In may I was diagnosed with eustachian tube blockage after a cold where my hearing reduced a little. It has since improved ears still pop and have full feeling. This occured not long after giving birth.
GP referred me to ENT in May still waiting to be seen.
Few days ago I had ringing noise which distresses me on the night when there is less noise around. I just dont want to be around.
I am finding it so hard to cope please if there is anyone out there to help support me through this. I want to be back to myself focus on my baby and enjoy maternity.
I am from the Uk West Midlands
Thank you for reading love and light to all 💜🙏🏽
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Ravks
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hello Ravks. Tinnitus is so hard to deal with when you first start to experience it. You’ll probably get some sympathetic posts here which, I hope, will make you feel less alone.
It’s a very common condition so you can be reassured that people do, indeed, get to live with it. There are lots of coping strategies and you would do well to start with the website of the British Tinnitus Association. Their chat and phone lines won’t now be open until Monday but you could contact them then.
If you stroll around the internet you might come across some “cures”. They are advertised by people who are after your money so don’t believe them. But as I say there are many ways of coping.
I spoke to someone yesterday on BTA chat advised how to deal with GP who I keep going back to to chase up my ENT referral since May.
This does feel like an isolating experience, but coming here has been nice to be able get support and see im not alone I meed to deal with this and learn to cope.
Tinnitus is hard to accept initially, I always expected to wake up with it gone. I’ve had T for many years and still wish I will wake up one day with a silent mind. You are not alone, contact the BTA they will help you through this. In time you will find a way to live with your tinnitus.
I appreciate your reply this is the stage I am at, learning to accept anand cope with it, but hormones are everywhere so my thoughts sre irrational and in panic mode and night causes anxiety. My initial thought was to give up on life at 38 years old. I will try and find a way to cope I pray 🙏🏽
I hope your ok and coping ok?
I spoke to someone yesterday from BtA who advised to cone on here to share experiences.
Check out my tinnitus club, ( there is a charge) but Frieder is amazing he also has a whatapp group where we all get support and he does zoom meetings for free x
As unfortunate as the timing of it all is.....i want to say to you that the overwhelming anxiety and fear you are feeling right now is normal and most definately expected as you are going through something very unexpected and truamatic right now.....Your mind and attention becomes so focused on the sound that is now in your head it makes it almost impossible to concentrate on anything else and this is where the battle with T lies.
That intense focus on T almost makes it louder and thats very much part of the problem
I would like to say to you that as u start to look for ways to cope with this new reality....this forum is a very good place to start......there are so many people, just like yourself.....who have said the same words you have said...believed as you, that there is no way forward and that the sound is enough to drive u insane.....but those same people are now able to say...they have made a new life living with T and its good......as you research and read testomonies of encouragement and ask questions....you will see that most will warn against those who want to sell a cure....they are right to warn you....there is no buy in a bottle....cold shower...10 handstands whilst pulling your big toe, weird herb quick fix here, the unfortunate truth is living with T will take work....adjustments both in the physical world and mentally ...and then acceptance ....
Follow the guide lines from the help centre thats part of this forum...see your ENT to rule out other complications and keep your doctor on hand in case you need a little extra help coping with the emotional overload
Come to this forum as often as you need to. ....Ask for input as often as you need it...be encouraged to know that you are not alone.....EVERY one here is for you and have empathy for you 😊
Thank you for your reply it made me cry to know such caring people are out there. My little bundle of joy is blessing 😊
Accepting and coping is hard. Night is the hardest part. I really felt like ending it all however I have to go on my baby needs me and my kids, but im finding it hard to accept and cope. Maybe in time 💜 thank you x
From what i can read from your posts....you seem to have taken on the fight to better mental and physical health long before even coming to this site......this is good...keep going at it!!.
..there will be light at the end of this tunnel.... just hang in there and get the emotional support you need wherever you can....
Night times in the beginning, are very very hard indeed.....the lack of sleep and sheer exhaustion is half the battle....
