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Cutaneous T cell lymphoma (CTCL)
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Bob is cancer survivor
Hi everyone, my name is Bob and I am a cancer survivor. I was diagnosed with NHL late 2013, underwent Chemotherapy (RCHOP) for 4 months followed by 3 weeks of daily radiation treatment. Cancer is still in remission and hope it stays that way. I do visit my Oncologist every six months for blood work
Hi everyone, my name is Bob and I am a cancer survivor. I was diagnosed with NHL late 2013, underwent Chemotherapy (RCHOP) for 4 months followed by 3 weeks of daily radiation treatment. Cancer is still in remission and hope it stays that way. I do visit my Oncologist every six months for blood work
bobbyd943
in
Non Hodgkin's Lymphoma Friends
8 years ago
Cause of GCA chicken pox and shingles virus??
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
Picked up the following today from a Facebook group for GCA based largely in USA thought this may be of interest to share:- A new study developed at the University of Colorado School of Medicine at the Anschutz Medical Campus links the virus that causes chicken pox and shingles to a condition that inflames
DevonMichael
in
PMRGCAuk
8 years ago
CD8 T Cell Lymphoma in skin tissue and muscle
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
Diagnosed Nov 15 with above without suffering from any of the normal symptons, had 6 courses of CHOP treatment, finished Mar 16. Scan revealed I was in complete remission. Had to undergo stem cell transplant in May/Jun 16. Didn't suffer some of the side effects but wouldn't wish on my worst enemy. Further
squashman
in
Non Hodgkin's Lymphoma Friends
8 years ago
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Recently Diagnosed
Anaplastic Large Cell Lymphoma of the skin Dec 22nd. Great Xmas present! Bone marrow test Jan 3rd PET soon to follow. Hoping it is cutaneous
Anaplastic Large Cell Lymphoma of the skin Dec 22nd. Great Xmas present! Bone marrow test Jan 3rd PET soon to follow. Hoping it is cutaneous
Afleisch44
in
Non Hodgkin's Lymphoma Friends
8 years ago
Daughter update
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
I lost my daughter on the 11th Jan. Th funeral is Friday , i believe its the first of the day, 9-00 . I am suffering with a bit of stress. Though at this time I'm trying to be positive and look to the future. I have another daughter who is fighting fit, two sons of whom are both in good health. Tracey
fastball
in
Lung Conditions Community Forum
8 years ago
Advice needed
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
I have been on Laxidu powders 1 or 2 nightly following.a bowel cancer scare some years ago which luckily turned out to be diverticular disease (not diverticulitis itself). I now hear that they can cause problems such as hoarseness etc. Does anyone have any info regarding this.
Gillymar
in
PMRGCAuk
8 years ago
"New to the site"
I'm new here. I am a 70 yr. old female with Lymphoma. They don't know what kind except to say that it is not "non Hodgkin's" I think I am a "wait and see"client however I feel very alone as I live rurally and it is difficult to look up symptoms as it is as yet unclear what kind of lymphoma I have. Does
I'm new here. I am a 70 yr. old female with Lymphoma. They don't know what kind except to say that it is not "non Hodgkin's" I think I am a "wait and see"client however I feel very alone as I live rurally and it is difficult to look up symptoms as it is as yet unclear what kind of lymphoma I have. Does
denmanjemima
in
Lymphoma Canada
8 years ago
Relapsed Mantle Cell Lymphoma--I'm new here!
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
My name is Gail and I am 66 years old. I was diagnosed with MCL in February, 2008 when I was 58 years old and living in Cleveland, Ohio. The only side effect I had were weight loss and swollen lymph nodes under my arms. I had HYPER C-VAD chemo with Rituxin and then had a stem cell transplant in October
Gail2050
in
Non Hodgkin's Lymphoma Friends
8 years ago
New to site
I was diagnosed in 2014 with low grade stage 3 follicular lymphoma. It was discovered as a result of a routine mammogram. I had no real symptoms and so waiting And watching made sense. Had scans in February of 2016 and things still looked OK. The lymphoma transformed in a short period of time to
I was diagnosed in 2014 with low grade stage 3 follicular lymphoma. It was discovered as a result of a routine mammogram. I had no real symptoms and so waiting And watching made sense. Had scans in February of 2016 and things still looked OK. The lymphoma transformed in a short period of time to
Rraasch
in
Non Hodgkin's Lymphoma Friends
8 years ago
NHL 7 Years in Remission
Hello. I was diagnosed with NHL stage 4 B-cell follicular in 2010. Involved were nodes all over as well as bone marrow. Before I was diagnosed with NHL I had complained to my primary doctor and my OBGYN of savere fatigue. Their response was that I am no spring chicken anymore. I ask my primary to check
Hello. I was diagnosed with NHL stage 4 B-cell follicular in 2010. Involved were nodes all over as well as bone marrow. Before I was diagnosed with NHL I had complained to my primary doctor and my OBGYN of savere fatigue. Their response was that I am no spring chicken anymore. I ask my primary to check
