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Experiences with
D-bifunctional protein (DBP) deficiency
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Anemia?
Has any one else been told they are iron deficiency and B12 deficient? I've been told that yesterday by the hospital after recent tests. So I said what happens now. He said see you own Gp. I so confused by this. Is any one else defient in both?
Has any one else been told they are iron deficiency and B12 deficient? I've been told that yesterday by the hospital after recent tests. So I said what happens now. He said see you own Gp. I so confused by this. Is any one else defient in both?
Catherine50
in
Pernicious Anaemia Society
8 years ago
Iron infusion question
Hi everyone, I wanted to explain the situation with my ferritin/iron supplementation in a different post to the first one I have put up about my thyroid results and symptoms. Because of my concerns I wanted to dedicate this post to anything ferritin/iron related and leave everything thyroid/hypo/Hashimoto's
Hi everyone, I wanted to explain the situation with my ferritin/iron supplementation in a different post to the first one I have put up about my thyroid results and symptoms. Because of my concerns I wanted to dedicate this post to anything ferritin/iron related and leave everything thyroid/hypo/Hashimoto's
Platinum08
in
Thyroid UK
8 years ago
Severe Anemia, Now got aching legs and short of breath?
Just wondering if anyone can help? I visited my GP last year as I was feeling tired, no energy,pains in stomach, coughing, and being sick. I was told that I needed to have a blood transfusion as my Haemoglobin was 67 and Serum Ferritin was 1. I walked into A&E no problem and received 2 units of blood
Just wondering if anyone can help? I visited my GP last year as I was feeling tired, no energy,pains in stomach, coughing, and being sick. I was told that I needed to have a blood transfusion as my Haemoglobin was 67 and Serum Ferritin was 1. I walked into A&E no problem and received 2 units of blood
caynsley
in
Pernicious Anaemia Society
8 years ago
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Supplement interaction
Hi I am a bit unsure when to take my tablets as I have heard that ferrous fumarate tablets interact with both calcium and levothyroxine and should be taken 4 hours apart. I have been prescribed by my GP the following: Levothyroxine which I presently take in the am. Ferrous Fumarate which is twice a
Hi I am a bit unsure when to take my tablets as I have heard that ferrous fumarate tablets interact with both calcium and levothyroxine and should be taken 4 hours apart. I have been prescribed by my GP the following: Levothyroxine which I presently take in the am. Ferrous Fumarate which is twice a
Hidden
in
Thyroid UK
8 years ago
Full Blood Count...what result should I be looking for?
I have just requested a copy of my latest blood tests as I am very B12 and iron deficient....it looks like a FBC was done....results say "normal" ? My results read... White cell count 5.6 10*9/L ( 4.0 - 11.0 ) Haemoglobin estimation 129g/L (120 - 175) Red Blood Cell 4.08 10*12/L (3.80 - 5.80 ) Can
I have just requested a copy of my latest blood tests as I am very B12 and iron deficient....it looks like a FBC was done....results say "normal" ? My results read... White cell count 5.6 10*9/L ( 4.0 - 11.0 ) Haemoglobin estimation 129g/L (120 - 175) Red Blood Cell 4.08 10*12/L (3.80 - 5.80 ) Can
Diane_iow
in
Pernicious Anaemia Society
8 years ago
Dbs trouble shooting clinics
Anyone care to talk about the UF@Gainsville location? What about Denver? I had DBS surgery last May and am still not programmed correctly I do not believe.
Anyone care to talk about the UF@Gainsville location? What about Denver? I had DBS surgery last May and am still not programmed correctly I do not believe.
ddpd
in
Cure Parkinson's
8 years ago
Please guide me with the treatment of Normocytic nomochromic anemia.
I know it's the anemia of chronic disease. Please help me with its nutritional treatment. And what drugs, food etc hinders in iron absorbtion or causes anemia.
I know it's the anemia of chronic disease. Please help me with its nutritional treatment. And what drugs, food etc hinders in iron absorbtion or causes anemia.
ZABohra
in
Pernicious Anaemia Society
8 years ago
Reducing madopar
For several years I have been taking madopar every three hours during the day, together with entacapone, rsagaline and rotigotine patches. I also top up with dispersible madopar. Increasingly I have been swinging violently between on and off periods every couple of hours As i start to wear off I have
For several years I have been taking madopar every three hours during the day, together with entacapone, rsagaline and rotigotine patches. I also top up with dispersible madopar. Increasingly I have been swinging violently between on and off periods every couple of hours As i start to wear off I have
pen1
in
Cure Parkinson's
8 years ago
Iron deficiency and liver cirrhosis
Hi there! please help me with the overcoming of anemia in liver patients. What should be the adequate source of iron supplements( maltofer) in these patients who are taking tenofevir.
Hi there! please help me with the overcoming of anemia in liver patients. What should be the adequate source of iron supplements( maltofer) in these patients who are taking tenofevir.
ZABohra
in
British Liver Trust
8 years ago
DBS
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
adkseaman
in
Cure Parkinson's
8 years ago
DBS?