My life saver at night would u believe was a good old fashion fan....i popped that baby on and it drowned out the T and i slept 😴 (but it did take a whole month before i discovered this tip)...but you are going into winter so may not be that helpful...when it got colder i switched to sounds of rain and thunder....try everything till u find yr thing
Hi Ravks tinnitus can be a temporary phenomenon as anyone who has been to a loud music concert will know.
Given you are only a few days in to experiencing tinnitus please give it some time as it may well leave you altogether and you will have been worrying for nothing.
My GP told me that the ENT hospital dept like a long wait for referrals to give patients tinnitus time to fade & naturally resolve. Hope that yours does turn out to be temporary but either way we are all here to support you.
thank you bourneville for your reply 😊 thank you for the support which I need.
Its early days, I just need to find a way to cope my emotions are everywhere woth raging hormones, I want to give up at times and not be here but my baby needs me I must try and find a way to cope.
Awaiting ENT appointment we will see.
I wish I could see and hug you all that have replied 💜🥰
1.- Passinflower plant in the morning and at night before sleep with l-theanine (supplement or three green tea Matcha per day), but you don,t have to take medicine for sleep!
2.- Magnesium L-Threonate (only this Magnesium works well with T.) five hours before sleep.
I was wondering if you could recommend products yiu use for the above please? Magnesium and passion flower, matcha please. The rest I have got. Thank you 💜🙏🏽
Hi Ravks!! Any products are the same. Don't forget to get only this magnesium: Magnesium L-Threonate. And check your blood presure! Is extremely important too.
I know how you feel, we all do who are living with this . It is true the worse you stress about it, the worse it becomes. Don’t feel ashamed to ask for help from your GP - I’m currently awaiting counselling through work & psychology through my ENT Consultant. I’m taking all the help I can get including the meds. I say why struggle if help & things are out there to help.
My emotions are all over the place with hormones at play, my mind drifts from ending it all to the realisation of my baby needing me, but learning to cope and accept.
I have just been discharged from counselling as I was not copong when I had ETd in May. I just want to be well in myself mentally and physically.
I was in your position two years ago. I wish at the time I had found this video. It's the best video about tinnitus. Also if you are having ear issues your tinnitus might disappear, but it might not. So keep an open mind. Concentrate in your baby and the tinnitus might subside into the oblivion it came from. Sending you lots of love and best wishes. Don't forget to enjoy your baby. This age goes by like a flash. m.youtube.com/watch?v=y4zuV...
Thank you I will definitly watch video once kids are asleep and feedback.
I just need to cope and accept the current situation just being so hormonal and emotional my mind drifts to ending it all but I know my baby needs me. I pray I find a way.
Ravks, I think you need especialised help. What would you do if a friend of yours had written the above? You would tell them to get help. And it is the right thing to do. Please, talk to someone closer to you, your doctor, the midwife, the Samaritans or even call 999. There is help available and you don'tneed to feel this way, with help you can and will feel better. I'm in the West Midlands too ( Sutton Coldfield) if you want to chat send me a private msg. There is also a charity called Acacia Family Support (a good friend of mine works there) and they especialise in caring for families going through what you are going through, their core work is with new mums experiencing post-natal depression. They are wonderful and have been a God sent help to many people in the West Midlands. Here is their FB page. Their website is down for some reason, but you can contac them via FB messenger. They don't work weekends though. So if you need urgent help please dial 999. Take care of yourself and if needed reach out again. Keep talking. I promise you the tinnitus will get better, or even disappear all together. Sending lots of love. m.facebook.com/profile.php?...
I just finished counselling regards to the ETd and how I was not coping. This is another phase I have to learn to cope with and accept which is the hardest part.
It's horrid when you wake up one morning and it's there (T). This is what happened to me and I was royally upset.
Ultimately, the way to cope seems to be to find a way of accepting/ignoring it. Now, I try to diminish T by seeing it as my invisble friend. At least, it is a constant companion 🤣
Finding a way to cope and accept is a challenge at the moment. I am trying hard but I break and cry and thinking not being here is better but my baby needs me.
