12 210ng (211-911) serum folate 10.1 ng/ml (3.4-15.8) serum free t4 12.8 pmol/L (10-18.7) serum tsh level 3.53miu/L (0.38-5.5) serum ferritin 43 ng/mL (22.0-322.0) anti nuclear factor (xaC2s) positive
tracyp
in
Thyroid UK
10 years ago
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How much ferrous sulphate should I take to get my iron levels up to optimum levels?
My ferritin blood result is 110 ( range 50-300) I have bought activis 200mg (65mg ferrous iron) Guidance says 1 tablet to prevent anaemia and 2-3 daily for treatment of anaemia But I just want to bring myself up to optimum levels
My ferritin blood result is 110 ( range 50-300) I have bought activis 200mg (65mg ferrous iron) Guidance says 1 tablet to prevent anaemia and 2-3 daily for treatment of anaemia But I just want to bring myself up to optimum levels
stuartwwhouse
in
Thyroid UK
10 years ago
Am I just just b12 deficient or PA? So confused what to do next :(
Can anyone help me please, I am so confused as what to do next.... Over the years I have had periods of numbness, pins and needles in my hands and feet, tiredness, mind fog etc which drs tests usually brought down to iron/folate deficiency. However this time was the worst it's been. In march I started
Can anyone help me please, I am so confused as what to do next.... Over the years I have had periods of numbness, pins and needles in my hands and feet, tiredness, mind fog etc which drs tests usually brought down to iron/folate deficiency. However this time was the worst it's been. In march I started
laurabeebee
in
Pernicious Anaemia Society
10 years ago
My husband has ringing in the ears. Has had DBS for over a year now. It seems to get worse when Dr. changes settings. Anyone else?
His E.N.T. also said it is due to DBS. His neurologist said no and then changed his answer to yes it could be. Still can't figure out what to do to help my husband get rid of ringing. Any helpful advice?
His E.N.T. also said it is due to DBS. His neurologist said no and then changed his answer to yes it could be. Still can't figure out what to do to help my husband get rid of ringing. Any helpful advice?
lmbanni
in
Cure Parkinson's
10 years ago
Registered childminders in raynes park
Hi my my mum & I are ofsted registered childminders in raynes park. Level 2&3 qualified in Early Years Childcare, DBS check ¤t first aid. Please private message me if you are looking for a childminder. Thanks !
Hi my my mum & I are ofsted registered childminders in raynes park. Level 2&3 qualified in Early Years Childcare, DBS check ¤t first aid. Please private message me if you are looking for a childminder. Thanks !
Sophie2503
in
Pregnancy and Parenting Support
10 years ago
Can the physical presence of electrodes from DBS have any effect, even if turned off?
I've had DBS turned off and batteries removed because of infection. It remains to be seen if it gets completely removed or tried again once when all possible signs of infection are gone.
I've had DBS turned off and batteries removed because of infection. It remains to be seen if it gets completely removed or tried again once when all possible signs of infection are gone.
Merlofriend
in
Cure Parkinson's
10 years ago
DBS and madopar. Any one taking more than 12 -125mg tablets a day with a DBS. I would like to here from .
export
in
Cure Parkinson's
10 years ago
Does anyone have experience of deep brain stimulation used for SUNCT?
My father has been suffering from Sunct for the past 12 years. This has been mainly controlled by Lamotrigene and Indomethacin (please excuse spellings). He had an ONS fitted 3 years ago which also seems to have helped...............up until 1 month ago, he has been admitted to UCLH (previously he was
My father has been suffering from Sunct for the past 12 years. This has been mainly controlled by Lamotrigene and Indomethacin (please excuse spellings). He had an ONS fitted 3 years ago which also seems to have helped...............up until 1 month ago, he has been admitted to UCLH (previously he was
Sandra27
in
National Migraine Centre
10 years ago
Can Hashimoto's cause iron deficiency?
'Cos my ferritin has dropped steeply from 65 to 14. Haemoglobin is still normal at 13.4 (for now). Basically, to recap, I was diagnosed with Hashimoto's disease last year. GP put me on Levothyroxine, couldn't stand the side-effects, and stopped taking it. However, my TSH went from 5.6 to 11.2 and I started
'Cos my ferritin has dropped steeply from 65 to 14. Haemoglobin is still normal at 13.4 (for now). Basically, to recap, I was diagnosed with Hashimoto's disease last year. GP put me on Levothyroxine, couldn't stand the side-effects, and stopped taking it. However, my TSH went from 5.6 to 11.2 and I started
unlucky777
in
Thyroid UK
10 years ago
DBS! STN vs. PPN
I understand that DBS in the STN helps with resting tremors. My husband does not having resting tremors, (therefore DBS in the STN is not recommended) more issues related to rigidity, balance, and gait. I found a clinical trial in the UK that uses DBS in the PPN (Pedunculopontine nucleus) which targets
I understand that DBS in the STN helps with resting tremors. My husband does not having resting tremors, (therefore DBS in the STN is not recommended) more issues related to rigidity, balance, and gait. I found a clinical trial in the UK that uses DBS in the PPN (Pedunculopontine nucleus) which targets
PDadvocate1
in
Cure Parkinson's
10 years ago
Iron & levothyroxine.
