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Fybogel / Movicol
Has anyone been given Fybogel or Movicol before for their Tummy Cramps / Bowel Movements and does it work ? As My G.P has given me lemon flavoured Fybogel as she saw me at my worst today.
Has anyone been given Fybogel or Movicol before for their Tummy Cramps / Bowel Movements and does it work ? As My G.P has given me lemon flavoured Fybogel as she saw me at my worst today.
E44E44
in
Endometriosis UK
6 years ago
Feeling jittery and anxious could this be due to Pred reduction
Hello this is the first I've asked anything but I want you all to know I've learnt a lot from you all and I'm very thankful for all the advice I've received on this site. Thank you. I just tapered down from 11mg to 10mg Pred last Saturday and I'm feeling very shaky (jittery) could this be withdrawel
Hello this is the first I've asked anything but I want you all to know I've learnt a lot from you all and I'm very thankful for all the advice I've received on this site. Thank you. I just tapered down from 11mg to 10mg Pred last Saturday and I'm feeling very shaky (jittery) could this be withdrawel
Dee1jay2rac3
in
PMRGCAuk
6 years ago
Help with sleep
My husband has PSP, diagnosed about 18 months ago. He has a terrible time sleeping. He currently takes 100 mg trazodone and wakes up multiple times each night. We tried seroquel and that affected him all day, and he did not sleep well with it. I need my sleep, but I cannot take meds because I am
My husband has PSP, diagnosed about 18 months ago. He has a terrible time sleeping. He currently takes 100 mg trazodone and wakes up multiple times each night. We tried seroquel and that affected him all day, and he did not sleep well with it. I need my sleep, but I cannot take meds because I am
Crochetedcat
in
PSP Association
6 years ago
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ESBRIET/PIRFENIDONE
Hi everyone, i am currently taking esbriet, i got up to max dose of 3 tablets 3x a day but couldn`t cope with them and papworth took me back down to 2 tablets 3x a day, i am having some issues with these tablets which i expect but the reason why i am writing this is because i`m feeling very deppresed
Hi everyone, i am currently taking esbriet, i got up to max dose of 3 tablets 3x a day but couldn`t cope with them and papworth took me back down to 2 tablets 3x a day, i am having some issues with these tablets which i expect but the reason why i am writing this is because i`m feeling very deppresed
kimmi9
in
Lung Conditions Community Forum
6 years ago
Arm ache and some neck discomfort
Now 2 years after diagnosis I am on 3mg Pred daily for the last several months. I always feel that 'this is not the best time to reduce'. As I explained before - I am a full time carer for my husband - which brings its own stress. My question is....I had a sore neck (towards left side/ not stiff and
Now 2 years after diagnosis I am on 3mg Pred daily for the last several months. I always feel that 'this is not the best time to reduce'. As I explained before - I am a full time carer for my husband - which brings its own stress. My question is....I had a sore neck (towards left side/ not stiff and
Nanor
in
PMRGCAuk
6 years ago
Fed up
Well just got back from dermatology and feeling really annoyed. Skin Dr wants me to take Dapsone so I ask if it was okay as I have Asthma and COPD plus a heart condition. She just brushed it aside and said it was fine, not according to what I've just read. Plus she just brushed away all the other health
Well just got back from dermatology and feeling really annoyed. Skin Dr wants me to take Dapsone so I ask if it was okay as I have Asthma and COPD plus a heart condition. She just brushed it aside and said it was fine, not according to what I've just read. Plus she just brushed away all the other health
Boudica1
in
Vasculitis UK
6 years ago
Olumiant , Xeljanz, experiences?
Hi, What are your experiences from Olumiant (baricitinib) or Xeljanz (tofacitinib) ? Side effects? I’m on Simponi rigth now but will maybe change to this new ”drug”. I have a very active RA Kind regards Anna in Sweden
Hi, What are your experiences from Olumiant (baricitinib) or Xeljanz (tofacitinib) ? Side effects? I’m on Simponi rigth now but will maybe change to this new ”drug”. I have a very active RA Kind regards Anna in Sweden
sunflower68
in
NRAS
6 years ago
Haloperidol
Hi all. Dad is on regular morphine, low dose but die to be increased with next injection. He's been struggling a bit this afternoon, moaning and gurgling. The dr prescribed Haloperidol which the nurse has just administered. I've read conflicting information about haloperidol and it's potential to hasten
Hi all. Dad is on regular morphine, low dose but die to be increased with next injection. He's been struggling a bit this afternoon, moaning and gurgling. The dr prescribed Haloperidol which the nurse has just administered. I've read conflicting information about haloperidol and it's potential to hasten
Martha_k_uk
in
PSP Association
6 years ago
Which chair?
