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Experiences with
Continuous Ambulatory Peritoneal Dialysis
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Itching
I recently had a renal cancer removed from my right kidney. The left kidney is small and doesn't work too well. I thought that there was enough kidney remaining to work normally, but recently I have been itching all over my body. My dermatologist told me that it may be because what's left of my both
I recently had a renal cancer removed from my right kidney. The left kidney is small and doesn't work too well. I thought that there was enough kidney remaining to work normally, but recently I have been itching all over my body. My dermatologist told me that it may be because what's left of my both
Jaguarcat
in
Kidney Cancer Support
6 years ago
Pros/cons
What are the pros and cons people are noticing with dialysis and post transplant? Also anything anyone wish they knew prior to starting dialysis?
What are the pros and cons people are noticing with dialysis and post transplant? Also anything anyone wish they knew prior to starting dialysis?
Kt4920
in
Kidney Transplant
6 years ago
Volunteering and Helping Others
One man's story of how he gives back to others on dialysis: https://www.kidney.org/newsletter/dialysis-patient-helps-others-peer-mentor Do you give back or volunteer? If so, how?
One man's story of how he gives back to others on dialysis: https://www.kidney.org/newsletter/dialysis-patient-helps-others-peer-mentor Do you give back or volunteer? If so, how?
KelliC_NKF
in
Kidney Dialysis
6 years ago
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Some advice please
Hello, I'm looking for some advice. 3 weeks ago, my dad of 66 went into hospital for an elective lobectomy. He had only one day's notice for the procedure following a few weeks worth of preliminary tests. Following the surgery, he was moved to HDU and then to the ward and was set to come home. The
Hello, I'm looking for some advice. 3 weeks ago, my dad of 66 went into hospital for an elective lobectomy. He had only one day's notice for the procedure following a few weeks worth of preliminary tests. Following the surgery, he was moved to HDU and then to the ward and was set to come home. The
AJFinch
in
ICUsteps
6 years ago
The Elephant in the Noisy Room
Hello, my friend "Joe" is in a band with my friend "Dave". They have known each other a long time, and really enjoy playing music together. Every week, their band meets and practices at Joe's house, which he shares with his wife, "Honey". Joe recently told some of his close friends that he is going to
Hello, my friend "Joe" is in a band with my friend "Dave". They have known each other a long time, and really enjoy playing music together. Every week, their band meets and practices at Joe's house, which he shares with his wife, "Honey". Joe recently told some of his close friends that he is going to
Hidden
in
Kidney Dialysis
6 years ago
Change of inhaler
Hi Guys 49% lung function COPD I've moved house and have a new Doctor, the new Doctor said I was using too much Ventolin (2 puffs x 10) 6 of which would be on a daily 3 or 4 mile walk, hills mostly I have been doing this along with a daily dose of Tiotropium/Olodaterol (Spiolto [u]mist[/u] inhaler)
Hi Guys 49% lung function COPD I've moved house and have a new Doctor, the new Doctor said I was using too much Ventolin (2 puffs x 10) 6 of which would be on a daily 3 or 4 mile walk, hills mostly I have been doing this along with a daily dose of Tiotropium/Olodaterol (Spiolto [u]mist[/u] inhaler)
CoffCoffWalkWalk
in
Lung Conditions Community Forum
6 years ago
Is RLS / PLMS really the cause of all my problems ?
I hope everyone is well and that the responses to my post are helpful to others as well as for myself. Apologies for the long post and the long list of questions Before having ever taken any medication my symptoms are constant significant fatigue, memory loss, cognitive decline. My vision is significantly
I hope everyone is well and that the responses to my post are helpful to others as well as for myself. Apologies for the long post and the long list of questions Before having ever taken any medication my symptoms are constant significant fatigue, memory loss, cognitive decline. My vision is significantly
DesperateDann
in
Restless Legs Syndrome
6 years ago
CPAP
Hi does anyone on here use CPAP for sleep apnea due to their asthma and has it helped them?
Hi does anyone on here use CPAP for sleep apnea due to their asthma and has it helped them?
Ali_
in
Asthma Community Forum
6 years ago
Seriously questioning my doctor, need your advice!
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
I am at stage 4 GFR 23, Type 1 diabetic for 43 years. I had one nephrologist and was not happy with my care. I dropped him and was referred to my current doctor two years ago. My ckd was caused by immunosuppressive drugs when i had a pancreas transplant. I was told by many doctors that nothing could
Lgriffis
in
Early CKD Support
6 years ago
GAD anxiety
Hi my name I'll e is Quita and I've been diagnosed with GAD anxiety recently my son 302ed and diagnosed with bipolar and schizophrenia. He recently came home and I'm trying no to trigger him by being overly protective but he's starting to think he can still do previous actions and won't have an episode
Hi my name I'll e is Quita and I've been diagnosed with GAD anxiety recently my son 302ed and diagnosed with bipolar and schizophrenia. He recently came home and I'm trying no to trigger him by being overly protective but he's starting to think he can still do previous actions and won't have an episode
MzQuita
in
Anxiety Support
6 years ago
THE ONE THING....If you could give up one piece of advice on CKD, Dialysis, and Transplant--what would it be?
