Urine odor has changed: I shared that I... - Non Hodgkin's Lym...

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Urine odor has changed

Judyhoneycomb profile image
13 Replies

I shared that I am still in Rituxin treatment every 3 months for Mantle Cel NHL until July 2017. Something I have noticed is a foul odor of my urine. Sometimes burning. Had it tested and no infection. I try to drink only water and occasional ginger ale. no changes in other medications. Has anyone else had a foul smell?

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Judyhoneycomb
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13 Replies
Andilynn profile image
Andilynn

I thought my urine had a very strong smell for awhile when on Rituxan. My oncologist didn't think it was anything significant. It only lasted a few months for me. Have you checked with a urologist?

Judyhoneycomb profile image
Judyhoneycomb in reply to Andilynn

yes and he told me to ask oncologist and my oncologist was like dumbfounded ... not had any complaints at least... i checked Rituxin side effects and couldn't find anything about it there.

Andilynn profile image
Andilynn in reply to Judyhoneycomb

Maybe this side effect isn't listed, but apparently some of us experienced it. I always seem to get the side effect that's listed on the tiny print at the bottom of the list. I was always annoyed when my young oncologist would say that he didn't have any patients with this or that side effect. I felt like saying "Well, you do now!"

Judyhoneycomb profile image
Judyhoneycomb in reply to Andilynn

Thank you. Hope you are in remission.

Andilynn profile image
Andilynn in reply to Judyhoneycomb

I am in remission - thanks so much!

Judyhoneycomb profile image
Judyhoneycomb in reply to Andilynn

Thank you Hope your in remission.

Whitley55 profile image
Whitley55

Whenever I get Rituxin my urine smells like that of a Cat's. Like yourself I keep going to the gyn thinking I have UTI and getting antibiotics

Judyhoneycomb profile image
Judyhoneycomb in reply to Whitley55

thank you, i asked doctor and he had not heard anyone complain...

Judyhoneycomb profile image
Judyhoneycomb in reply to Judyhoneycomb

whitely i am glad you said cat smell because i couldn't describe the smell.. thanks ...

Melodyj profile image
Melodyj

Yes I too have noticed the strong urine smell. Increased my water but no change.

dbalthrop profile image
dbalthrop

I didn't.

Jlisch profile image
Jlisch

Oh my gosh! I thought it was just me so I haven't said a word. I increased my water intake until I was sloshing when I walked but no change in the funky odor. So I figured it must be other meds I'm taking... glad to know I'm not the only one.

Judyhoneycomb profile image
Judyhoneycomb in reply to Jlisch

thanks for your reply... I know I was the same way and hesitant to say anything, blamed it on cranberry pills, others stuff. But it just won't go away. no infections, so it has to be the Rituxin.. but sometimes if I hold bladder too long it burns. i hope you are in remission... I take the rituxin infusions until July of this year.

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