Robin-Newman
in
Non Hodgkin's Lymphoma Friends
8 years ago
Bendamustine and effect on stem cells
Hi all. My husband, 49 yrs old, has mantle cell lymphoma. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells. Other doctors are asking us to switch
Hi all. My husband, 49 yrs old, has mantle cell lymphoma. He has currently taken two sessions of Bendamustine/Rituximab. He will be getting an ASCT by end of 6 sessions. It has been brought to our attention that Bendamustine could have a toxic effect on stem cells. Other doctors are asking us to switch
Reem-ayoub
in
Lymphoma Canada
8 years ago
MDS UK Patient and Family Forum Birmingham, UK Saturday, 4th February 2017 10.00 am – 16.30 pm
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
This FREE event will be held at The National Motorcycle Museum Coventry Road, Hampton in Arden Solihull, B92 0EJ This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in an informal discussion regarding their quality-of-life
LCNurse
in
Leukaemia Support
8 years ago
SS carrier
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Morning all glad I found this forum. My daughter is 8 and has hbss. He crisisis are frequent and intense. Often at least 14 days in hospital. She is on all the usual daily medicine such as folic acid, penicillin, hydroxrea and we have morphine and such at home for pain relief. She was on weekly transfusions
Nadineb1
in
Sickle Cell Society
8 years ago
Having Follicular lymphoma was a game changer
I've become way more happier to live everyday and feel lucky to gotten off so easily when I hear of other stories. The constant scan anxiety though is eating a hole in my immune system. Little things like constant cold sore breakouts eat a hole at my positivity. How can I stay on track?
I've become way more happier to live everyday and feel lucky to gotten off so easily when I hear of other stories. The constant scan anxiety though is eating a hole in my immune system. Little things like constant cold sore breakouts eat a hole at my positivity. How can I stay on track?
Merrymary
in
Non Hodgkin's Lymphoma Friends
8 years ago
MRD Negative in the Bone Marrow - clinical trial update
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Debinoz
in
CLL Support
8 years ago
New to group-Marginal zone lymphoma
I'm a 10 year survivor of marginal zone lymphoma. About two years ago my spleen double in size and the cluster of lymph gland above my liver showed cancer activity. The highest white count is 53 and hemoglobin is 9. My journey included two rounds of Rituxan that failed due to severe anaphyletic
I'm a 10 year survivor of marginal zone lymphoma. About two years ago my spleen double in size and the cluster of lymph gland above my liver showed cancer activity. The highest white count is 53 and hemoglobin is 9. My journey included two rounds of Rituxan that failed due to severe anaphyletic
Jackieyar
in
Non Hodgkin's Lymphoma Friends
8 years ago
Living a Different Life but with Gratitude
Hi, My name is Debra and I have been diagnosed with Non Hodgkin's Lymphoma. I did 1 year and 3 months of wait and see, 6 months of intensive chemo and I am finishing up in February my two years of maintenance chemotherapy. I have been in remission for a year and 3 months now but I have to tell you it
Hi, My name is Debra and I have been diagnosed with Non Hodgkin's Lymphoma. I did 1 year and 3 months of wait and see, 6 months of intensive chemo and I am finishing up in February my two years of maintenance chemotherapy. I have been in remission for a year and 3 months now but I have to tell you it
PositiveLiving
in
Non Hodgkin's Lymphoma Friends
8 years ago
Sickle Cell Trait is a disease.
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
This site needs to remove the statements about Sickle Cell Trait because it is wrong. If you have the Trait you will have pain in your body. I have the Trait and also have 4 children with the Trait . I am also published in this area of Sickle Cell disease. If you have the Trait you can go blind. Three
Omie11
in
Sickle Cell Society
8 years ago
Questions
Dr.Sumeet, I have been diagnosed with stage 2b bca.I am er/pr+ve, her2-ve and have tested negative for BRCA1&2. I have completed 5 rounds of N-ACT ( 4 Adrimycin + 1 Paclitaxel) with 3 more taxol to go. After my 4th chemo, I do not feel the lump anymore and my onc did not advise for a scan as he is happy
Dr.Sumeet, I have been diagnosed with stage 2b bca.I am er/pr+ve, her2-ve and have tested negative for BRCA1&2. I have completed 5 rounds of N-ACT ( 4 Adrimycin + 1 Paclitaxel) with 3 more taxol to go. After my 4th chemo, I do not feel the lump anymore and my onc did not advise for a scan as he is happy
Shweta11
in
Breast Cancer India
8 years ago
Hi everyone
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Diagnosed 2 years ago, stem cell transplant 1 year ago, currently on lenalidomide maintenance as part of the Myeloma XI trial. I'm doing OK at the moment, long may it continue!
Louis-Henry
in
Myeloma UK
8 years ago
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