My father has been suffering from Sunct for the past 12 years. This has been mainly controlled by Lamotrigene and Indomethacin (please excuse spellings). He had an ONS fitted 3 years ago which also seems to have helped...............up until 1 month ago, he has been admitted to UCLH (previously he was under Proff Goadsby and now Dr Matharu) as an emergency admission. I have never seen attacks as bad as the ones he is getting (he is 80 years old), since admission he has been on IV Lidocaine but this does not appear to be touching them. They have tried him on Duloxetine but this was causing concerning results on his ECG so it was stopped. He has had Botox 2 weeks ago but again this does not appear to have worked. Dr Matharu has just been to see him to say that they are running out of things to try but has mentioned DBS, do you have any experience of this?
Last edited by Sandra27
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