Webinar: Deep Brain Stimulation - Cure Parkinson's

Cure Parkinson's

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Webinar: Deep Brain Stimulation

CPT_Helen profile image
CPT_HelenPartner
9 Replies

Join us for our next Journal of Parkinson's, Van Andel Institute and Cure Parkinson's Webinar where a panel of preclinical, clinical and patient experts will discuss Deep Brain Stimulation, the different approaches in the UK and the US, and current research in this area. To find out more visit: cureparkinsons.org.uk/2021/...

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smk103 profile image
smk103

I had deep brain stimulation 5 years ago to reduce complications of levodopa, alka dyskinesia. Globus pallidus interna GPI

Cbgs profile image
Cbgs in reply tosmk103

Would highly recommend DBS ?Did help with any none more skills?

How was recovery time? Do you take any meds at all anymore?

Any advice is helpful thank you

NelaB1 profile image
NelaB1 in reply toCbgs

hello Cbgs. I have PD for 15 years and DBS for 2 years. With dbs i was able to reduce medication and felling much less bad side effects from it. its not a miracle but almost. even so i should warn you that in the begining of the adaptation to it (and proper regulation) you may be a litle disapointed. but it wil get better with time.

seamusw profile image
seamusw in reply toCbgs

Has you’re r speech gotten better ?

suetdumpling profile image
suetdumpling

I had PD for 16 years and have the DBS over 2 1/2 years. I have a new life and enjoy it every bit of my waking hours. After the surgery, I took off all PD medication for nearly a year. I'm taking less Madopar than before. It all depends on individual.

Tunasalad profile image
Tunasalad in reply tosuetdumpling

Did you have walking issues before DBS?

suetdumpling profile image
suetdumpling in reply toTunasalad

I had problems to get up from my bed in the morning and also, feeling weak to walk.

adkseaman profile image
adkseaman in reply tosuetdumpling

Had DBS in 2015. Life changing! My only side effect is poor speech.

dkdc profile image
dkdc

DBS made my walking worse - a common side effect. Fos-levodopa seems more promising to me.

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