How long ago did you give birth? If you are crying over the issue and only keeping going because of your baby, perhaps you have a touch of postnatal depression.
I have been grateful for all the kind words, experiences shared and support here 😊 gives me hope. I just want to hug all of you for being there.
I am trying to act normal at home dont want my kids or baby to pick up on my panicked energy and anxiety. So here is where I can let it out. I talk to my husband but i have no close friends or family around. So it can feel isolating where I just want to cry at times and give up at 38 years old and call it a day but I know I have to keep going for my kids. I spoke BtA friday who pointed me here for support. Brilliant group 💜 x
As has been pointed out above, your tinnitus may be only transitory but you should also prepare yourself for having to live with it and becoming accustomed to it. Currently, as your T is new, you brain is giving it a lot of attention but as it gets used to the new sound, it should push the noise to the background where you won't notice it as much.
A possible aid to helping you to get to sleep with T is a sound generator at your bedside to produce a soothing sound to mask the T or distract your brain from it. I use one called Homecube, which I bought from Amazon, and it has lots of different good-quality sounds to choose from - I find the campfire, distant thunderstorm and water sounds help me.
It is worth asking whether you're on any medication, as tinnitus can be a side effect. This is one of the well-known causes of T. Many drugs are ototoxic, meaning toxic to the ear. Even some common pain killers like aspirin and ibuprofen are in this category.
Your T may well be connected with your eustachian tubes issue. Have you tried using a nasal spray to clear that up?
I have used nasal spray to help clear it and all mucous is clear, my ears still pop and there is pressure but no where near as bad as it was in May. I am waiting to see ENt been waiting since May. GP wasn't that interested yesterday when I went. Which disheartened me and my emotions are low already and demand of my baby needing me is what keeps me going.
I listen to meditation frequency music when I sleep since May to help calm me.
I'm so sorry to hear what you're going through. It must be especially difficult when tinnitus hits you hard on top of ETD and having a new baby to cope with.
Another thing that people recommend for tinnitus is Mindfulness. I bought a book called "Mindfulness: Finding Peace in a Frantic World", but not really for my tinnitus at the time. I found the guided meditations that go with the book very relaxing. They are available here to stream free of charge:
You should find out whether your local hospital has a Tinnitus Clinic and, if so, get your GP to refer you to it. The ENT consultant might actually refer you, although there is the issue of the waiting time. I attended my local Tinnitus Clinic and found it very helpful just to talk with someone about my ear issues - I think they gave me a slot of about an hour.
thank you for that I will be calling Gp tomorrow and chasing up referral and request about the tinnitus clinic not sure if there is one here in Dudley West Midlands will research prior to ringing tomorrow.
Just looked into frantic world thank you for the link so much available will try a few of their meditations today.
I just want to be able to cope and learn live with the ringing and move on with my life 🤞🏽🙏🏽 love to you all on here amazing support 💜
Hi Ravks, my diagnosis of T was confirmed in June. Initially I had anxiety and felt as if I couldn’t cope. Went to GP with a list of my concerns and she was great. I am anti-depressants and a small dose of tablet to help with sleep. Don’t think you are alone, it will ease with time and while I hate having it I have decided I will dictate how T affects me and live my life and not let it be on my mind 24/7.
Keeping busy distracts me and Headspace is a good app to try.
I am glad you are ok and have found a way to manage dealing with T and owning the situation I hope to do the same.
My GP are useless been bacl countless tomes since May trying to push my referral to ENT etc they just not bothered. Thank you for sharing your experience gives me hope 💜🥰 x
Hi - this supplement is good for T - Magnesium L- Threonate .
These can affect the T so try to cut down on Salt , avoid Alcohol if possible and not to much sugars/ fats - avoid too much processed food products. Also try to cut ( or reduce caffeine ). I now drink decaf tea and decaf coffee as caffeine used to really push up my T . I did have some caffeine withdrawal symptoms when i stopped though
thank you Suz26 for your reply and advice, definitly will look into the decaf coffee i just started to drink coffee again after giving it up 18onths ago, will switch to decaf.
