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NHS stopping B12
Why are they doing this???
Why are they doing this???
Donny21
in
Pernicious Anaemia Society
3 months ago
Good News
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Thought I should share this...after getting my shocking news of HF in December 2022 due to cause "unknown".....my EF was 37...when you get this diagnosis it is very frightening..LBBB..I was prescribed Entresto and Bisoprolol..my first dosages were higher than I could tolerate..and my BP and pulse were
Elsabounre
in
British Heart Foundation
3 months ago
Serum ferritin too high?
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling very anxious, having panic attacks, not sleeping etc... and was wondering if it could be because of this? At the same time of the infusion I
Krysagnes
in
Pernicious Anaemia Society
3 months ago
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absorbing b12 in cells with liquid sublingual on days not injecting
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that we have in our blood supply get used up if we have the pernicious anemia. like does our b12 that is has not left our body yet get used by our
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
how long does our b12 injection stay in our bodies
hello everyone, Now that I have been diagnosed on my bloodwork with PA I was wondering when we give ourselves an injection of B12 how long do we keep it in our bodies, now I've only been injecting for 6 weeks, this is my 6th week EOD. now I also use liquid sublinguals everyday, I feel I really need
hello everyone, Now that I have been diagnosed on my bloodwork with PA I was wondering when we give ourselves an injection of B12 how long do we keep it in our bodies, now I've only been injecting for 6 weeks, this is my 6th week EOD. now I also use liquid sublinguals everyday, I feel I really need
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
Blood test results - anxiety
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
Hi everyone, I posted this same message in my previous post but I don't think it has been seen by anyone so creating a new post here... I got my blood test results back this morning. Here they are – TSH mIU/L: <0.005 (range 0.27 - 4.2) FT3 pmol/L: 7.7 (range 3.1 – 6.8) FT4 pmol/L: 18.2 (range 12 –
ci00aaj
in
Thyroid UK
3 months ago
B12 website - Norway (Norge / Noreg)
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/ Another link for Norway below. https://www.b12info.com/very-useful-links/ PAS (Pernicious Anaemia Society) accepts members from across the world.
Sleepybunny
in
Pernicious Anaemia Society
3 months ago
hopefully getting somewhere!!
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
Having been treated for hypothyroidism since 2000 when I had a thyroid nodule, I have struggled with my weight and wellbeing to varying degrees over the years. I'm now 79, but active. I saw an Endo privately in October had a few blood tests which I have posted, (including Medichecks in Feb I think)
AtoZ24
in
Thyroid UK
3 months ago
Experience with Covid and hypo/hashis
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Hi all, I’ve been quite stable for a number of years now. I was on NDT and doing ok but not perfect, adding a small amount of Levo to my NDT at the end of 2019 made me feel really well, pulling my FT4 up in the range a bit made a big difference. At the beginning of May this year I thought I caught
Littledancingtiger
in
Thyroid UK
3 months ago
Could a member please explain the T3 feedback loop?
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
Hello, I have been on NDT since June of 2021. I am currently taking 175mg of compounded thyroid. About two hours after taking my thyroid capsule I often feel hot and sometimes a bit anxious ( like being overmedicated) but in the afternoon I am out of gas. My cortisol is high in the early morning, good
BlueGreenHealer
in
Thyroid UK
3 months ago
GP has asked for data/study on safety of frequent B12 injections
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her understanding of the recommendation of 1mg per 3 months and anymore is unsafe...arghh! My current GP is asking for information - thank heavens!!
auldreekie
in
Pernicious Anaemia Society
3 months ago
pernicious anemia
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Lucymay82
in
Pernicious Anaemia Society
3 months ago
After some info on cardio exercise and B12 deficiency.......
