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connective tissues & lupus flare
Hi everyone, hope everyone is coping the heat is not good here in UK, I have recently and still am having issues with my left eye which is dry and painful, eye clinic ruled out GCA advised could be linked to post covid (many people in waiting area had Covid a week or two ago and have never had eye issues
Hi everyone, hope everyone is coping the heat is not good here in UK, I have recently and still am having issues with my left eye which is dry and painful, eye clinic ruled out GCA advised could be linked to post covid (many people in waiting area had Covid a week or two ago and have never had eye issues
Geeforce99
in
LUPUS UK
2 years ago
Skin reaction to bone growth stimulator electrode pads
I got a weepy itchy rash from the electode pads. I was prescribed steroid cream that only helped a tad. I ended up getting weird rashes and itching on random areas of my body and am now on a oral steroid that is working very well. Just curious if anyone has had this happen. Surgeon said to stop wearing
I got a weepy itchy rash from the electode pads. I was prescribed steroid cream that only helped a tad. I ended up getting weird rashes and itching on random areas of my body and am now on a oral steroid that is working very well. Just curious if anyone has had this happen. Surgeon said to stop wearing
Jeaniem130
in
Pain Concern
2 years ago
Interferons as the First Choice of Cytoreduction in ET and PV
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
Manouche
in
MPN Voice
2 years ago
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Please help I woke to tinnitus few days ago I cant cope with this
hi everyone I am new here. In may I was diagnosed with eustachian tube blockage after a cold where my hearing reduced a little. It has since improved ears still pop and have full feeling. This occured not long after giving birth. GP referred me to ENT in May still waiting to be seen. Few days ago
hi everyone I am new here. In may I was diagnosed with eustachian tube blockage after a cold where my hearing reduced a little. It has since improved ears still pop and have full feeling. This occured not long after giving birth. GP referred me to ENT in May still waiting to be seen. Few days ago
Ravks
in
Tinnitus UK
2 years ago
Hydrotherapy and beyond?
I have recently been referred for a series of 4 one to one Hydrotherapy sessions at my NHS hospital. When these finish I can take up a course of six classes targeted at either back/core or hip/knee. I am very grateful for the opportunity and have found the comfort of warm, weight bearing water a revelation
I have recently been referred for a series of 4 one to one Hydrotherapy sessions at my NHS hospital. When these finish I can take up a course of six classes targeted at either back/core or hip/knee. I am very grateful for the opportunity and have found the comfort of warm, weight bearing water a revelation
Gillyflower70
in
NRAS
2 years ago
Wilson’s Disease
Has anyone had their Cerebellar Ataxia re diagnosed as Wilson’s Disease? It’s apparently difficult to diagnose, but the neurological symptoms are similar.
Has anyone had their Cerebellar Ataxia re diagnosed as Wilson’s Disease? It’s apparently difficult to diagnose, but the neurological symptoms are similar.