Hello everyone, I'm new here. My brother had had PSP for 5-6 years. He was initially diagnosed with Motor Neurones. For the last year John has been in a Nursing home and has deteriorated rapidly. He cannot talk, cannot use his hands to use his speech machine. One side is completely stiff. All his food
Hello everyone, I'm new here. My brother had had PSP for 5-6 years. He was initially diagnosed with Motor Neurones. For the last year John has been in a Nursing home and has deteriorated rapidly. He cannot talk, cannot use his hands to use his speech machine. One side is completely stiff. All his food
Hidden
in
PSP Association
6 years ago
Result & diagnosis stresses
Is it usual for it to be so difficult to get a diagnosis? I had loads of blood tests including jak2 test & was booked a haematology apt for 2 weeks after. The jak2 wasnt back & i was told I'd need to go back in 4 weeks (which is next week) I've rung the hospital today as I have not been sent an apt
Is it usual for it to be so difficult to get a diagnosis? I had loads of blood tests including jak2 test & was booked a haematology apt for 2 weeks after. The jak2 wasnt back & i was told I'd need to go back in 4 weeks (which is next week) I've rung the hospital today as I have not been sent an apt
Vicky_b
in
MPN Voice
6 years ago
Easing pain
https://itunes.apple.com/ch/album/introduction-to-a-meditation-to-help-ease-pain/421685815?i=421685816&l=en Please always go to a doctor should you feel in pain and take the prescribed treatment. I have a personal interest in meditation and I have found it has helped me cope with a chronic lung disease
https://itunes.apple.com/ch/album/introduction-to-a-meditation-to-help-ease-pain/421685815?i=421685816&l=en Please always go to a doctor should you feel in pain and take the prescribed treatment. I have a personal interest in meditation and I have found it has helped me cope with a chronic lung disease
Hidden
in
Lung Conditions Community Forum
6 years ago
Today's interesting molecule. Taurine.
So I spent a couple days researching this molecule and finally just now I began to find some truly interesting links: - Creatine-supplemented diet extends Purkinje cell survival in spinocerebellar ataxia type 1 transgenic mice but does not prevent the ataxic phenotype. https://www.ncbi.nlm.nih.gov/pubmed
So I spent a couple days researching this molecule and finally just now I began to find some truly interesting links: - Creatine-supplemented diet extends Purkinje cell survival in spinocerebellar ataxia type 1 transgenic mice but does not prevent the ataxic phenotype. https://www.ncbi.nlm.nih.gov/pubmed
sunvox
in
Ataxia UK
6 years ago
Nebuliser Newbie
I am about to start an indefinite course on a colomycin nebuliser. How do other users cope when on holiday, particularly cleaning , sterilising and potential voltage changes.
I am about to start an indefinite course on a colomycin nebuliser. How do other users cope when on holiday, particularly cleaning , sterilising and potential voltage changes.
Centaur
in
Lung Conditions Community Forum
6 years ago
Trying to understand
hi I'm new to the group after recently being diagnosed with fibromyalgia. I'm awaiting hydrotherapy at the moment. Tbh I just feel like I'm a burden 😔
hi I'm new to the group after recently being diagnosed with fibromyalgia. I'm awaiting hydrotherapy at the moment. Tbh I just feel like I'm a burden 😔
jmr246
in
Fibromyalgia Action UK
6 years ago
Hypogammaglobulinaemia?
Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Another name for old problem, but interesting to me, like putting pieces of a puzzle together since I was 11. A aha experience. Would love to know if anyone has had
Wondering if anyone has that. I dismissed it for awhile.I go into denial ,when a new diagnosis problem from doc and then look into it. Another name for old problem, but interesting to me, like putting pieces of a puzzle together since I was 11. A aha experience. Would love to know if anyone has had
nancarolyn
in
LUPUS UK
6 years ago
Interferon vs pegInterferon
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
PT99
in
MPN Voice
6 years ago
Acetyl-DL-leucine, Mannitol and Thiamine MIGHT help some ataxias?
I hasten to add that I am in no way qualified medically but have ataxia and am very aware I am getting worse so willing to try anything! Lol x It may easily be placebo effect. It is very early days but this may help others so posting x OK so I have been using Thiamine and Mannitol and I THINK
I hasten to add that I am in no way qualified medically but have ataxia and am very aware I am getting worse so willing to try anything! Lol x It may easily be placebo effect. It is very early days but this may help others so posting x OK so I have been using Thiamine and Mannitol and I THINK
Litty
in
Ataxia UK
6 years ago
Mindfulness
Hello BLF friends, Making a start https://youtu.be/BAbxgvPaeik 5mn anxiety reduction https://youtu.be/MR57rug8NsM Starting the day https://youtu.be/sWrgKDzM0LU Coping with pain https://youtu.be/uZEHwEtnaak Aria yoga stretching!! Have a good day xx Fran
Hello BLF friends, Making a start https://youtu.be/BAbxgvPaeik 5mn anxiety reduction https://youtu.be/MR57rug8NsM Starting the day https://youtu.be/sWrgKDzM0LU Coping with pain https://youtu.be/uZEHwEtnaak Aria yoga stretching!! Have a good day xx Fran
Hidden
in
Lung Conditions Community Forum
6 years ago
Systemic (Intramuscular) Corticosteroid Injection (Betamethasone) for Inflammatory Pain
Hello Everyone, Greetings from Bolivia. About a week ago I had an Intramuscular Corticosteroid Injection in my butt for chronic pain in my spine, hips, pelvis. Unfortunately, it seems the pain is getting worse. I'm also concerned I may develop some of the horrible side effects associated with steroid
Hello Everyone, Greetings from Bolivia. About a week ago I had an Intramuscular Corticosteroid Injection in my butt for chronic pain in my spine, hips, pelvis. Unfortunately, it seems the pain is getting worse. I'm also concerned I may develop some of the horrible side effects associated with steroid
jadamrush
in
Pain Concern
6 years ago
Occupational therapy ... Any experiences to share
I'm just wondering what to expect from an occupational therapy appointment, anyone got any experience or advise? ... I've had lupus almost 15 years and can't work as I had to be retire due to ill health. I think the occupational therapy may be to look at all aspects how lupus affects me. I'm pretty
I'm just wondering what to expect from an occupational therapy appointment, anyone got any experience or advise? ... I've had lupus almost 15 years and can't work as I had to be retire due to ill health. I think the occupational therapy may be to look at all aspects how lupus affects me. I'm pretty
fabwheelie
in
LUPUS UK
6 years ago
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