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Heads Up
Got this text message yesterday. High risk in this context not related to age - OH is older than me and hasn’t had one. Wasn’t categorised as ‘high risk’ in last outbreak. I’ve looked into this and it seems that the ‘high risk’ criteria have been revised and that some neurological and psychiatric
Got this text message yesterday. High risk in this context not related to age - OH is older than me and hasn’t had one. Wasn’t categorised as ‘high risk’ in last outbreak. I’ve looked into this and it seems that the ‘high risk’ criteria have been revised and that some neurological and psychiatric
Hidden
in
Thyroid UK
9 months ago
Covid and steroid increase
I’m sure this has been answered before so apologies. I have Covid and on 2.75mg of steroids. Should I increase for few days or should I see how it goes? Thanks
I’m sure this has been answered before so apologies. I have Covid and on 2.75mg of steroids. Should I increase for few days or should I see how it goes? Thanks
Rosina1871
in
PMRGCAuk
9 months ago
IVIG - how soon does it benefit?
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
My husband - CLL, on Calquence since April 2021 - has begun a schedule of monthly IVIG, mainly because he had 2 life threatening infections late spring/early summer (staph that went rogue, followed by c. Diff thanks to months of antibiotics). His ID doc has said that the IG may likely have Covid antibodies
OaktownA
in
CLL Support
9 months ago
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Seeking information about encephalomalacia
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Hi , I’m new to this site . I have recently given up working to become a carer for my partner who had a TBI in 2009 . He received a bleed to the brain and had to have a craniotomy . Amazingly he recovered and even went back to work but in 2018 I noticed a change in his walking and a movement in his eye
Jasper65
in
Headway
5 months ago
Haven't ran in over 18 months
Due to pantar fasciitis I haven't ran for over 18 months. Earlier this year I tried shockwave therapy which eased the pain by about 15% Almost two weeks ago I managed to get a steroid injection. The doctor who performed the injection said it should take about two weeks to see any difference. Well after
Due to pantar fasciitis I haven't ran for over 18 months. Earlier this year I tried shockwave therapy which eased the pain by about 15% Almost two weeks ago I managed to get a steroid injection. The doctor who performed the injection said it should take about two weeks to see any difference. Well after
Shaunie75
in
Couch to 5K
9 months ago
pain after injection
Hi just a bit of advice please. Having a flare at the moment had a steroid injection in my buttock. I’m still hurting 🤕 is it ok to still take Naproxen/ Diclofenac ? Would appreciate any help thanks!
Hi just a bit of advice please. Having a flare at the moment had a steroid injection in my buttock. I’m still hurting 🤕 is it ok to still take Naproxen/ Diclofenac ? Would appreciate any help thanks!
Swanfull
in
NRAS
9 months ago
Workplace Injury
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
I work in the dental field and was trimming an imperino I was taking on a patient. When trimming the impression, he scalpel slipped and cut my finger fairly deeply. I checked the impression and there was no obvious blood contamination, likely only a small amount of saliva. After following proper protocol
Lc06091
in
British Liver Trust
4 months ago
Zoladex
Hi, I have started Zoladex to try and manage my endometreosis and adenomyosis. As a 22 year old I am nervous to go through the menopause (albeit temporary) and i have been told endo pain and bleeding will get worse before it gets better whist on zoladex. I should also say im coming off the pill ive
Hi, I have started Zoladex to try and manage my endometreosis and adenomyosis. As a 22 year old I am nervous to go through the menopause (albeit temporary) and i have been told endo pain and bleeding will get worse before it gets better whist on zoladex. I should also say im coming off the pill ive
Emzo1907
in
Endometriosis UK
1 year ago
Covid Antivirals
Hi, if we get Covid is it still advisable for us to ask for the antivirals or is it so mild now that patients with blood cancers don’t need them? Suzy
Hi, if we get Covid is it still advisable for us to ask for the antivirals or is it so mild now that patients with blood cancers don’t need them? Suzy
SDJD
in
MPN Voice
9 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
5 months ago
Covid infection initiating PMR flareup
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
I have tested positive for Covid.. it has initiated a PMR flare-up. Gp suggested increasing prednisolone for 3 or 4 days to 13mg, I had reduced to 9mg. Then reduce 1mg / day to 9. Anyone else had a flare up related to covid (I have ha d 6 vaccination re covid) 0
attempttocycycle
in
PMRGCAuk
9 months ago
COVID vaccine
Writing on behalf of a friend, to see if anyone has had similar. Her husband (in his 80sdoesnt) is due to get his vaccines . He has RA. Every time he gets the COVID vaccine he is terrible for 25-36 hours afterwards. Totally disorientated, confused, doesn't know where he is etc etc. She doesn't know what
Writing on behalf of a friend, to see if anyone has had similar. Her husband (in his 80sdoesnt) is due to get his vaccines . He has RA. Every time he gets the COVID vaccine he is terrible for 25-36 hours afterwards. Totally disorientated, confused, doesn't know where he is etc etc. She doesn't know what
Hodc
in
NRAS
9 months ago
The forgotten half million?
