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My holiday!!
As some of you may have read in my previous posts, I have PMR and GCA and am currently on 35mg Pred. Back in February - before this illness was diagnosed - I was invited to stay with friends for a holiday in Florida during October/November this year. This was to be my very first visit to America so I
As some of you may have read in my previous posts, I have PMR and GCA and am currently on 35mg Pred. Back in February - before this illness was diagnosed - I was invited to stay with friends for a holiday in Florida during October/November this year. This was to be my very first visit to America so I
Janann25
in
PMRGCAuk
7 years ago
I decided to try little experiment to help get relief from Hyperacusis and to my utter shock it worked !
Hi everyone, I thought I should share this info with you because if it worked for me I'm sure it can for any of you. Firstly, this is no cure for the condition, Oh how I wish ! But it will, I'm sure, make it invisible to your senses. A bit like a magician's illusion is the best way to describe it. You
Hi everyone, I thought I should share this info with you because if it worked for me I'm sure it can for any of you. Firstly, this is no cure for the condition, Oh how I wish ! But it will, I'm sure, make it invisible to your senses. A bit like a magician's illusion is the best way to describe it. You
blaze53
in
British Tinnitus Association
7 years ago
Hip Surgery with Fibromyalgia
I was diagnosed with fibromyalgia a little over a year ago, along with osteoarthritis. I am about to have my right hip replaced due to osteoarthritis. The docs have said it will be harder for me, because of the fibromyalgia. Has anyone else undergone hip surgery with fibro? Thanks
I was diagnosed with fibromyalgia a little over a year ago, along with osteoarthritis. I am about to have my right hip replaced due to osteoarthritis. The docs have said it will be harder for me, because of the fibromyalgia. Has anyone else undergone hip surgery with fibro? Thanks
Johnstonablc
in
Fibromyalgia Action UK
7 years ago
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Heart issues
Can anyone tell me if they have heart issues related to underactive thyroid? I was undiagnosed for around 15 years. After being treated, not effectively for 8 years I now appear to have been diagnosed with aortic stenosis. Anyone have similar issues?
Can anyone tell me if they have heart issues related to underactive thyroid? I was undiagnosed for around 15 years. After being treated, not effectively for 8 years I now appear to have been diagnosed with aortic stenosis. Anyone have similar issues?
Numberone1
in
Thyroid UK
7 years ago
Now I'm just showing off....
Hi again girls. Just a bit of showing off as I'm still on a family visit high. A photo to prove my knitting non-skills and my cheapo 20 euro wig which I wore for just the second time at the airport yesterday to say goodbye. The expensive wig has never been out of its box since I got it as I don't
Hi again girls. Just a bit of showing off as I'm still on a family visit high. A photo to prove my knitting non-skills and my cheapo 20 euro wig which I wore for just the second time at the airport yesterday to say goodbye. The expensive wig has never been out of its box since I got it as I don't
Kryssy
in
My Ovacome
7 years ago
DISTRESS AID
Is there any conclusive evidence that amitryptilene contributes to the level of tinnitus? Opinions seem to vary and just now I am struggling to cope with a seriously ill husband and need a prop. My lovely doctor recommended amitryptilene to help but I certainly don't want to worsen the T which is
Is there any conclusive evidence that amitryptilene contributes to the level of tinnitus? Opinions seem to vary and just now I am struggling to cope with a seriously ill husband and need a prop. My lovely doctor recommended amitryptilene to help but I certainly don't want to worsen the T which is
berry76
in
British Tinnitus Association
7 years ago
Some relief from my migraine
Just wanted to say I have been on Relpax for cluster migraines and they have worked 90% of the time. The tablet does knock me out for @3hours, I go to bed after I've taken it, and generally wake up migraine free. I am out of it for the next 24 hours at least but relatively pain free. I also take prescribed
Just wanted to say I have been on Relpax for cluster migraines and they have worked 90% of the time. The tablet does knock me out for @3hours, I go to bed after I've taken it, and generally wake up migraine free. I am out of it for the next 24 hours at least but relatively pain free. I also take prescribed
Debbiedonut
in
National Migraine Centre
7 years ago
Lost my mojo!
Could you experts clarify something for me? All the info on PMR describe the symptoms as being pain and stiffness in shoulder and hip area, always bilateral. What is never mentioned is the fatigue and lack of ' momentum' we all have. Is this because that is a side effect of the steroids and not part
Could you experts clarify something for me? All the info on PMR describe the symptoms as being pain and stiffness in shoulder and hip area, always bilateral. What is never mentioned is the fatigue and lack of ' momentum' we all have. Is this because that is a side effect of the steroids and not part
Hirwaen
in
PMRGCAuk
7 years ago
Ataxia Pancytopaenia
My consultants think I have Ataxia Pancytopaenia and I was just wondering if anyone else had this diagnosis
My consultants think I have Ataxia Pancytopaenia and I was just wondering if anyone else had this diagnosis
hab29
in
Ataxia UK
7 years ago
FORTEO yes or no?
