Recently Diagnosed

[Afleisch44]

Anaplastic Large Cell Lymphoma of the skin Dec 22nd. Great Xmas present! Bone marrow test Jan 3rd PET soon to follow. Hoping it is cutaneous

[Shar0n Volunteer]

Good luck with your tests- hang in there!

[Charleneden in reply to Shar0n]

Hello..I was diagnosed last Christmas Eve..so yeah I know how you feel...I have follicular lymphoma nhl..just wait and watch..I researched all I could and believe SUGAR is a no no..I don't eat anything that has sugar in it.so do some research and figure out what is best for you

[Afleisch44 in reply to Charleneden]

How was your chemo, have you finished and are you in remission?

[Charleneden]

Oh no I am just wait and watching...went in July and all three lymp nodes were smaller.then went in Dec. And they had increased in size.so I had to rethink what I did different these past 6 months..and I had increased my carbs and what I was eating had some sugar...like cabbage saute onions and green beans ..so now I am eating meat and cheese and eggs .which I don't think has any sugar and very little carbs bc carbs will turn into sugar.mi go now every 3 months

[Afleisch44 in reply to Charleneden]

So they didnt recommend any treatment for you?

[Charleneden]

No..and I am stage 4..I have 3 swollen lymphoid nodes and then we did a bone marrow byopse and it is in 8% of my bones so that is what threw Me into stage 4..I take a lot of vitamins and really watch what I eat ...absolutely no SUGAR

[Shar0n Volunteer]

Sometimes they treat the nodes with radiotherapy to shrink or get rid of them. Watch and wait is tough but you get a chance to improve your diet/exercise/lifestyle in the hope of keeping it in remission for as long as possible. If the lymphoma progresses or becomes aggressive, treatment is required to send it back into remission. It's different in each case. You can never do wrong by cleaning up your diet and getting as healthy as you can and it has the added benefits of making you feel good and taking your mind off the illness. I am nearly three years on watch and wait and my whole lifestyle has changed since being diagnosed. In follicular lymphoma, there seems to be little benefit in treating too early if there is no progression. This may not apply with other versions of the disease.

[Afleisch44 in reply to Shar0n]

Thanks for the response, I am learning daily about the many forms Lumphoma can take. I just had my bone marrow test yesterday PET soon to follow.

I have been reading about diet especially since I will more than likely be on a CHOP chemo.

All the best

[Shar0n Volunteer]

Yes, Charleneden - I agree with you about sugar.