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
I little bit of my B12 history: diagnosed 7½ years ago, been self injecting for 7 years, and am currently SI'ing every 3 days. With this protocol I have no symptoms. I can walk for miles every day, I can do weight training at the gym 2 to 3 times a week, I work, I go out, I have a happy, healthy marriage
BeachArt
in
Pernicious Anaemia Society
3 months ago
Thyroid Test Results
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
As a result of my GP pressurising me to reduce Levothyroxine intake I have had tests carried out privately. My weight justifies the dosage of 200mcg daily that is currently prescribed. (1.6mcg/kg) However this dosage results in incredibly low TSH levels. My GP seeks to raise TSH levels. Results are
Eccleston
in
Thyroid UK
3 months ago
low TSH
I have autoimmune thyroid disease diagnosed 23yrs ago and have been on the hypothyroid treadmill since. Yet again GP wants to reduce my levothyroxine and liothyronine as my TSH is 0.12. this happens regularly and my TSH never changes. Many years ago an ultrasound of my thyroid showed it was “shrivelled
I have autoimmune thyroid disease diagnosed 23yrs ago and have been on the hypothyroid treadmill since. Yet again GP wants to reduce my levothyroxine and liothyronine as my TSH is 0.12. this happens regularly and my TSH never changes. Many years ago an ultrasound of my thyroid showed it was “shrivelled
vsloan1
in
Thyroid UK
3 months ago
recommedations for patches or lozenges
I have been injecting my son with B12 for a couple of months about twice a week. He tried self injecting but has a needle phobia and was passing out. He is about to go away Europe for a month and I thought to get him some patches or lozenges to try and help keep his levels of B12 up. Has anyone used
I have been injecting my son with B12 for a couple of months about twice a week. He tried self injecting but has a needle phobia and was passing out. He is about to go away Europe for a month and I thought to get him some patches or lozenges to try and help keep his levels of B12 up. Has anyone used
Hectorsmum2
in
Pernicious Anaemia Society
3 months ago
When to take Medication, Vits and HRT?
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Hi All Please can you give me some advice? I would like to begin taking Estrogen (Lenzetto spray) and Progesterone (Utrogestan) again. I am fearful though, when I began taking it last time my TSH went up to 28 so had to stop taking it. I was taking it a few hours in a morning after my thyroid
Lavender-Blue
in
Thyroid UK
3 months ago
New user of NDT
Hi I was diagnosed with an underactivity Thyroid in Sept 2006 and since then have been taking 100 mcg Levothyroxine. Over the years I have been feeling very tired, and escalting weight gain. My GP is always telling me that my Thyroid blood tests are normal. Through consulting with a private UK based
Hi I was diagnosed with an underactivity Thyroid in Sept 2006 and since then have been taking 100 mcg Levothyroxine. Over the years I have been feeling very tired, and escalting weight gain. My GP is always telling me that my Thyroid blood tests are normal. Through consulting with a private UK based
Georgie2386
in
Thyroid UK
3 months ago
Results - help please
Hi there,I am posting on behalf of my mum (I have hashis and in my own personal nightmare!). She has diagnosed hypothyroidism, not autoimmune. She is 72, has been on levo for around 20 years, current dose 75mg, she doesn't specify a brand so I suspect it's whatever the pharmacist gives her. Serum ferritin
Hi there,I am posting on behalf of my mum (I have hashis and in my own personal nightmare!). She has diagnosed hypothyroidism, not autoimmune. She is 72, has been on levo for around 20 years, current dose 75mg, she doesn't specify a brand so I suspect it's whatever the pharmacist gives her. Serum ferritin
Zarahb
in
Thyroid UK
3 months ago
Being gas-lit: NOT Hypothyroidism, it’s Silent Reflux says Consultant Thyroid/ENT – Advice requested.
I’m now 73. It’s six years since I first presented to a GP with a swelling on my neck and poor concentration, which within a fortnight progressed to include zombie-like brain fog. Fearing lymphoma I was fast-tracked for an ultrasound scan on my thyroid which showed multiple tiny swellings on my left
I’m now 73. It’s six years since I first presented to a GP with a swelling on my neck and poor concentration, which within a fortnight progressed to include zombie-like brain fog. Fearing lymphoma I was fast-tracked for an ultrasound scan on my thyroid which showed multiple tiny swellings on my left
TorcHouse
in
Thyroid UK
3 months ago
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