Platelet count going down

I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They continued with 2 more treatments and the count was down to 106. and continues:12/21- 87, 1/9 - 81, 2/2 - 73. My Oncologist does not know why the count went back t 130 before the last 2 infusions were done. And does not know why my platelet count is going down.

Where can I find answers to "why" 1. My platelet count went up so soon? 2. My platelet is continuing to drop.

2 Replies

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  • What treatment did you have initially? FCR or bendamustine/rituxan [BR]?

    And now you are on rituxan maintenance?

    Is Idiopathic thrombocytopenic purpura (ITP) being considered? Have they tried prednisone? Have they done a bone marrow biopsy?

    medlineplus.gov/ency/articl...

    Sorry, I don't have any answers...

    ~chris

  • I don't know. Are you seeing a CLL specialist ? I would advise to get another opinion from a CLL specialist if not.

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