For anyone struggling to get a diagno... - Pernicious Anaemi...

Pernicious Anaemia Society

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For anyone struggling to get a diagnosis, the new BCSH guidelines on treating Cobalamin & Folate deficiencies are now available, link below:

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bcshguidelines.com/document...

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Mrs_Somerset profile image
Mrs_Somerset

Thank-you Hampster1 - brilliant source of info as always :-)

Leilanilea profile image
Leilanilea

Thank you, Hampster!

B12Turbo profile image
B12Turbo

Nice work Hampster1. Are these guidelines for GP's to follow, if so, that would be great!!! I sent a set of cost saving details down to Jeremy Hunt via David Cameron a few weeks ago, it's surprising how much money the NHS could save via proper diagnosis and the administration of B12 in the place of other more expensive, unnecessary and even dangerous drugs, to treat conditions that have simply been B12 deficiencies misdiagnosed.

Of course it would also be even better, if they had included self referrals to consultants and hospitals. Don't know if you've heard anymore about that aspect.

Best regards B12 Turbo

in reply to B12Turbo

No I haven't heard. I do know that Dr Chandy made huge savings when he started treating with B12, I think if you email the B12d.org charity they can give you info on exactly how much their costs have been cut.

Re the guidelines, GPs and Haemo's are most definitely meant to follow the advice of the BCSH, from their website:

bcshguidelines.com/index.html

"BCSH provides up to date evidence based guidelines for both clinical and laboratory haematologists on the diagnosis and treatment of haematological disease. The guidelines are written according to the BCSH process by a team of expert Consultants and clinical scientists currently practicing in the UK. "

B12Turbo profile image
B12Turbo

Hi Hampster 1. Shame it's taken the experts so long to catch up on what we have known for a long time, I've had a response back from David Cameron re. the points I made to him, but as yet our Jeremy is saying very little, makes you wonder why ???? Perhaps it could be classed as politically incorrect, for MP's to challenge a medical diagnosis, or perhaps, then it would be unethical for the medical profession to comment upon diagnosis errors within the system. ( WHISTLE BLOWING and all that ) STILL PERHAPS !!! Some of those on this site who have suffered, (as many have), with a GP who simply has little or no understanding of B12 problems or diagnosis, may now get diagnosed without having to listen to all the C---P that is spouted on the subject and at least suffering may thereby be reduced, at least, let us hope so.

Hope your keeping well, this site needs you!