I`m on 50mg of Levothyroxine a day for hypothyroidism, & according to the leaflet that comes with the tablets, you can`t take iron with them. Iv`e read that taking an iron supplement can sometimes help with RLS, so is there any way I can take extra iron without interfering with my thyroid meds?
I`m on 50mg of Levothyroxine a day for hypothyroidism, & according to the leaflet that comes with the tablets, you can`t take iron with them. Iv`e read that taking an iron supplement can sometimes help with RLS, so is there any way I can take extra iron without interfering with my thyroid meds?
hairyfairy
in
Restless Legs Syndrome
10 years ago
I was evaluated for DBS surgery last week. The doctor said I was not the best candidate because I don' respond to leva dopa well.
He also said the surgery was the best he could offer me. He said "perhaps" it would help with the dyskensia and dystonia I have. If it did I might need less medication and my speech would improve. ( leva dopa causes me to have a severe stammering and stuttering problem.). Either way, whether I have
He also said the surgery was the best he could offer me. He said "perhaps" it would help with the dyskensia and dystonia I have. If it did I might need less medication and my speech would improve. ( leva dopa causes me to have a severe stammering and stuttering problem.). Either way, whether I have
Eileen9
in
Cure Parkinson's
10 years ago
What procedure have you used to turn down your DBS stimulator?
I think my stimulator may be turned up too high because I started having some new type of dystonia after beginning lifting weights. What is the best way to make sure you have the right amount of stimulator amplitude or pulse width for therapeutic benefit?
I think my stimulator may be turned up too high because I started having some new type of dystonia after beginning lifting weights. What is the best way to make sure you have the right amount of stimulator amplitude or pulse width for therapeutic benefit?
AlabamaDoc
in
Cure Parkinson's
10 years ago
Neck & midline "tremors" developed after DBS for Parkinson's disease.
I had bilateral DBS for Parkinson's disease last year. For the first 3 months, I had absolutely no dystonia or dyskinesia. Then I started to develop a tremor in the back of neck and jaw associated with some dystonia of the back of my neck, middle back, and even abdominal muscles. Before DBS, I would
I had bilateral DBS for Parkinson's disease last year. For the first 3 months, I had absolutely no dystonia or dyskinesia. Then I started to develop a tremor in the back of neck and jaw associated with some dystonia of the back of my neck, middle back, and even abdominal muscles. Before DBS, I would
AlabamaDoc
in
Cure Parkinson's
10 years ago
For anyone struggling to get a diagnosis, the new BCSH guidelines on treating Cobalamin & Folate deficiencies are now available, link below:
http://www.bcshguidelines.com/documents/BCSH_Cobalamin_and_Folate_Guidelines_(2).docx.pdf
http://www.bcshguidelines.com/documents/BCSH_Cobalamin_and_Folate_Guidelines_(2).docx.pdf
Hidden
in
Pernicious Anaemia Society
10 years ago
Does anyone have normal LFTs except for dropping albumin, protein and globulin levels and what does it mean.
Wildare
in
British Liver Trust
10 years ago
Re Chronotherapy body clock and thyroid meds.
I find this interesting and hope it will help us all but I'm still trying to get my head around it. I know I'll never make a scientist. I read Paul Robinson's book and did some readings for him. He was kind enough to comment and I have been following his advice. Except for the early tablet. It seems
I find this interesting and hope it will help us all but I'm still trying to get my head around it. I know I'll never make a scientist. I read Paul Robinson's book and did some readings for him. He was kind enough to comment and I have been following his advice. Except for the early tablet. It seems
beaton
in
Thyroid UK
10 years ago
Is there anyone with DBS taking Madopar or Sinemet and then added Azilect?
This question is for a friend who is not 'online'. He has DBS and on Madopar several times a day. His DBS specialist prescribed him Azilect, several months ago, which he took for about one week, but stopped because he perceived no benefit. His specialist told him that he did not give it enough time
This question is for a friend who is not 'online'. He has DBS and on Madopar several times a day. His DBS specialist prescribed him Azilect, several months ago, which he took for about one week, but stopped because he perceived no benefit. His specialist told him that he did not give it enough time
Norton1
in
Cure Parkinson's
10 years ago
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