Ostap
in
Ataxia UK
2 years ago
Gut Biome, Inflammation, Leaky Gut and Diet
This relates back to my first thread wherein I asked about my serious flare and mentioned in passing about work done to redo my gut biome in 2019 after my PMR diagnosis. I'm newly back from the GP appointment where I expected to hear that my gut biome had gone out of balance again and that might be
This relates back to my first thread wherein I asked about my serious flare and mentioned in passing about work done to redo my gut biome in 2019 after my PMR diagnosis. I'm newly back from the GP appointment where I expected to hear that my gut biome had gone out of balance again and that might be
pata63
in
PMRGCAuk
2 years ago
Coping with working full time with PMR
I've read many helpful suggestions on this site on how to manage a heavy workload and PMR. I have a demanding job with a lot of responsibility. I have sought to balance my symptoms (heavy, heavy harness, brain fog, fatigue and reduced confidence) with work for the past few months, with varying degrees
I've read many helpful suggestions on this site on how to manage a heavy workload and PMR. I have a demanding job with a lot of responsibility. I have sought to balance my symptoms (heavy, heavy harness, brain fog, fatigue and reduced confidence) with work for the past few months, with varying degrees
TooTiredTeacher
in
PMRGCAuk
2 years ago
Eustachian tube dysfunction
Hi, got covid in feb this year, right ear still blocked. Many visits to surgery and audiologist. Diagnosed Eustachian Tube Dysfunction. Trapped negative pressure in ear, won’t budge. Can feel liquid in ear on a bad day and constant popping, pressure in the year hirts. Been referred to ENT but have
Hi, got covid in feb this year, right ear still blocked. Many visits to surgery and audiologist. Diagnosed Eustachian Tube Dysfunction. Trapped negative pressure in ear, won’t budge. Can feel liquid in ear on a bad day and constant popping, pressure in the year hirts. Been referred to ENT but have
Hidden
in
Tinnitus UK
2 years ago
Should I start on adalimumab
Hi all, I've had RA for about 25years and after a few poorly years have been relatively stable on ( mostly)25mg Mxt, with a knee replacement and wrist surgery along the way. Since December I have been having fairly regular flare ups, one of which put me in A & E with a high CRP level & severe pain.
Hi all, I've had RA for about 25years and after a few poorly years have been relatively stable on ( mostly)25mg Mxt, with a knee replacement and wrist surgery along the way. Since December I have been having fairly regular flare ups, one of which put me in A & E with a high CRP level & severe pain.
jayh
in
NRAS
2 years ago
Another Comparison of PEG to Besremi
I had this in a reply thread, figured it's worth its own. This recent report shows PEG and Bes are not the same in the context of Hep C. -- No way to say whether it's relevant to us, esp since Hep C treatment adds oral ribavirin, and it's a small trial. But it seems to show the two are good for Hep
I had this in a reply thread, figured it's worth its own. This recent report shows PEG and Bes are not the same in the context of Hep C. -- No way to say whether it's relevant to us, esp since Hep C treatment adds oral ribavirin, and it's a small trial. But it seems to show the two are good for Hep
EPguy
in
MPN Voice
2 years ago
Hearing test?
I know we are all different but I was just wondering if the general view is that Puretone audiometry, tympanometry and otoaccoustic testing is OK to go ahead with when you have tinnitus. I appreciate things needs to be measured but am a bit fearful of anything in my ears that will create a reaction.
I know we are all different but I was just wondering if the general view is that Puretone audiometry, tympanometry and otoaccoustic testing is OK to go ahead with when you have tinnitus. I appreciate things needs to be measured but am a bit fearful of anything in my ears that will create a reaction.
Harrier58
in
British Tinnitus Association
2 years ago
Mometasone Furoate for ETD (causing Tinnitus?)
