Is it usual for it to be so difficult to get a diagnosis?
I had loads of blood tests including jak2 test & was booked a haematology apt for 2 weeks after. The jak2 wasnt back & i was told I'd need to go back in 4 weeks (which is next week)
I've rung the hospital today as I have not been sent an apt & was told the dr I saw has left & I hadn't been put on a new drs list. I have now been booked an apt & the 1st available one is 22nd may. I am so stressed about waiting so long. I just want to know whats happening & why I feel like I do.
Last time the dr said if jak2 was negative i would have a bone biopsy.
Are there no guidelines as to how long you have to be treated within?