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Cutaneous T cell lymphoma (CTCL)
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V-Kit Hardy-Zuckerman 4 Feline Sarcoma Viral Oncogene Homolog
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
My Son had his Kit Gene test back which may answer the family health and leukaemia coincidence. It shows that he has the kit gene which make a bone marrow transplant more likely now so they are now looking to see if his brother is a match ( 25% chance ) What we do not know is who of us has the gene
Offcut
in
Lung Conditions Community Forum
9 years ago
Joe Parzych,
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Am a relapsed CLL patient, residing in West suburban Chicago. First diagnosed in 2008, and receive care at Nithwestern Hospital in Chicago. Started participation of clinical trial March 2014, ABT-199 and Rituxan. In remission since December 2014. Feeling very good.
Parzych
in
CLL Support
9 years ago
Bone marrow transplant
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Hi I have son who's 10 years old He has had thalasemia major where his body don't make blood and he has to have regular blood transfusions . We have blood every 4 weeks and has a check 2 days before having blood of how much hemo globian level it is to give blood. Over the 10 years he has had other
Umar7860
in
My Ovacome
9 years ago
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Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Hi everyone I have had type 1 diabetes for 38 yrs now but unfortunately the combination of time and mismanagement in my youth have given me a variety of complications The most severe is renal failure and because of this I am facing transplant surgery I am pre dialysis and have been given options of kidney
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Kidney or pancreas kidney - ??????????
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Hi Ive just been made aware of this site (thankyou) I am a type 1 diabetic diagnosed 38 yrs ago. The combination of time and mismanagement in my youth has left me with a variety of problems. The most serious being renal impairment - I am not yet on dialysis but Im guessing its not to far away My mind
Mark3365
in
Kidney Transplant Patient Support
9 years ago
Pruritus (itching) US & Eastern Canadian Resouces
Poligone is a researcher in his own field with a focus on CTCL (
Cutaneous
T
Cell
Lymphoma
) and informed me that he has a collaborative study ongoing with a prominent CLL specialist Dr. Clive Zent also at the Univ. Rochester Medical Center in NY State, Wilmot Cancer Center.
Poligone is a researcher in his own field with a focus on CTCL (
Cutaneous
T
Cell
Lymphoma
) and informed me that he has a collaborative study ongoing with a prominent CLL specialist Dr. Clive Zent also at the Univ. Rochester Medical Center in NY State, Wilmot Cancer Center.
ThreeWs
in
CLL Support
9 years ago
Why we need to register and report the results of all clinical trials
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
schwit1 writes in Slashdot: [i]"The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to record their data as well as document their outcomes, caused a significant drop in trials producing positive results. From Nature: http://www.nature.com
AussieNeil
Partner
in
CLL Support
9 years ago
Guide to buying supplements in UK
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
Interesting programme on TV last week, BBC's 'Trust Me I'm a Doctor', that is relevant for anyone buying supplements in the UK. http://www.bbc.co.uk/programmes/articles/4hX30rMYkMv9YjMTH38MY6/do-herbal-supplements-contain-what-they-say-on-the-label I always thought that the UK supplement industry had
badpiglet
in
PBC Foundation
9 years ago
The Anti-Inflammatory Diet
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular âbuzz wordâ in the world of nutrition and cancer. Foods and nutrients are touted for their âanti-inflammatoryâ properties, and we happily associate this with good health - as we should. However,
Check out this new article from Alexandra Rothwell, a registered dietitian. Inflammation is a popular âbuzz wordâ in the world of nutrition and cancer. Foods and nutrients are touted for their âanti-inflammatoryâ properties, and we happily associate this with good health - as we should. However,
tydonald
in
Cook For Your Life
9 years ago
update on daughter
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
As you all know my daughter has had an on going illness that turned out to be Aplastic Anemia. She had some treatment back in April which was a cocktail of anti_biotic straight into her blood ( i believe) through an Henrick Feed, This they used for everything, Steroids etc. They were hoping this would
fastball
in
NRAS
9 years ago
LIKE A PHOENIX. . . . .