Okay--I am going to be the first suggestion here. My one and most important tip would be to WRITE IT DOWN. Keeping an accurate log of doctor appointments, questions for your care team, and what responses they give you is a must. Not only will it give you good order in your treatment/care, this gives
Okay--I am going to be the first suggestion here. My one and most important tip would be to WRITE IT DOWN. Keeping an accurate log of doctor appointments, questions for your care team, and what responses they give you is a must. Not only will it give you good order in your treatment/care, this gives
Bobbiereed
NKF Ambassador
in
Kidney Transplant
6 years ago
Severe brittle asthma/ Severe tracheomalasia.....HELP
Hi, I am struggling at present after having my last close to death experience 4 weeks ....following this I am struggling with getting me back to me , my body feels weak tired all the time and I can not use the cpap machine it gives me severe headache , light head .and tight chest ..I know if don't continue
Hi, I am struggling at present after having my last close to death experience 4 weeks ....following this I am struggling with getting me back to me , my body feels weak tired all the time and I can not use the cpap machine it gives me severe headache , light head .and tight chest ..I know if don't continue
Davenpos
in
Lung Conditions Community Forum
6 years ago
My Journey along
My husband died a terrible death from kidney failure and had we known the supposed reason(medication for acid reflux) we could have change things somewhat but it was too late...He was too old for transplant and health wise couldn't stand dialysis so had to watch him die..If I could help at least one
My husband died a terrible death from kidney failure and had we known the supposed reason(medication for acid reflux) we could have change things somewhat but it was too late...He was too old for transplant and health wise couldn't stand dialysis so had to watch him die..If I could help at least one
maggieemay
in
Kidney Disease
6 years ago
Alternative to Operating
I am 51 and have been diagnosed with fibroid 12 years ago. I never had any problems until a year ago i am suffering from severe pelvic and leg pains where i have problems walking at times. I am going into menopause and sweating profusely, experiencing more intense pain and the fibroid has grown very
I am 51 and have been diagnosed with fibroid 12 years ago. I never had any problems until a year ago i am suffering from severe pelvic and leg pains where i have problems walking at times. I am going into menopause and sweating profusely, experiencing more intense pain and the fibroid has grown very
fribroids
in
Pelvic Pain Support Network
6 years ago
Sleep or lack of!!
Dear All We are hitting a new era of agitation in the daytime and at night. Daytime I am managing but the nights are exhausting. So looking to the experts ( you guys) for ideas to improve my husband’s sleep. I give his night time sedation (Clonazapam)at 8pm in the hope it will settle him. Put
Dear All We are hitting a new era of agitation in the daytime and at night. Daytime I am managing but the nights are exhausting. So looking to the experts ( you guys) for ideas to improve my husband’s sleep. I give his night time sedation (Clonazapam)at 8pm in the hope it will settle him. Put
Tippyleaf
in
PSP Association
6 years ago
Healing me softly & hardly a bit!
I call the facility "school" davita clinic for my hemodialysis. I call the staff the rn's & technicians professors & teachers as if I actually go to a night class at the university so I'll feel less scared & panicky. Just to divert my situation. I just talked to the social worker about the loss of my
I call the facility "school" davita clinic for my hemodialysis. I call the staff the rn's & technicians professors & teachers as if I actually go to a night class at the university so I'll feel less scared & panicky. Just to divert my situation. I just talked to the social worker about the loss of my
Hopeful_kidney
in
Bereavement Care & Share
6 years ago
Waking up from Induced come (with a trach) - seeking for advise and hopefully some encouragement....
Following my previous post (https://healthunlocked.com/icusteps/posts/138808902/in-need-of-some-encouragement-and-insight.-waking-up-from-coma-dealing-with-the-trach-etc...) I have a few more questions. A few days after being taken off sedation, Is it normal to have leaps in the consciousness level?
Following my previous post (https://healthunlocked.com/icusteps/posts/138808902/in-need-of-some-encouragement-and-insight.-waking-up-from-coma-dealing-with-the-trach-etc...) I have a few more questions. A few days after being taken off sedation, Is it normal to have leaps in the consciousness level?
Shilla39
in
ICUsteps
6 years ago
Acceptance!
At first I was SO hesitant to go on dialysis then I was sent to ICU because the toxins inside my body was pretty high. My creatinine was 20%, very scary. That's why I felt so heavy ! I find it so heavy putting my jacket & I can't even walk :( I'm trying to catch my breath inside the car opened the side
At first I was SO hesitant to go on dialysis then I was sent to ICU because the toxins inside my body was pretty high. My creatinine was 20%, very scary. That's why I felt so heavy ! I find it so heavy putting my jacket & I can't even walk :( I'm trying to catch my breath inside the car opened the side
Hopeful_kidney
in
Kidney Dialysis
6 years ago
Waiting for Transplant
Hi, I'm 51 yrs old and been on Dialysis for 3 yrs. I was listed on the transplant list for about 2-3 months when my transplant center contacted me and informed me that when I had a heart catheterization done they noticed that I have Moderate Pulmonary Hypertension, which can be treated but since my transplant
Hi, I'm 51 yrs old and been on Dialysis for 3 yrs. I was listed on the transplant list for about 2-3 months when my transplant center contacted me and informed me that when I had a heart catheterization done they noticed that I have Moderate Pulmonary Hypertension, which can be treated but since my transplant
Dickie_Wayne
in
Kidney Transplant
6 years ago
Has anyone else got "floppy airways"?
My specialist has diagnosed me as having floppy airways and referred me on to a specialist in fixed airflow obstruction and Floppy Airways at a Wythenshawe hospital. I'm struggling to get any info on it. I understand the basis of the condition and know that treatment can be using a Cpap machine. It came
My specialist has diagnosed me as having floppy airways and referred me on to a specialist in fixed airflow obstruction and Floppy Airways at a Wythenshawe hospital. I'm struggling to get any info on it. I understand the basis of the condition and know that treatment can be using a Cpap machine. It came
EmberDog
in
Lung Conditions Community Forum
6 years ago
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