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Experiences with
D-bifunctional protein (DBP) deficiency
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Low Iron
I was diagnosed with pernitious anaemia a year ago and have had regular B12 injections. I also have RA and take MTX and other RA medication, + Vit D and calcium and folic acid. I've just been told my iron levels are down - is this normal
I was diagnosed with pernitious anaemia a year ago and have had regular B12 injections. I also have RA and take MTX and other RA medication, + Vit D and calcium and folic acid. I've just been told my iron levels are down - is this normal
frranny
in
Pernicious Anaemia Society
8 years ago
Vercise DBS trial
Hi, I am new here. I am looking for recent input from anyone who is part of the Vercise Boston Scientific DBS trial. I noticed some older posts but nothing more recent. Thanks Hoganab
Hi, I am new here. I am looking for recent input from anyone who is part of the Vercise Boston Scientific DBS trial. I noticed some older posts but nothing more recent. Thanks Hoganab
Hogan
in
Cure Parkinson's
8 years ago
Test Results Back!
The test results came back that my new Internal Medicine doctor ordered. My feritin level was 12.7 ng/ml and my B-12 was 315 pg/ml. He told me to start getting my B-12 shots twice a month instead of once a month and to take an additional ferrous gluc. pill(in addition to the one tablet I have been
The test results came back that my new Internal Medicine doctor ordered. My feritin level was 12.7 ng/ml and my B-12 was 315 pg/ml. He told me to start getting my B-12 shots twice a month instead of once a month and to take an additional ferrous gluc. pill(in addition to the one tablet I have been
ChrisVic
in
Pernicious Anaemia Society
8 years ago
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Low ferritin but high iron? GP referral ....
Hi I've been talking to my GP as to why I should have low ferritin (17) yet high iron (35) and a normal MCV. When asked, she's like a rabbit caught in the headlights and seems clueless (also told me if my ferritin was 20, that would be normal, so mine is only "a bit low"?!). Asked to be referred to a
Hi I've been talking to my GP as to why I should have low ferritin (17) yet high iron (35) and a normal MCV. When asked, she's like a rabbit caught in the headlights and seems clueless (also told me if my ferritin was 20, that would be normal, so mine is only "a bit low"?!). Asked to be referred to a
Tima69
in
Pernicious Anaemia Society
8 years ago
Just beginning Rytary
My husband was diagnosed with PD 8 years ago. He was experiencing severe cramping which would incapacitate him at times. We went to a new doctor today hoping to find out about deep brain stimulation. While we're waiting for all the "boxes" to be checked for the surgery, my husband will begin taking
My husband was diagnosed with PD 8 years ago. He was experiencing severe cramping which would incapacitate him at times. We went to a new doctor today hoping to find out about deep brain stimulation. While we're waiting for all the "boxes" to be checked for the surgery, my husband will begin taking
KellyDeMoore
in
Cure Parkinson's
8 years ago
Been diagnosed severely anaemic when I've experienced no signs of anaemia?
Hi Due to having severe acne for 12 years I was referred to a dermatologist to be put forward for roaccutane. As everybody knows, it's a very serious drug and has dangerous side effects. Because of this I'm having to have monthly blood tests, pregnancy tests. My first blood test established that I was
Hi Due to having severe acne for 12 years I was referred to a dermatologist to be put forward for roaccutane. As everybody knows, it's a very serious drug and has dangerous side effects. Because of this I'm having to have monthly blood tests, pregnancy tests. My first blood test established that I was
laura95
in
Thyroid UK
8 years ago
Recovery after DBS
My mother who is 74 years ago had her DBS 10 days ago, bot sides. She was conscious during surgey but a sedative was given. Post surgery she was unconscious and did not open her eyes for 3 days. Her doctor has started the stimulation but she cant walk and voice is slurred. . Has anyone had the same
My mother who is 74 years ago had her DBS 10 days ago, bot sides. She was conscious during surgey but a sedative was given. Post surgery she was unconscious and did not open her eyes for 3 days. Her doctor has started the stimulation but she cant walk and voice is slurred. . Has anyone had the same
Rajeshjkt
in
Cure Parkinson's
8 years ago
RLS link to iron deficiency and dopamine. Interesting article.
Interesting article http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html The single most consistent finding and the strongest environmental risk factor associated with RLS is iron insufficiency. Professor Nordlander first recognized the
Interesting article http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html The single most consistent finding and the strongest environmental risk factor associated with RLS is iron insufficiency. Professor Nordlander first recognized the
Skarlet
in
Restless Legs Syndrome
8 years ago
Iron deficiency anaemia
Hi I've been on iron tablets since before Xmas but iron levels not improving! Recently seen articles on the web that drinking red wine, tea and dairy products can affect take in of iron, however Dietician recommends drinking milk and eating hard cheese daily to keep calcium levels up! Any suggestions
Hi I've been on iron tablets since before Xmas but iron levels not improving! Recently seen articles on the web that drinking red wine, tea and dairy products can affect take in of iron, however Dietician recommends drinking milk and eating hard cheese daily to keep calcium levels up! Any suggestions
Leothe14th
in
Gluten Free Guerrillas
8 years ago
Things that can affect a blood test?
