Hello everyone, I'm new here. My brother had had PSP for 5-6 years. He was initially diagnosed with Motor Neurones. For the last year John has been in a Nursing home and has deteriorated rapidly. He cannot talk, cannot use his hands to use his speech machine. One side is completely stiff. All his food is pureed. The only joy he has is when mum gives him some chocolate even though we've been told not to give it to him as he coughs a lot. Johns face lights up when chocolate is mentioned so if thats the only pleasure he has in life we will continue. Sadly John just sits in his chair all day and watches tv. He gave up socialixing when his speech went. He used to run a pub and was the life and soul of everything. Its a cruel disease. Anyway I just wanted to ask if anyone knew of a good suporti e chair we could buy John. The last one we bought isnt supportive enough now. We have waited an age for Occupational Therapy to visit John and give us advice. I can no longer watch him slide down the chair. If anyone can suggest anything I would be very grateful. John is 65, I'm 59 and on my own, work full time and my parents are in their 80's so its pretty tough at the moment.
Big hugs to all here. x