Hallucinations

[Lem-123]

my dad was diagnosed with Parkinson's nine years ago recently has been having very bad hallucinations wondering if DBS surgery would even be an option or what other medications would help with the hallucinations

[Bailey_Texas]

Parkinson's meds can and do cause Hallucinations.

My doctor asks me every time i go in about Hallucinations.

[Pelley]

Back off on some medications, especially if there has been any recent additions or increases. After nine years he's as qualified as anyone to tell what's helping the most. I speak from 11 years experience, four most recent with DBS.

It's progressive and ever changing, sometimes daily.

Good luck and be sure to keep us informed. We're all in this together!

[windhorsepixy]

Are they daytime or nighttime (coming out of sleep) hallucinations ?

[Hidden]

My husband was put on Rivotril 0.5mg Clonazepam tablets,one at night and these have helped a lot and reduced his vivid hallucinations by at least 80%,best wishes to your dad.

[Wendykimber]

my husband took Pramipexole (dopamine agonist) for 13 years - for the last 18 months of that had lots of symptoms like hallucinations, confusion, vivid dreaming etc. He is now off that and symptoms all gone. Just on Sinemet now.

[isis6361]

If the hallucinations are drug induced then the medications should be reviewed. If however it's the progression of the Parkinson's disease which is a common symptom then treatment with rivastigmine or quetiepine or other similar treatments. If it's disease progression he won't qualify for DBS if it's feud induced and the drugs are reviewed then he could be assessed for his suitability for DBS.

[earthdweller]

Mum first had hallucinations from Benzhexol (Trihexyphenidol). They disappeared for a while when she was weaned off this drug. Now she has dementia and hallucinations, but we don't know if they're from her remaining medications (including pramipexole?) or from the disease itself.

[Wendykimber]

We were going down the road of getting my husband assessed for dementia, until he cut down and then totally withdrew from the Pramipexole. Mentally he is fine now. Have had to increase the Sinemet to compensate. He is doing ok at the moment

[Donzim]

Google Abram Hoffner on use of high dose niacin for hallucinations. We followed the protocol and after six months of daily hallucinations, they disappeared in 24 hours. Continued treatment successfully. Note it is the use of niacin, not niacinamide. The adrenaline/adrenochrome theory is compounded by the same action of dopa converting to dopa chrome, hence a double barreled hit. You will understand this theory when you read his work. It either works or doesn't and certainly benign.

[munchybunch in reply to Donzim]

Can you pls let us know what brand you use and what dosage. Thanks

[Donzim in reply to munchybunch]

it doesn't matter what brand...niacin is niacin. it is a single ingredient. i prefer caps to tabs as tabs sometimes don't break down. we used 1000 mg 3x daily, the dose Abram Hoffner recommended. we did not use niacinamide....we used niacin. suggest you google Abram Hoffner and read his use of niacin to help schizophrenia. i did not think my husband was schizoid, just that schizophrenia is often accompanied by hallucinations....something i remembered from my college studies. i started by trying to find out how to lower adrenaline (he was a high adrenaline person) in an effort to calm him down and by linking, found Hoffner. He was one of the people with Tim Leary investigating hallucinatory drugs....remember LSD? Hoffner used niacin to treat over 3000 schizophrenics. It was instantly successful with my husband with regard to the hallucinations. we also used l-theanine and capsules of oil of lavender to keep him from over-excitement (anxiety). If the doctor tells you that niacin can damage the liver, ask him the side effects of the psych meds and request that he check liver enzymes periodically if he is worried that niacin might do something negative.

if I forgot to give the dose or ran out of it, my husband noticed it within hours and said, 'Give me the B vitamin, I have been seeing the brown dog in the corner". The appearance of the dog and of people disappearing around the corner were the initial stages of the hallucination.....not uncommon.

[munchybunch in reply to Donzim]

Wow so interesting. Thanks for yr answers

[Bandula]

Been on SELEGILINE HYDROCHLORIDE 5 MG @ NIGHT for the past 22 months. SAy 10 months ago, I began having the most awful of nightmares subjecting my wife to take cover, woke up exhausted and shattered by the trauma of the night. By the way I was on MADORPA-LEVODOPE + BERSEVAZIDE 250/4 MG daily and I continue to do so......

The neurologist prescribed several drugs which my wife point blank refused to administer. Wikipidia and many medical publications were refered to without any success.

Lo and behold !

The answer was in the leaflet that accompanied Selegiline Hydrochloride. Underside effects this was what I read Nausea, confusion, agitation, hypotension, hallucinations, depression, loss of balance, insomnia hypertension,arrhythrnia,new or increased angina pectoris and syncope.

I, on my own removed myself from this drug a week ago. I am now spared of those

grotesque moving silent pictures that caused my wife and myself utter discomfort.

The doctor will be notified in time.

I wish you well.

bandula

19/03/16

[Donzim in reply to Bandula]

Hope you try the niacin. Hoffner recommends 1000mg 3x daily. My husband had hallucinations from selegiline-he was convinced that all the veins in his hands were worms and needed to be cut out, that his body hair wasn't really his but had been put there and that bugs were everywhere. It was a nightmare. Like he was on LSD...you will understand why after reading Hoffner who with Tim Leary was one of the early researchers of LSD. The ant hallucinatory drug made it worse. Selegiline BTW takes up to six months to clear out of the system. Googled those weird symptoms to discover that tons of people have this...so many there is a name for it..parasitosis. They all do the same thing collecting little specks of stuff and insisting it be analyzed by a lab. Think of it...all those people probably cured with some niacin. Pitiful. Those symptoms of course were just his manifestation of the adrenochrome. Someone could have a different set of symptoms but with the same cause described by Hoffner.

[Lem-123 in reply to Donzim]

how much niacin did you start off with? did you cut out any other of his meds? Thanks

[Donzim in reply to Lem-123]

since niacin causes a sometimes uncomfortable flush, it is probably a good idea to start with less but since don never experienced a flush at any dose, i started with the recommended dose of 1000mg 3x daily. the flush isn't unbearable even if one gets it...like a bad sunburn. did not lower any meds but had stopped the offending one of selegiline, infamous for hallucinations. if you read hoffner's work, you will understand the underlying process and see why i don't think it makes any difference if the hallucinations come from med or if they come from some other source.....the excess of adrenachrome is the problem, regardless of where it comes from according to him. at the end of six months, don was able to reduce and eventually go off the extra niacin and his usual b vitamins apparently supplied what he needed from then on. a couple of exceptions when he would see the dog in the corner.

[Donzim in reply to Bandula]

It was selegiline for us too in a MAOI.

[Donzim]

3000mg niacin (not niacin amuse). 1000 3x. Daily.  Read Abraham hoffner on hallucinations . Did it for us and my husband had BAD ones.  Wrote elsewhere here on subject.

[GymBag]

Good response , great answers. I was in hospital post surgery , and it took 3 days to identify morphin as the cause. Usually I knew it was not real , Ronald Mcdonald and flying cars, bugs coming out of the sink. However when the bat flew down the hall, landed on the bed, ran over to the bandage and crawled under and disappeared I demanded the nurse take off the bandage. I have no idea where the bat went.

The episode was really creepy. Your own brain knows how to make up a show that you will believe and scare your pants off . NOT NICE , talking and reassuring the patient are not much help because he can see the big spider right in front of him. You need to get rid of the spider.