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Hip pain
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
So Ryan has been through the loop.. about every 30 days since August 23rd when we learned of his brain tumor something new has popped up.. the lung tumor that is 4.7cm and now left hip pain to the point where he can’t walk. Where did this come from? Is this a sign the cancer has spread to his bones?
kellyOd
in
Melanoma Caregivers
6 years ago
Is depression normal for kidney transplant?
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Hi, I just found out yesterday that I have to get a kidney transplant and I've been really depressed and have cried a few times. My question is...am I overreacting? I feel like I am but I can't help it. Is it just that I'm in shock maybe? Were any of you depressed when you found out? I guess I'm just
Mindy73
in
Kidney Transplant
6 years ago
Need help
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Hello, my dad is not a uk resident and he need a liver transplant, where should we go first and what to do? Thank you
Dianamd91
in
British Liver Trust
6 years ago
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HEALING FOR SICKLE CELL DISEASE
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
sepremesicklecell
in
Sickle Cell Society
6 years ago
CMV infection in liver transplant patients
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Hello all, I hope you are doing well. I am 5.5 months post transplant and have D+R- CMV (so I got CMV with my dear liver). I have been taking Valganciclovir for prevention for more than 3 months and have recently stopped advised by my doctor. Within one week of stopping, I have developed a cold sore
Pizamkazdw
in
British Liver Trust
6 years ago
Graduation run!
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
So at 56 having never considered myself to be a runner I decided to have a go at C25K and today I ran the whole 5K (took me 43 mins though - I am SLOW) Am feeling very proud of myself and thankful to my donor and their family ( I have had a liver transplant for an autoimmune condition) without them
busylady
Graduate
in
Couch to 5K
6 years ago
ASK IT...GET AN OPINION! What is one question you have been thinking on and need some suggestions?
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Like last week--I am going to be the first ASK IT... I often wonder where I should go to find an answer to helping with the issues I face in being a caregiver to my adult son who received his first kidney transplant nearly three years ago? ANSWER: One great source along the way has been the NKF Cares
Bobbiereed
NKF Ambassador
in
Kidney Transplant
6 years ago
Introduction
Hi everyone! My daughter had Wilm's Tumor at 13 months and then was diagnosed with kidney disease a year later. She had a kidney transplant, receiving her dad's kidney at age 11. She is now 18 years old and just started her freshman year of college.
Hi everyone! My daughter had Wilm's Tumor at 13 months and then was diagnosed with kidney disease a year later. She had a kidney transplant, receiving her dad's kidney at age 11. She is now 18 years old and just started her freshman year of college.
KidneyKommando
NKF Ambassador
in
Parents of Children with Kidney Disease
6 years ago
Seriously questioning my doctor, need your advice!
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
Lgriffis
in
Early CKD Support
6 years ago
High ALP levels post transplant - help any advice?
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
My husband had his liver transplant in November 2017 and has quite a few ups and downs since resulting in admission last month for a week for various tests. The report says concern about high ALP levels and the need for further bone investigations. His ALP is normally 120-150. In hospital it was 220
Kimlescam
in
British Liver Trust
6 years ago
Alternative Therapy to Preserve Renal Transplants
I had a live-donor renal transplant 13 years ago, but I'm well aware that such transplants usually only last 15 years so I am looking for ways to preserve its function. I now take Renadyl, which contains microflora which have been shown in several scientific studies to reduce levels of uremic toxins
I had a live-donor renal transplant 13 years ago, but I'm well aware that such transplants usually only last 15 years so I am looking for ways to preserve its function. I now take Renadyl, which contains microflora which have been shown in several scientific studies to reduce levels of uremic toxins
Falkenhayn
in
Kidney Transplant Patient Support
6 years ago
Second transplant
I am 34 and about 3 years ago received my second kidney Transplant. My first when I was 20. I have yet to meet anyone with a kidney transplant let alone 2 and at my age. It’s hard to find friends to relate to what I go through on a day to day let alone when I get sick. Just wondering if anyone deals
I am 34 and about 3 years ago received my second kidney Transplant. My first when I was 20. I have yet to meet anyone with a kidney transplant let alone 2 and at my age. It’s hard to find friends to relate to what I go through on a day to day let alone when I get sick. Just wondering if anyone deals
Universalmatchs
in
Kidney Transplant
6 years ago
Put on weight!
I need your advice! My daughter is putting on weight after she had her kidney transplant, without eating much! She is eating same food she use to eat before and now she continusly put on weight! Any advices/ recommendations very welcomed!!!she is 3 months post transplant
I need your advice! My daughter is putting on weight after she had her kidney transplant, without eating much! She is eating same food she use to eat before and now she continusly put on weight! Any advices/ recommendations very welcomed!!!she is 3 months post transplant
Skevi
in
Kidney Transplant Patient Support
6 years ago
Flu jab & getting ready for winter
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
Volunteers needed to help with our first liver screening project
Every organization needs volunteers. We are doing a pilot research study in Houston using FibroScan screening for unidentified fatty liver (NAFLD AND NASH) liver disease. These diseases are usually silent and people often become ill before they learn that their liver is damaged. Our goal is to provide
Every organization needs volunteers. We are doing a pilot research study in Houston using FibroScan screening for unidentified fatty liver (NAFLD AND NASH) liver disease. These diseases are usually silent and people often become ill before they learn that their liver is damaged. Our goal is to provide
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Simon96
in
MPN Voice
6 years ago
Diabetes and lung transplant
Hi does anyone on the transplant list have diabetes? Or post transplant with diabetes before transplant? My husband is waiting on an assessment appointment but today found out that he may have diabetes, really worried that this may mean he in not suitable for transplant.
Hi does anyone on the transplant list have diabetes? Or post transplant with diabetes before transplant? My husband is waiting on an assessment appointment but today found out that he may have diabetes, really worried that this may mean he in not suitable for transplant.
Thomac
in
Lung Conditions Community Forum
6 years ago
Any liver transplant folks in Houston who would like to help educate people as part of a screening project for undiagnosed liver disease?
We are going to be screening high risk but asymptomatic patients in Houston as part of a research study. We need a couple of people with knowledge of liver disease to explain things to patients taking part. We plan to start October 1st and run for 3 months.
We are going to be screening high risk but asymptomatic patients in Houston as part of a research study. We need a couple of people with knowledge of liver disease to explain things to patients taking part. We plan to start October 1st and run for 3 months.
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
Kidney transplant
Ive got an 19 years old girl , mma mut 0 , with this genetic disorder, and its been now three months we had a kidney transplant! Her father gave her a kidney! We are living in Cyprus, a Greek island in the Mediterranean! We are the olny one with this rare condition, called methylmalonic acidemia mut
Ive got an 19 years old girl , mma mut 0 , with this genetic disorder, and its been now three months we had a kidney transplant! Her father gave her a kidney! We are living in Cyprus, a Greek island in the Mediterranean! We are the olny one with this rare condition, called methylmalonic acidemia mut
Skevi
in
Kidney Transplant
6 years ago
Severe Joint Swelling And Pain
I am 10 1/2 post kidney transplant. My meds now include Myforic. This was recently added as they try to reduce and possibly eliminate the steroids (Prednisone and Tacro). I now am experiencing extreme joint pain, especially in my fingers on both hands. I presently cannot golf because gripping the golf
I am 10 1/2 post kidney transplant. My meds now include Myforic. This was recently added as they try to reduce and possibly eliminate the steroids (Prednisone and Tacro). I now am experiencing extreme joint pain, especially in my fingers on both hands. I presently cannot golf because gripping the golf
kidneytransplan
in
Kidney Transplant Patient Support
6 years ago
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