We went from Shielding to being High Risk to being Vulnerable. Are we now the Forgotten? I ask, because we were told that the Autumn vaccination programme was starting on 18th September, and I started to hear of people getting appointments and inoculations but from my knowledge of their condition and
We went from Shielding to being High Risk to being Vulnerable. Are we now the Forgotten? I ask, because we were told that the Autumn vaccination programme was starting on 18th September, and I started to hear of people getting appointments and inoculations but from my knowledge of their condition and
quanglewangle
in
MPN Voice
9 months ago
Glandular Fever virus and PMR?
Hello everyone, Does anyone know if the Glandular Fever virus could be linked with PMR? I contracted GF and Hepatitis B of the Liver in 2005, it took me 3 years to get over it and live my life normally, I took no drugs, it really was a case of rest and gentle exercise, the Drs warned me if I didn't
Hello everyone, Does anyone know if the Glandular Fever virus could be linked with PMR? I contracted GF and Hepatitis B of the Liver in 2005, it took me 3 years to get over it and live my life normally, I took no drugs, it really was a case of rest and gentle exercise, the Drs warned me if I didn't
MalloryMoss
in
PMRGCAuk
8 months ago
vaccinations
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Swanfull
in
NRAS
5 months ago
Latest Study Re Long Covid
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Given the recent posts about the the next Covid vaccination boosters, I thought people might find thi interesting. BBC News - Long Covid: MRI scans reveal new clues to symptoms https://www.bbc.co.uk/news/health-66890505
Bcol
in
PMRGCAuk
9 months ago
Shingles
I have CFS/ME, Fibromyalgia etcMy previous doctor from when I moved new what I had etc. I have had shingles maybe three times. But I can't understand why they have message my husband, who is younger then me and as diabetes for the first time for a shingles injections and he as never had shingles? Any
I have CFS/ME, Fibromyalgia etcMy previous doctor from when I moved new what I had etc. I have had shingles maybe three times. But I can't understand why they have message my husband, who is younger then me and as diabetes for the first time for a shingles injections and he as never had shingles? Any
sharron1
in
Fibromyalgia Action UK
8 months ago
adrenals
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
please help , I am feeling really unwell ,dizzy , feel sick ,mentally very low,upset stomach,lost weight ,waking up after 4 hours sleep ,anxiety of the scale.from July till October tapered down from 6mg to 4.5 finished 28 October,stayed there to see how I was , I wasn’t feeling brilliant but I know I
Amilee
in
PMRGCAuk
8 months ago
Chillblains
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
I have SLL and recently have had a few occurrences of Chillblains, my son is a Consultant Haematologist and tells me haematological malignancy is a common link and this paper links it to SLL, https://bmcdermatol.biomedcentral.com/articles/10.1186/s12895-015-0032-z. I can cope with this keeping hands
GerryPL
in
CLL Support
8 months ago
Severe Period Pains
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Our daughter who has FA (16yrs) started getting severe cramps when she gets her period about a year ago. She started her periods when she was 11. She & her brother were just diagnosed with FA in Nov 22. She's previously passed out with the pain from cramps & mentioned severe shooting pains traveling
Hidden
in
Ataxia UK
1 year ago
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