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Cutaneous T cell lymphoma (CTCL)
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Bloodwise news
Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce that NHS England have confirmed that two blood cancer treatments will continue to be available to NHS patients via the Cancer Drugs Fund. The treatments were delisted from the CDF in September, but have been readmitted following
Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce that NHS England have confirmed that two blood cancer treatments will continue to be available to NHS patients via the Cancer Drugs Fund. The treatments were delisted from the CDF in September, but have been readmitted following
Hidden
in
CLL Support
9 years ago
Stem cell transplant
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Hi all I am at the moment awaiting a stem cell transplant for my systemic scleroderma as advised by professor Denton at royal free and was wondering wether anybody out there has had it and what was the result x
Typicalmommy
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Brain Aneurysms, Brain Tumours & Stage 3 Non Hodgkins Lymphoma in less than 3 months....my carer, Husband and Father!
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Zero support, mentally, or physically. His daughter, now 25 was diagnosed with 6cm Brain Aneurysm this time last year, and still recovering from coiling that has slowed the aneurysm a little. Yet, my hubby 47, is blanked, repeatedly told not to worry...it's doubtful my hubby, his daughter and his
Claire71uk
in
Pain Concern
9 years ago
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Possible genetic key in Diffuse Large B-cell lymphoma (DLBCL) may explain why some patients don't respond to treatment
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
Oxford researchers funded by the UK blood cancer charity Bloodwise, [i]"have found that high levels of shortened forms of a protein, known as FOXP1, in a patient's lymphoma cells enable the cancer to evade the immune system, potentially nearly halving survival rates for these patients"[/i]: http://www.medicalnewstoday.com
AussieNeil
Partner
in
CLL Support
9 years ago
Variability in platelet count
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
I am ten weeks into the clinical trial with ACP-196 and all is going well. My white count rose and peaked at about day 60 and has decreased 25% to today (day 85). I arbitrarily put a cubic polynomial through these data. https://www.desmos.com/calculator/x6fbswb2lq But the platelets are all over the
Ramses
in
CLL Support
9 years ago
update on daughter
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
Well daughter has been in hospital for a week, they found a nasty virus that they didnt want it to mature. It would do a lot of damage. The good news is there could be action on the bone marrow transplant in the middle of Dec. We all have our fingers crossed. I said to her there is a small light at the
fastball
in
NRAS
9 years ago
CLL relapse and Bendamustine
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Hi, My dad has CLL and is possibly going to need more chemo in the next couple of months. The consultant said it would be Bendamustine but I've read that this drug is possibly going to be delisted in November. Please can anyone advise on an alternative if it is delisted or is it possible to get the
Sara2013
in
CLL Support
9 years ago
MDS World Awareness Day today 25th October 2015
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Thought you may be interested. MDS is a rare bone marrow disease which is only curable by a cell stem or bone marrow transplant. I can't find any information or indeed references on this web site but anyone affected, see more here www.mdspatientsupport.org.uk. Best regards Glyn
Gforce1
in
CLL Support
9 years ago
Another new one
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Just found your group and thought I'd say hello. No major issues at the moment but it's always good to stay connected. I was diagnosed in 2009, required treatment earlier this year, and am now in a partial remission. I had bendamustine, Rituxan, and Idelalisib as part of a clinical trial but failed
Eagle5327
in
CLL Support
9 years ago
Sickle Cell Society please advise me of what you mean when you say the following!!
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
Could you please explain to me why on you website it adamtly states, and I quote "People who ONLY (are you for real?) Have Sickle Cell Trait do not suffer any of the symptoms of Sickle Cell Anemia. Sickle Cell Trait is NOT an illness and people with trait are completely healthy" I feel that this is
benhudson444
in
Sickle Cell Society
9 years ago
Plant-derived compound shows activity against Non Hodgkin Lymphoma (NHL). CLL is a NHL.
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
[i]"The active compound in a plant extract has shown promise for treating non-Hodgkin lymphomas (NHLs), according to researchers. The compound, withaferin A, is a steroidal lactone isolated from the Ayruvedic medicinal plant Ashwagandha (Withania somnifera) : : Withaferin A exhibited activity in several
AussieNeil
Partner
in
CLL Support
9 years ago
Dr. Shpall on Therapeutic Agents for the Treatment of CLL
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Elizabeth J. Shpall, MD, professor, deputy department chair, Department of Stem Cell Transplantation, Division of Cancer Medicine, medical director, Cell Therapy Laboratory, director, Cord Blood Bank, the University of Texas MD Anderson Cancer Center, discusses idelalisib and ibrutinib for the treatment
Justasheet1
in
CLL Support
9 years ago
New PMRGCAuk Café Meet-ups in Orpington, Maidstone, Sevenoaks and Hastings
PMRGCA café meet-ups are a great new way to meet others with polymyalgia rheumatica and giant cell arteritis who live in your area. Four new café meet-ups - Orpington, Maidstone, Sevenoaks and Hastings - are now open for you. All the details are on the PMRGCAuk website - links below: Orpington - http
PMRGCA café meet-ups are a great new way to meet others with polymyalgia rheumatica and giant cell arteritis who live in your area. Four new café meet-ups - Orpington, Maidstone, Sevenoaks and Hastings - are now open for you. All the details are on the PMRGCAuk website - links below: Orpington - http
pennyw
Administrator
in
PMRGCAuk
9 years ago
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR 2pm with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR 2pm with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at
Hidden
in
PMRGCAuk
9 years ago
REVISED SPEAKER PLYMOUTH 21ST OCTOBER
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at short
Update to PMRGCA meeting on 21st October at the Copthorne Hotel Plymouth PL1 1AR with Dr Bhaskar Dasgupta a Leading Rheumatologist and Head of Rheumatology at Southend University, Polymyalgia Rheumatica & Giant Cell Arteritis unfortunately he is unable to attend and we have managed to arrange at short
Hidden
in
PMRGCAuk
9 years ago
First adult cured of SCD . America.
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Adults with sickle cell disease can be cured without chemotherapy – the main barrier that has stood in the way for them for so long,” Rondelli said. “Our data provide more support that this therapy is safe and effective and prevents patients from living shortened lives, condemned to pain and progressive
Hidden
in
Sickle Cell Society
9 years ago
FDA updates warning about Bendamustine (Trenda)
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system transfer devices (CSTDs), adapters, and syringes containing polycarbonate or acrylonitrile-butadiene-styrene (ABS). In an expanding world of
ThreeWs
in
CLL Support
9 years ago
MRD negative
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
Fowey2009
in
CLL Support
9 years ago
Imaging provides clearer picture of Hematopoietic Stem Cells (HSCs) and the B Cell surface
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
The billions of blood cells we produce every day come from just a few active Hematopoietic Stem Cells in our bone marrow. Understanding more about how these hard working cells function is critical, not only to improving the treatment of blood conditions and blood cancers, such as CLL, but many medical
AussieNeil
Partner
in
CLL Support
9 years ago
is this the correct viles ?
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it right, Vitamin B12 METHYLCOBALAMIN 20mg: Sterile Diluent 5ml: Ideal for Self-Administration via Injection/Sublingual Dropper/Nasal Spray: Each
catherinejordan
in
Pernicious Anaemia Society
9 years ago
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