I have been using Mometasone Furoate to treat my Eustachian tube dysfunction. Once in the morning 1 spray up each nostril and once in the evening again 1 spray up each nostril. Chewing gum and sucking sweets also I can sometimes get a lot of brown bits to come out of my tubes which I spit out into the
I have been using Mometasone Furoate to treat my Eustachian tube dysfunction. Once in the morning 1 spray up each nostril and once in the evening again 1 spray up each nostril. Chewing gum and sucking sweets also I can sometimes get a lot of brown bits to come out of my tubes which I spit out into the
Squarkyboy
in
British Tinnitus Association
2 years ago
Lymphodema in Palm of hand
Hi All I have LE in left arm, very mild but since last Oct I had a flare up and it went into my hand, and it actually went into the palm of my hand. I got bandaging to remove it as much as possible, but there is some fluid at the bottom of my fingers ( the fat pads under my fingers) and a little below
Hi All I have LE in left arm, very mild but since last Oct I had a flare up and it went into my hand, and it actually went into the palm of my hand. I got bandaging to remove it as much as possible, but there is some fluid at the bottom of my fingers ( the fat pads under my fingers) and a little below
Buddywhite
in
LSN
2 years ago
Diagnosis of Colon Cancer
I have just been diagnosed with colon cancer and am due for chemotherapy very soon. Having struggled with keeping my thyroid levels correct for many years, I wondered if anyone had any advice for me on what to eat, how to manage while undergoing chemotherapy, If this should be posted on another forum
I have just been diagnosed with colon cancer and am due for chemotherapy very soon. Having struggled with keeping my thyroid levels correct for many years, I wondered if anyone had any advice for me on what to eat, how to manage while undergoing chemotherapy, If this should be posted on another forum
Buttonmoon299
in
Thyroid UK
2 years ago
Sibelium and mental health
Hello, ive been taking sibelium 5mg for about 4 months, it has been going ok sk far, the only symptoms i experienced were drowsiness and increased appetite, but recently i got a really bad stomach flu and had to take antibiotics, although my pharmacist and drs told me there is no interactions, i felt
Hello, ive been taking sibelium 5mg for about 4 months, it has been going ok sk far, the only symptoms i experienced were drowsiness and increased appetite, but recently i got a really bad stomach flu and had to take antibiotics, although my pharmacist and drs told me there is no interactions, i felt
Kevin160
in
National Migraine Centre
2 years ago
Gentamicin
I have Bronchiectasis and have had it a long time .I have a New Consultant and she has put me on inhaled Gentamicin one month on ,one month off ,which I have just started..My main concern is hearing loss which they say c an happen. .I wear hearing aids already which is a recent experience.My Consultant
I have Bronchiectasis and have had it a long time .I have a New Consultant and she has put me on inhaled Gentamicin one month on ,one month off ,which I have just started..My main concern is hearing loss which they say c an happen. .I wear hearing aids already which is a recent experience.My Consultant
cat50
in
Lung Conditions Community Forum
2 years ago
Physiotherapy and hydrotherapy questions
hi I have been diagnosed with fibromyalgia since March time it has taken 15 months to get this diagnosed with a rheumatologist. Anyway, I wanted to put this question out there and ask if anyone has had physio for this and do you have to get referred by a doctor and does anyone know if you can get hydrotherapy
hi I have been diagnosed with fibromyalgia since March time it has taken 15 months to get this diagnosed with a rheumatologist. Anyway, I wanted to put this question out there and ask if anyone has had physio for this and do you have to get referred by a doctor and does anyone know if you can get hydrotherapy
fibrogirl41
in
Fibromyalgia Action UK
2 years ago
Stomach flu
Oh my goodness the pains on my stomach are awful I used sick day rules for two days but couldn’t sleep I’m assuming high pred dose. Iv taken Imodium but it’s persistent. I’m doing BRAT diet but not gonna eat today. Back to 10.5mg pred I do have hip pain! Any advice pleeeeeeaaaseeee
Oh my goodness the pains on my stomach are awful I used sick day rules for two days but couldn’t sleep I’m assuming high pred dose. Iv taken Imodium but it’s persistent. I’m doing BRAT diet but not gonna eat today. Back to 10.5mg pred I do have hip pain! Any advice pleeeeeeaaaseeee
Uglow
in
PMRGCAuk
2 years ago
The PSP-CBD Ice Cream Challenge 2022 Day 8
Oak Island -The Smith's Cove Excavation Seems appropriate for the finale of season 9 today. Acorns (fans of the show) will get this. BTW, the lettering is made from milk chocolate... I used a mold. The first letter 'T' represents the lead cross found on the shoreline. I made the cofferdam with graham
Oak Island -The Smith's Cove Excavation Seems appropriate for the finale of season 9 today. Acorns (fans of the show) will get this. BTW, the lettering is made from milk chocolate... I used a mold. The first letter 'T' represents the lead cross found on the shoreline. I made the cofferdam with graham
daddyt
in
PSP Association
2 years ago
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