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
Hello Peops I have an update on my MF. . . . I'm sorry to say that after a year or so my Ruxo Golden Ticket Has left me on a very sticky wicket, My oversize spleen remains the same It simply hasn't played the game, The fibrosis is present within my bones And to be honest I fear these 'undertones'.
JediReject
in
MPN Voice
9 years ago
Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as if it will stop any time soon, which is a huge improvement on the situation of just a few years ago, when FCR was the only improved treatment to
AussieNeil
Partner
in
CLL Support
9 years ago
Joining the anxiety of parents
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
It's good to read about people sharing useful info.I've been dealing with this problem for 7 years when.n my son who is 8 now was diagnosed with IT and has had 3 bone marrow tests so far.I ve been told the only cure is bone marrow transplant but I'm not sure how far that can be successful. I have to
S38abcd
in
ITP Support Association
9 years ago
In the beginning...
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
...There was smoking, and obesity and .... well you know the rest. A trip down AML lane led to a bone marrow transplant and all seemed well until COPD came along. So, if the one doesn't get you the other one will - only slower! I am late in years now. Started out as a journalist (sorry people) and then
Timberman
in
Lung Conditions Community Forum
9 years ago
Transplant coming soon!
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199). The ibrutnib worked great for about a year and a half. When it failed it was fast! Then I tried ABT199 which helped save my life, but was short
Hidden
in
CLL Support
9 years ago
Hopeful
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Hey everyone, Today has been one of them achy hurting day's, so hubby went into town and brought me a massive tub of Epsom salts and magnesium citrate - never tried these before. So even though today sucks I'm feeling hopeful these will work/help? Plus side I'm enjoying a lazy day and had a not so pleasant
Keeleybee
in
Fibromyalgia Action UK
9 years ago
Hodgkin's Disease
Pet-Ct Impression after 3 Chemotherapy Cycles: 1.Scan doesnot reveal any abnormal hypermetabolic lesion anywhere in the entire torso. 2.Mild Splenomegaly. 3. Only non FDG- avid small nodes noted in the cervical,axillary, mediastinal & abdominal region. 4. No other evidence of metabolically active disease
Pet-Ct Impression after 3 Chemotherapy Cycles: 1.Scan doesnot reveal any abnormal hypermetabolic lesion anywhere in the entire torso. 2.Mild Splenomegaly. 3. Only non FDG- avid small nodes noted in the cervical,axillary, mediastinal & abdominal region. 4. No other evidence of metabolically active disease
babu57
in
Breast Cancer India
9 years ago
Stem cell transplants
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
This was on the ACOR list today. I found it fascinating. Jeff "Date: Thu, 11 Jun 2015 06:51:53 -0500 From: Dennis Pinkard <pinkardd@CHARTER.NET> Subject: Researchers identify patients at risk for stem cell transplant complications Phase 2 clinical trial. http://www.sciencedaily.com/releases
Justasheet1
in
CLL Support
9 years ago
Large B Cell lymphoma and Grave Disease
I have read that thyroid disease is a B cell auto immune disorder and am wondering if there is a link? I beat lymphoma and two years into remission am told I may have Graves. Little nervous...
I have read that thyroid disease is a B cell auto immune disorder and am wondering if there is a link? I beat lymphoma and two years into remission am told I may have Graves. Little nervous...
suky58
in
Lymphoma Canada
9 years ago
Vigorous physical activity may lower risk of NHL
CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was interested to read that people that engage in vigorous physical activity may have a lower risk of developing NHL: http://www.hematologytimes.com/p_article.do?id=5072 [i]âWe know that being physically active reduces the risk
CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was interested to read that people that engage in vigorous physical activity may have a lower risk of developing NHL: http://www.hematologytimes.com/p_article.do?id=5072 [i]âWe know that being physically active reduces the risk
AussieNeil
Partner
in
CLL Support
9 years ago
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