My mds feel I am a strong candidate for FORTEO. Please share your experiences with me on this bone building injection
My mds feel I am a strong candidate for FORTEO. Please share your experiences with me on this bone building injection
EmmaLaura
in
PMRGCAuk
7 years ago
Cogan's syndrome
My daughter has recently been diagnosed with Cogans and although picked up quickly within 2 weeks of symptoms has suffered hearing loss. Does anyone in the North East see a doctor who has good knowledge of Cogans? Thanks
My daughter has recently been diagnosed with Cogans and although picked up quickly within 2 weeks of symptoms has suffered hearing loss. Does anyone in the North East see a doctor who has good knowledge of Cogans? Thanks
Jandaw
in
Vasculitis UK
7 years ago
Silver ring splints
My rheumatologist is sending me off to see a 'hand therapist' in September. I think in may be an OT, or physio trained person, but this is the title that is on the appointment letter. The things she hopes that they will look at are much like Occupational therapy, or physic tasks, but specifically they
My rheumatologist is sending me off to see a 'hand therapist' in September. I think in may be an OT, or physio trained person, but this is the title that is on the appointment letter. The things she hopes that they will look at are much like Occupational therapy, or physic tasks, but specifically they
cpns
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Dipyridamole
Hello all. I've been doing some reading on Dipyridamole (Persantine in US). Does anyone take this drug and/or have any thoughts on its use in APS? What advantage does it give to APS sufferers? Is it used WITH Coumadin? How about Plavix? Does Dipyridamole have advantages over Plavix or Aspirin
Hello all. I've been doing some reading on Dipyridamole (Persantine in US). Does anyone take this drug and/or have any thoughts on its use in APS? What advantage does it give to APS sufferers? Is it used WITH Coumadin? How about Plavix? Does Dipyridamole have advantages over Plavix or Aspirin
ndstephens49
in
Hughes Syndrome APS Forum
7 years ago
Potassium iodide
When my son and I became suspicious about 2 years ago that we might have an iodine deficiency, we stumbled on Lugol's Solution and took 3 drops of it in our food for a few months. Extensive reading brought me to "Betadine", a potassium iodide solution sold in stores as an anti-biotic for scraps and minor
When my son and I became suspicious about 2 years ago that we might have an iodine deficiency, we stumbled on Lugol's Solution and took 3 drops of it in our food for a few months. Extensive reading brought me to "Betadine", a potassium iodide solution sold in stores as an anti-biotic for scraps and minor
mhackett234
in
Thyroid UK
7 years ago
facet joint L5-S1
I have had this symptom for 14 years got diagnosed in December 2014 by a physiotherapist at holy cross hospital so I now do a exercise regime in a hydrotherapy pool which works as you gain muscle to help with your conditions and now I have found a painkiller that works for me is tramulief sr 100mg twice
I have had this symptom for 14 years got diagnosed in December 2014 by a physiotherapist at holy cross hospital so I now do a exercise regime in a hydrotherapy pool which works as you gain muscle to help with your conditions and now I have found a painkiller that works for me is tramulief sr 100mg twice
wolfdog
in
Pain Concern
7 years ago
Neupro
Good morning all. This week the doc prescribed Neupro for Mike. It's a patch that's changed once a day and may help with rigidity. Wondering if anyone has experience with it? Thought I'd share a pic from our recent trip to FL. It was a struggle but ocean/beach made up for a lot.
Good morning all. This week the doc prescribed Neupro for Mike. It's a patch that's changed once a day and may help with rigidity. Wondering if anyone has experience with it? Thought I'd share a pic from our recent trip to FL. It was a struggle but ocean/beach made up for a lot.
Flemingc
in
PSP Association
7 years ago
Cerebellar syndrome
Was diagnosed with this ten years ago. Viral based cerebellitis, would recover in a year. It didn't. Has got worse over time, and then because of poor balance, had a fall and broke right hip and right shoulder. November 2015. Struggling to avoid becoming bedridden at all costs. Trying to get 1. Proper
Was diagnosed with this ten years ago. Viral based cerebellitis, would recover in a year. It didn't. Has got worse over time, and then because of poor balance, had a fall and broke right hip and right shoulder. November 2015. Struggling to avoid becoming bedridden at all costs. Trying to get 1. Proper
Senoja
in
Ataxia UK
7 years ago
Delusions?
My guy has had PSP for about 5 years. He was dx just a year ago. He is now having very painful delusions about me being unfaithful. I have tried everything to prove it's not true. In addition, he has raised his arm several times as if he were going to hit me. Has anyone else experienced either of these
My guy has had PSP for about 5 years. He was dx just a year ago. He is now having very painful delusions about me being unfaithful. I have tried everything to prove it's not true. In addition, he has raised his arm several times as if he were going to hit me. Has anyone else experienced either of these
Dicampbell
in
PSP Association
7 years ago
Tinnitus v deafness
Folks, There has been times that I have prayed for deafness in my left hear. I have both T and hyperacusis in that ear. Just T in my right ear. I have heard of anecdotal stories where people have had the hearing part of the ear removed rather than listening to the T. I have also heard of anecdotal
Folks, There has been times that I have prayed for deafness in my left hear. I have both T and hyperacusis in that ear. Just T in my right ear. I have heard of anecdotal stories where people have had the hearing part of the ear removed rather than listening to the T. I have also heard of anecdotal
ade-the-pade
in
British Tinnitus Association
7 years ago
Tramadol for Mollie
Mollie the Collie is my beautiful 2 year old..Collie! Diagnosed with hip dysplasia a few months ago she has been receiving medicines which help rebuild the callagen around the joint. From time to time her hip obviously causes her much pain but being the breed she is will not admit it. Vet today put
Mollie the Collie is my beautiful 2 year old..Collie! Diagnosed with hip dysplasia a few months ago she has been receiving medicines which help rebuild the callagen around the joint. From time to time her hip obviously causes her much pain but being the breed she is will not admit it. Vet today put
Bananas5
in
Pain Concern
7 years ago
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