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Cutaneous T cell lymphoma (CTCL)
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Cancer Back again
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
I saw my DR again yesterday and I was in full remission after doing R-EPOCH and finishing in December. By the end of February, I had night sweats again, strong fatigue systems and could not eat. The DR was puzzled and now is scrambling for what to do next. Has anyone been in this situation? This is the
CarenR
in
Non Hodgkin's Lymphoma Friends
7 years ago
Blood results concerns
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
Here are my blood results from yesterday. To "HIGHS" popped up that have never been there before. I've had the LOW abs lymph since chemo so I'm not worried about that. The NEW HIGHS are my concern. Never had before. I'm sick with an upper respiratory thing and on antibiotics so I hope that is
momof12
in
CLL Support
7 years ago
#Sickle cell Strong
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
I have really amazing news which I want to share with everyone! I am one year hospital admissions free! #Sicklestrong As I am sure you all know I have sickle-cell anaemia an inherited blood disorder. Red blood cells which are round and soft become hard and sickle shaped, this causes a multitude of
Anzy
in
Sickle Cell Society
7 years ago
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Need a little clarity..T cell histiocyte rich B cell lymphoma
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
I feel like a bit out of place as I'm not a lymphoma suffer. I have a younger brother in his 30s who was diagnosed with: T cell histiocyte rich B cell lymphoma in Sept 2013 He had 6 cycles of RCHOP completed by Jan 2014. Excellent response and PET scan clear. Relapsed in October 2014 Had 4 cycles
1Anj1
in
Non Hodgkin's Lymphoma Friends
7 years ago
Tocilizumab
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Does anyone have any experience of having been given this drug (by intravenous infusion once a month)? Used as steroid sparing agent. also ... does anyone have any blood tests results for Plasma IL-6. (Cost seems to be same as CRP but more sensitive to extent to which Prednisalone is working).
Tonylynn
in
PMRGCAuk
7 years ago
multiple sclerosis and sickle cell trait
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
Very hard to get doctors to discuss sickle cell trait causing health problems. Have always had blood show up in my urine when examined even when I don't have an infection. I believe this is because of SCT.
shestlouis
in
Sickle Cell Society
7 years ago
Bendamustine/Rituxan
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
I am a 53 year old single male. I was diagnosed with CLL about 10 years ago. In recent months my WBC has raised to almost 200,000 and my platelets have dropped as well as my hemoglobin count. My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of Bendamustine
mejiae
in
CLL Support
7 years ago
CLL / P17 with Mutation
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on Hydrea that brought it down to 177,000 then they added Imbruvica. Hopefully this will bring it down until she can have a complete stem cell transplant
evetom
in
CLL Support
7 years ago
The fight of my life
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
I am a 65year old male, I was battling Mediastinal largeB cell lymphoma, all of 2016. I began having symptoms the last few months of 2015. Terrible night sweats, shortness of breath, severe fatigue, just never put two and two together. The second week of January 2016, I went into respiratory arrest
oncloudnine
in
Non Hodgkin's Lymphoma Friends
7 years ago
PMR - Would appreciate feedback.
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
Hi All, If we wait for science to find a cause and cure for PMR I think we will be waiting a long time! I believe the answer will come from people like you and me, the ones with a vested interested and a motivation to make a break-through for the benefit of all. I should add I have achieved this on
hiandri
in
PMRGCAuk
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Advanced Prostate Cancer: Research Update
Another WebMD interesting post. motosue From treatment vaccines to changes in the medicines you're taking right now, scientists are working to find new treatments for prostate cancer. They build on the "complete revolution in the treatment of advanced prostate cancer" in recent years, says Gary
Another WebMD interesting post. motosue From treatment vaccines to changes in the medicines you're taking right now, scientists are working to find new treatments for prostate cancer. They build on the "complete revolution in the treatment of advanced prostate cancer" in recent years, says Gary
motosue
in
Advanced Prostate Cancer
7 years ago
Common Treatments for Advanced Prostate Cancer
Doctors can treat, but not cure, advanced prostate cancer. The goal is to slow down the cancer's spread and help you feel better. Most men with it have a high quality of life for many years. There are different kinds of treatments, including hormone therapy, immunotherapy, radiation, and chemotherapy
Doctors can treat, but not cure, advanced prostate cancer. The goal is to slow down the cancer's spread and help you feel better. Most men with it have a high quality of life for many years. There are different kinds of treatments, including hormone therapy, immunotherapy, radiation, and chemotherapy
motosue
in
Advanced Prostate Cancer
7 years ago
Herclon(Trastuzumab) not paid by Insurance Company by saying that"Hospitalization is not Required to take this injection,hence not paid"
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
Dear Sirs, This is my 2nd letter on the same issue. I have Group Insurance Policy provided by my company. This is from National Insurance Co. Limited & managed by TPA- M/s E-Meditek TPA Ltd. My wife is a patient of breast cancer,most of treatment completed but mainenance Trastuzumab
shashishekhar
in
Breast Cancer India
7 years ago
Advice for new lymphoma diagnosis
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
I just found out tonight my mother has lymphoma. Biopsy and another cat scan won't be done for 4 more days and they are sending her home. She lives in rural nova Scotia. Just looking for any advice regarding our next steps? Should we be seeking opinions in Halifax right away? Thanks
Hal2628
in
Non Hodgkin's Lymphoma Friends
7 years ago
Stem cell transplant for AML 8 yrs on
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Hi all as you can see from title I have been in remission for 8yrs following a HSCT from my brother. I would like to ask a question. I knew I would get lots of infections early post transplant which is to be expected. Now 8 yrs along I am still getting more than my fair share of colds, so much so I am
Shazzzey
in
Leukaemia Support
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
Rituxan (Rituximab) round two three for and five
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
Hey guys Last month I had my 2nd infusion which I hand an awful reaction (Backpain extreme sweating and vomiting) and this was only within 15 of the infusion starting. it was decided by my Rheumatologist that we ould not continue with the treatment as the reaction could be worse the next time. I
wotshernameagain
in
LUPUS UK
7 years ago
Act of Love
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Hi I am new to this site and looking for people based in the Uk who have scleroderma. My sister who is also my best friend was diagnosed a year to date with diffuse systematic scleroderma. She is listed as Cole57 and we are both here to read about people's experiences, share what knowledge she has from
Shelley53a
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
actemra
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
Basel, 24 January 2017 FDA grants priority review for Roche’s Actemra/RoActemra (tocilizumab) supplemental biologics license application for giant cell arteritis, a form of vasculitis Roche recently announced positive results from a Phase III clinical trial in giant cell arteritis (GCA) There have
mamacline
in
PMRGCAuk
7 years ago
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