I have been having magnesim for a few months will check if its the same. My diet I cut sugar and wheat out since May, limit salt intake. My diet consists of fruit, veges, lentils, beans, nuts and porridge I switched my diet since it all started with ETD in May.
Thank you very much for advice, hope your keeping well 💜x
just another thought Ravks. You mention in your bio that you’re vegan. I’ve been reading a lot lately about vegan diets. Big manufacturers have got on the bandwagon promoting their “free from” and vegan foods. In reality these may be foods with lots of additives. To make it tasty. And they can make things so much more expensive too.
There are so many micronutrients which the body can only get from animal foods, so vegans have to take supplements to stay healthy.
In your original post you mentioned medical issues other than tinnitus and I just wonder if it because of your vegan diet? If you are vegan from principles I’m not going to ask you to change your beliefs. But if you are vegan because you think it’s healthy then perhaps véganisme is not for you? I’m not suggesting that eating meat will take the T away.
Supplements that others have mentioned make no difference to my tinnitus.
But I’m very fortunate that the T doesn’t bother me unless I’m a bit down for different reasons, and even then not much. It’s very loud but I’m almost completely habituated to it.
When I was 15, I had tinnitus because I had my ear cleaned. At first I had a hard time and thought I couldn't stand it. I am now 17 years old. See as many doctors as you want, make sure you are in good health. Don't worry, it will be tough for a few months, but then it will pass and you will get used to it. Make sure that even if it is a permanent ringing, it will not affect your life. you can write to me.
Thank you for sharing your experience sorry you have had it so young, but you have given me strength and hope like everyone on here.
Its the getting used to and learning to ignore it and carry on with my day.
I keep busy in the day with the kids jobs around the house then im back at work in a few months from maternity so definitely day will be occupied its the night, I listen to waterfall, meditation music etc to help.
Thank you for the support need it when I feel like im going out of my mind 🥰💜
thank you Spurdog1 for reply much appreciated ☺️ I think I have coped ok days are busy, nights luke now putting baby to bed the house becomes quiet, I try to think of other things take my mind off T. The full feeling in ear of ETD annoys me too. Just want to be ok 💜
I have come to the conclusion that " The more time and effort spent in Googling, interacting on forums, watching countless Y0uTube "cures for tinnitus" etc ensures that your mind keeps tinnitus at the forefront ie. something to worry about.
AND THAT is actually the complete opposite of what is required when the brain has habituated"
It's catch 22 I know.
But believe me, no amount of "your" searching, foruming, Y0uTubing will find a panacea.
So, take that heavy burden off your shoulders.
Let the professionals help you.
Mingle with your friends who haven't got tinnitus - they will distract you.
Thank you Monty for your reply. I am trying to carry on with normal activity as much as possible and to let T be the last Thing i think of. I have my kids to keep me busy and my maternity leave is over soon so I will be back at work.
Its something I will get used to in good time. I see ENT end of the month.
Hi are you taking any prescription medication, that could be a cause?Have you tried masking when you have a little quiet time, this can help you relax, loads of free tinnitus masking apps, or relaxing music on the Internet.
I do using masking apps when needed, tend to fall asleep as I am tired with the baby and kids. However it has got a little louder just getting to me at the moment.
No medication. I did take naproxen and paracetamol for back to back migraines but used here and there. That was in June July.
Hoping at 39 years old I can learn to accept this and get on with life, sometimes just feels easier to not be around.
Yes, sometimes you have to treat T with the disrespect it deserves, its your life, blatantly ignore it, stay busy,mask it, its not as powerfull as you, its just an annoyance. There are much worse things in life than T, never let it get the upper hand, and as in all situations it can't if you actively willfully ignore it.Hope that helps.
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Coming to terms with tinnitus
Update
How do I manage? 
Loud Music