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
I am hoping to get the OK for DBS surgery soon. Would love to hear from anyone who has had this done. Good or bad, I need to know.
Kachimom
in
Cure Parkinson's
8 years ago
DBS adjustment/migraine
I had my DBS adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me. I've made my MDS aware and I took 800mg
I had my DBS adjusted today. Now I'm battling a migraine. Unlike typical migraine onset, this one started within an hour of the adjustment. Nausea with vomiting came on fast too. Does anyone else experience this? This is the 3rd time it's happened to me. I've made my MDS aware and I took 800mg
christymw
in
Cure Parkinson's
8 years ago
Sudden drop in B12
Hi all. I have a long long history of iron deficient anemia - often quite severe but very responsive to standard iron tablets. I have been monitored closely for the past 2 years for TSH, B12 and haemaglobinopathies. My TSH is rising but has still been in range, free T3, T4 are bottom of range and
Hi all. I have a long long history of iron deficient anemia - often quite severe but very responsive to standard iron tablets. I have been monitored closely for the past 2 years for TSH, B12 and haemaglobinopathies. My TSH is rising but has still been in range, free T3, T4 are bottom of range and
Fennella02
in
Thyroid UK
9 years ago
Latest Lab test results after being off Armour for a year or so.
Hello All. Newbie here! TSH a year ago was 1.98 Free T4 of 10.2 (range 9-28) TSH 3 months later 2.28 Fr ee T4 of 11.7 (range 9-28) My new doctor will only do TSH so 2 months ago 4.45 and a few weeks ago 3.36 My TSH is going up and down and my Free T4 is low in the range. I was lucky and able to see
Hello All. Newbie here! TSH a year ago was 1.98 Free T4 of 10.2 (range 9-28) TSH 3 months later 2.28 Fr ee T4 of 11.7 (range 9-28) My new doctor will only do TSH so 2 months ago 4.45 and a few weeks ago 3.36 My TSH is going up and down and my Free T4 is low in the range. I was lucky and able to see
Crunchieeagle
in
Thyroid UK
8 years ago
Is it just me?
A question posted to all out there in the PD world.. Because I've only ever been on one medication, Sinemet, I am ignorant of every other medication out there. I am being treated by a very sought out Dr. Who shall remain nameless, I had to wait over a year for an appointment and when he did see memhe
A question posted to all out there in the PD world.. Because I've only ever been on one medication, Sinemet, I am ignorant of every other medication out there. I am being treated by a very sought out Dr. Who shall remain nameless, I had to wait over a year for an appointment and when he did see memhe
Chris0846
in
Cure Parkinson's
8 years ago
Does Anyone Else feel Like they Sleep Under A Lead Blanket???
Since I've had my DBS 1 1/2 years ago I feel that WHEN I actually sleep and when I need to roll over I find it very very hard to turn over, its like I'm underneath a lead Blanket and that my body can't turn as though it weighs s ton! Also, is it just me, but I also find it really hard to sleep on the
Since I've had my DBS 1 1/2 years ago I feel that WHEN I actually sleep and when I need to roll over I find it very very hard to turn over, its like I'm underneath a lead Blanket and that my body can't turn as though it weighs s ton! Also, is it just me, but I also find it really hard to sleep on the
Chris0846
in
Cure Parkinson's
8 years ago
Consultant insists my B12 deficiency is down to diet
I am new to this forum and to the Pernicious Anaemia Society. I joined following a recent diagnosis of B12 deficiency. I have just completed a two week programme of b12 injections - 6 in all. Pernicious Anaemia runs in my family. My father had it and so did his mother. I also have other autoimmune
I am new to this forum and to the Pernicious Anaemia Society. I joined following a recent diagnosis of B12 deficiency. I have just completed a two week programme of b12 injections - 6 in all. Pernicious Anaemia runs in my family. My father had it and so did his mother. I also have other autoimmune
Nattilydressed
in
Pernicious Anaemia Society
9 years ago
DBS for PwP who have low tremor. Request for others to share experience. Impact of lower frequencies.
(Parkinsons is so different in different people. I have over nine years never come across anyone with a condion like mine. For example, I know a guy who finds walking forward extremely difficult but he can run backwards faster than people without PD can run forwards. I started this post after responding
(Parkinsons is so different in different people. I have over nine years never come across anyone with a condion like mine. For example, I know a guy who finds walking forward extremely difficult but he can run backwards faster than people without PD can run forwards. I started this post after responding
Stve
in
Cure Parkinson's
8 years ago
DBS
What does dbs improve if you don't have a tremor?
What does dbs improve if you don't have a tremor?
michaela13
in
Cure Parkinson's
8 years ago
Ferrous fumarate.
I was recommended to take ferrous fumarate to up my iron. But it says this in the info leaflet. Is it ok with levothyroxine?
I was recommended to take ferrous fumarate to up my iron. But it says this in the info leaflet. Is it ok with levothyroxine?
Diyena
in
Thyroid UK
9 years ago
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