It's rather a long story, so to keep it brief, I had a B12 level of 127 (reference range 180-900) last year, was very symptomatic, and have spent 12 months battling with GPs and haematologists to get treated properly. My last B12 injection was 29th February 2016 and I am due some blood tests on 7th
It's rather a long story, so to keep it brief, I had a B12 level of 127 (reference range 180-900) last year, was very symptomatic, and have spent 12 months battling with GPs and haematologists to get treated properly. My last B12 injection was 29th February 2016 and I am due some blood tests on 7th
jw44
in
Pernicious Anaemia Society
8 years ago
If malabsorbtion is cause of B12 and iron deficiency can it be diagnosed as Pernicious Aneamia?t
I have both deficiencies but intrinsic factor test is okay (sorry not sure if that is negative or positive?!) Totally exhausted from coughing all night (a link has been shown with chronic cough and B12 deficiency!) I am about to have a talk with my gp about all of this. I've been injecting B12 so the
I have both deficiencies but intrinsic factor test is okay (sorry not sure if that is negative or positive?!) Totally exhausted from coughing all night (a link has been shown with chronic cough and B12 deficiency!) I am about to have a talk with my gp about all of this. I've been injecting B12 so the
auldreekie
in
Pernicious Anaemia Society
8 years ago
Some Answers
Here's a short article from Johns Hopkins followed by a long conversation discussing it. http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html MR X - I tried some N-acetyl cysteine at one time to try to lower my glutamate. No change to
Here's a short article from Johns Hopkins followed by a long conversation discussing it. http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html MR X - I tried some N-acetyl cysteine at one time to try to lower my glutamate. No change to
Hidden
in
Restless Legs Syndrome
8 years ago
possible PD medication side effects?
my father has been battling pd for about 9 years. not to make this post long, he has tried everything and everything wears off quickly. he's currently on the neuro patch and levodopa-cardopa, he takes it every 2 hours. He also had DBS, that didn't work! they cant find the right combination of numbers
my father has been battling pd for about 9 years. not to make this post long, he has tried everything and everything wears off quickly. he's currently on the neuro patch and levodopa-cardopa, he takes it every 2 hours. He also had DBS, that didn't work! they cant find the right combination of numbers
Nikkix24
in
Cure Parkinson's
8 years ago
Iron tablets
Hi guys ..... This week I have been feeling absolutely exhausted Monday and Tuesday I was ok, Wednesday started feeling tired Thursday it felt like I had hit "my wall" all day at work I felt so fatigued and slightly spaced out in my head came home from work a almost went straight to bed. Friday morning
Hi guys ..... This week I have been feeling absolutely exhausted Monday and Tuesday I was ok, Wednesday started feeling tired Thursday it felt like I had hit "my wall" all day at work I felt so fatigued and slightly spaced out in my head came home from work a almost went straight to bed. Friday morning
Pixielula
in
Pernicious Anaemia Society
8 years ago
Need interpretation of my lab test, desperate to know!
Finally was able to get Rx for complete thyroid profile ! my results are follows T3. = 101 ng/dl. Normal range:(71-180) T4. =6.9. ng/dl. (4.5-12) FreeT4 direct.= 0.96 ng/dl. (0.82--1.99) FreeT3
Finally was able to get Rx for complete thyroid profile ! my results are follows T3. = 101 ng/dl. Normal range:(71-180) T4. =6.9. ng/dl. (4.5-12) FreeT4 direct.= 0.96 ng/dl. (0.82--1.99) FreeT3
Esya47
in
Thyroid UK
8 years ago
Hallucinations
my dad was diagnosed with Parkinson's nine years ago recently has been having very bad hallucinations wondering if DBS surgery would even be an option or what other medications would help with the hallucinations
my dad was diagnosed with Parkinson's nine years ago recently has been having very bad hallucinations wondering if DBS surgery would even be an option or what other medications would help with the hallucinations
Lem-123
in
Cure Parkinson's
8 years ago
Botox for salivary glands
Has anyone had botox injected into the salivary glands to assist with reducing excessive saliva? My husband is having a difficult time with excessive saliva and almost seems to be drowning at times. We are also planning on seeing a movement disorder clinic about the possibility of DBS, and had heard
Has anyone had botox injected into the salivary glands to assist with reducing excessive saliva? My husband is having a difficult time with excessive saliva and almost seems to be drowning at times. We are also planning on seeing a movement disorder clinic about the possibility of DBS, and had heard
cflloyd
in
Cure Parkinson's
8 years ago
Want to increase ferritin, but worried iron will get too high
My ferritin level is at the bottom of the range, and I really want to boost it. I think it will help me convert T4 to T3. I know that it's dangerous for iron levels to be too high. Does anyone know if I can increase ferritin without increasing other iron levels? My recent results: Ferritin 58 (23.0
My ferritin level is at the bottom of the range, and I really want to boost it. I think it will help me convert T4 to T3. I know that it's dangerous for iron levels to be too high. Does anyone know if I can increase ferritin without increasing other iron levels? My recent results: Ferritin 58 (23.0
TaraJR
in
Thyroid UK
8 years ago
Brain implants or standard DBS
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Brain implants because brains move slightly during physical activity and as we breathe and our heart beats, rigid implants rub and damage tissue overcome these problems using a fine, flexible mesh. In 2012 the team showed that cells could be grown around such a mesh, but that left the problem of how
Hidden
in
Cure Parkinson's
8 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
sdekozan
in
Cure Parkinson's
8 years ago
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